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beefree11

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by beefree11

  1. beefree11
    What other illnesses/diseases/etc have you also been tested for? Where would a doctor even begin? How long has the inflammation been going on? The malabsorption of vital nutrients? Could there be something else along with the Celiac not yet tested for symptoms are similar? How much time, money - blood can you spare? A non gluten diet is by...
  2. beefree11
    The good in all that is that your doctor has tested you and is treating you. Your diet will be the main issue. Then your support in the way of nutrients, supplements, vitamins and medications. I was never tested for gluten/celiac. I was found to have gallstones, ulcers, migraines and IBS. Oh, almost forgot reflux. As soon as the xrays were read...
  3. beefree11
    My daughter has two blood tests that will only claim a "sensitivity." Her doctor let her decide if she wanted the more invasive procedure to determine damage/inflammation. She declined the biopsy. He said either way she MUST eliminate all gluten. We have. It's family members that scoff. Even with the two separate blood tests showing positive results...
  4. beefree11
    Hello! Congratulations on the wedding coming up!! (My daughter is much like you: reaction to corn, soy, gluten, casein, egg whites) She has Hashimoto's and hypothyroid. Then came the mono/Epstein Barr virus. The gluten sensitivity. Then we found poly-cystic ovarian syndrome. Isn't mono and Epstein Barr and chronic fatigue pretty much the same...
  5. beefree11
    We don't eat any food unless it is prepared by us. Health risk isn't worth it. Even though you "feel" fine, there is no way of knowing if there is destruction/inflammation occurring while going to the restaurant, the party, etc. Know what I mean? We call the banquet halls about special diet restrictions *I know of a couple wedding venues that allowed...
  6. beefree11
    UPDATE -- She graduated *with honors. Actually was chosen to represent school in a sales competition in another state and she truly enjoyed it. Had to hire a cab to get to a store to buy some gluten-free foods since the school did zilch - but they reimbursed her the cab fare and food bills so all is ok. I am just upset there is still NO change as far...
  7. beefree11
    Hi. Not sure if anyone mentioned personal products that contain gluten. My daughter (college senior) decided to remove ALL personal care items that contained gluten and/or its forms since she also had issues/sensitivities to OTHER ingredients. But it might be something to consider. Then those pesky additives that don't actually list GLUTEN, but are: ...
  8. beefree11
    Not 100%, but I found this: Open Original Shared Link Actually, this is "Erin's link" Not mine I am just copy/pasting for you!! This company---True Protein---Open Original Shared Link
  9. beefree11
    Well, could it be similar to cross contamination? I think so. I know my daughter won't use items containing gluten. She does get symptoms: rash, itchiness, etc. But there could also be damage underway once it gets into your bloodstream, via skin. I would not take the chance.
  10. beefree11
    welcome Jill This is THE place for help and suggestions. Right now Im gonna hit the recipes. I understand how you must stop yourself and it will take some time. I must dedicate half of my cooking time - first, for my daughter's gluten-free meals then prepare my husbands meals. He is slowly coming around to becoming gluten-free to help our daughter...
  11. beefree11
    My daughter had her right lobe removed in 2005 after nodules were found. There was no cancer. Her blood tests revealed Hashimoto's and thyroiditis, so she was placed on T4 only-Synthroid. Her doses were changed constantly with each new blood test. Until 2009, when her new doctor placed her on Cytomel too. She has been doing very well. He also found...
  12. beefree11
    I like this! A great way to sum it up, I feel. I recently replied to a woman who claimed that her husband and young son are celiac, but if they happen to eat "just a little" they don't have any problems with it. So she feels they have a minor case of celiac. She truly believes since they are not symptomatic, there is no reason to be careful, especially...
  13. beefree11
    When my daughter went gluten free she removed it as much as humanely possible for months, but in a weak moment took a chance on eating teeny tiny bite of gluteny pizza. Disaster! Learned never to do that ever again. Thru her own experimentation, she just cannot have any. She limits gluten free breads/cookies/etc, just in case. A friend of hers who...
  14. beefree11
    The FermPlus and Olive Leaf extract sound vedddy interesting! thanks Skylark.
  15. beefree11
    I had symptoms of hunger after eating when I was dxd with a peptic ulcer. I am not celiac/gluten intol at all. Are you on supplemental vitamins? As for the skin - there is a thread here : https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/ that could answer some questions for you! Hope this helps.
  16. beefree11
    Hi, sorry about all those probs. I am keeping an eye on this for my daughter hasn't healed from a recent gluten incident and this sounds like her. Are you taking a good probiotic to help replace the beneficial bacteria that the meds are pretty much destroying? Mega-Flora? Are you taking any other meds/supplements not known to the prescribing doctor? You...
  17. beefree11
    Hi. I wouldn't necessarily claim a waste of time or money just yet. It's can be a long process with many dead ends. But until you are satisfied and feel well, don't give up. Any type of digestive problems that begin to affect your life needs to be looked into. In my case, I was tested for ulcers, gallbladder, IBS, GERD and found to...
  18. beefree11
    Hi. So sorry you are going thru this. Did you find any relief with the no dairy? Are you still no dairy? Have you done anything with your diet to elim those more allergic items: soy, corn, wheat, gluten? To see if there were reactions? Have you been tested for pregnancy? Anemia? When was your last big blood work done? Is it time? Ask for ferritin...
  19. beefree11
    Welcome EvelynE! I asked my daughter (Hashi's, hypo, PCOS, gluten intolerant) your question and she replied that she does get small blister like sores if she eats gluteny items or she gets canker sores. Does it happen immediately after eating something with gluten, or is this something that is chronic?
  20. beefree11
    Good to know.
  21. beefree11
    The divorce was final June. 2010. She is doing so much better. Better food, a few supplements here and there. I even surprised her with a room re-do. Something very cheery, yet not over the top. I am making certain she takes very good care of herself. I have ordered extra Chiral Balance for the PCOS, some extra Vitamins and supplements for overall...
  22. beefree11
    Thank you. Thank you soo much. It means so much to just.get.it.out. I am near tears. The painful joints complaints are beginning. Could just be anything. But its haunting me now. I so fear arthritis...ms? She is 25. She left home/college/insurance status , at 19 to marry THE love of her life. As parents we did everything but tie her up...
  23. beefree11

    "Have patience with all things, but chiefly have patience with yourself. Do not lose courage in considering your own imperfections but instantly set a

  24. beefree11
    I have read it posted - here, in fact - that the biopsy isn't 100%. You could still have gluten issues with a negative biopsy. Please read the information from this site: https://www.celiac.com/articles/978/1/So-Why-Do-Celiacs-Still-Need-Biopsy-By-William-Dickey-PhD-MD-FACG/Page1.html I hope it helps. Would you mind so much the endoscopy if perhaps...
  25. beefree11
    The particular highlighted portion is what I question. Could she possibly have adrenal issues? My frustration is what drives me. I should step back every now and then and take a deep breath. I am trying to get her life as normal as possible. I have repeatedly told her there is nothing wrong with her. Most humans cannot digest those proteins that are...
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