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AzizaRivers

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AzizaRivers

  1. AzizaRivers
    I'm so sorry your caught was so ill, I hope that is the last time she ever has to experience something like that. If I were you, I would consider her Celiac for all intents and purposes; don't worry about testing, as you know she gets sick when she cheats and (I'm assuming, from what you said) is healthy when she does not. Really, the cheating needs to...
  2. AzizaRivers
    It's totally possible that you have celiac anyway (my blood test was negative, too). You could push for a biopsy to double check, or you could just go gluten-free and see if it helps. Many of your symptoms do sound like classic celiac. You do have a few symptoms, though, that aren't what I would typically associate with celiac. Celiac can certainly cause...
  3. AzizaRivers
    You've had some great advice so far. I'll add to it with my own experiences. You would be surprised how many people really don't have the faintest clue what's in the food their eating. Many people don't know what gluten is, and that's understandable. But I've had experiences with people who thought that I could eat white bread. "Oh right, you can't have...
  4. AzizaRivers
    Do you live on campus and/or rely on the school dining hall as your primary source of food? If so, you'll want to speak with someone of authority about food that is or can be made safe for your to eat. I had a lot of trouble with this and eventually moved off campus because I had a VERY limited selection of safe food, and what was "safe" sometimes made me...
  5. AzizaRivers
    First of all, welcome! I know how good it feels to have figured out how to help yourself get better, and to begin the journey. I'm also vegetarian and I'll tell you that veggie-gluten-free isn't very hard, especially if you've been veggie for awhile and are used to that. I cannot recommend this blog enough: www.glutenfreegoddess.blogspot.com. Her recipes...
  6. AzizaRivers
    The easiest thing to do would be to cut out all dairy for about a week, and then give him something straight (like yogurt or a glass of milk; not cheese as some cheese are lower in lactose and wouldn't give a clear result) to have and see if that does anything. If he continues to be sick during the week before, then it might be more complicated. Of course...
  7. AzizaRivers
    Did your lab sheet show you what the "normal" ranges are? Maybe someone with more experience than me would be able to say that that looks like what normal usually looks like, but I do know that different labs use different numbers, so your should have told you what the normal ranges were so you could see where yours fall.
  8. AzizaRivers
    Stomach grumbling IS a symptom of celiac and gluten intolerance for some people, but it's also a vague phenomenon that can happen for a lot of different reasons. Do you have any other health issues or symptoms that might be indicative of a problem? Most people who are found to have gluten problems report more symptoms than just stomach noise. It's possible...
  9. AzizaRivers
    YES. The other night I was in a night class and it was someone's birthday. Seeing as none of us have had birthday classes since grade school, someone made a cake for her and brought it in. She said it was gluten-free because she knew of two of us in the class who couldn't have gluten and decided to buy a gluten-free mix. I took one bite of that thing and...
  10. AzizaRivers
    I'd say you can call him diagnosed, based on what the doctors are doing and have told you. I would give them a call though, and just check to see that it's been put in his medical records. The reason for this is that when he starts school, it may be helpful to confirm that it's "official" if he needs any accommodations in the classroom or cafeteria--stuff...
  11. AzizaRivers
    The only way we could know if someone is eating gluten without damage is for them to have regular endoscopies...maybe every month or so. Sounds expensive, and not worth it. Gluten remission is extremely rare and I would imagine the trouble one would have to go through to find that out, and find out if it stays, would not at all be worth the food.
  12. AzizaRivers
    Just as a thought, if she's been tested for allergies has she also been evaluated for asthma? It's not always caused by allergies so just because they don't think she has allergies doesn't mean it couldn't be asthma. I know you're not really asking if advice on that in this thread but I just figured I'd mention it in case it sparked anything. Especially because...
  13. AzizaRivers
    I had a celiac friend as a child, and her parents always just sent dinner, dessert and breakfast with her to make sure she had something safe to eat. She was welcome to eat any of our food as she knew how to read labels and knew what wasn't safe, but she had her own food to make sure she had meals. If it was a birthday party sleepover, they would send the...
  14. AzizaRivers
    Welcome to the board! I'm curious how you were diagnosed with your allergy? I've heard conflicting information on "gluten allergies" and some people say you can't be allergic to gluten, as it's a protein. I don't know enough about that so I will just say that I'm wondering how you were diagnosed with that. Either way, it seems that you have figured out...
  15. AzizaRivers

    ARCHIVED Worried Yet Cannot Help.

    AzizaRivers replied to Niebr's topic in Doctors

    IrishHeart has given good information, so I'll just add one more thing. This is just a thought I had as no one can tell much from what you've posted, but where exactly was the pain? Gallbladder pain can often be sharp like that, and is also often exacerbated by greasy foods. Your gallbladder is in your upper right quadrant. You would feel that pain in...
  16. AzizaRivers
    I'm so sorry you're so sick. Let's look at your symptoms. Celiac can manifest itself in a lot of different ways. *Dizziness *Tiredness *Geographic tongue--you have a textbook example of it (do a Google search if you're curious) *Mucus in stool *Nerve problems (that's the tingling and vibrating you feel) *Brain fog *Nausea *Menstrual problems *Anxiety...
  17. AzizaRivers
    It's possible, but I would think that if she was going to throw up from the gluten, she would have done it sooner than 5 days after the fact. Reactions can be delayed, but in this particular case I'm more inclined to think she may have had some kind of virus. I know your daughter is young and little kids have funny ways of reacting to being sick. I would...
  18. AzizaRivers
    1. Just for the record, you do not necessary HAVE to have "the genes" to have celiac. Many of us on here are living proof of that. We may have the intestinal biopsy to prove our diagnosis, but not test positive for the few genes that doctors are sure are linked with celiac. In fact, in different parts of the world, different genes are recognized! We have...
  19. AzizaRivers
    I filed a complaint on CBS's website. You all should too. Here's what I said: "I have a medical condition called Celiac Disease that causes my immune system to attack my small intestine if it detects even trace amounts of gluten in something I eat. I was repulsed when I heard the gluten joke in 2 Broke Girls. I have been made seriously ill at restaurants...
  20. AzizaRivers
    Okay, thanks guys. So what I'm getting is that my symptoms could possibly be related to food, and they could be nerve issues, but neuropathy itself indicates actual nerve damage, which only a specialist could test me for? I'm not particularly interested in that, I'm just interested in getting to the bottom of my issues. I'm either getting gluten sneaking...
  21. AzizaRivers
    I'm a little confused. You said you don't have celiac disease and just went gluten-free because of "reviews," but then you said you wondered if you are extra hungry because celiac disease makes it hard to absorb nutrients. So are you saying that you think you may have celiac? You didn't mention any symptoms. I was very hungry when I first gluten free...
  22. AzizaRivers
    I'm so sorry you're going through this, and that you don't have the support of your family. And I promise I won't think negatively of your husband. I had a lot of trouble getting my mother to understand and it didn't make me love her any less, it's just hard. I hope he comes around for you. It's tough because it sounds like a lot of his concerns are financial...
  23. AzizaRivers
    Some of you may have seen a few posts of mine here and there recently related to trying to figure out why I'm feeling sick again. I have had several ulcers at the same time lately, as well as mild stomach issues (nothing like if I was blatantly eating gluten, but still enough to make me feel "yucky" all day long) and just feeling down. Today while I was...
  24. AzizaRivers
    Hmm. Yeah, it sounds like many of us are in the same boat as me, or were and still don't have everything figured out. Thanks for sharing though, everyone.
  25. AzizaRivers
    I'm wondering if those of you with other intolerances tend to get the same symptoms you get from gluten, or if you have a whole different set of symptoms for other things. I have lately had a lot of canker sores (I have 4 right now) and I don't usually get those without it being food-related. I've been having mild stomach issues similar to my gluten ones...
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