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suziq0805

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Everything posted by suziq0805

  1. suziq0805
    My one year old just got ahold of the dog's rawhide bone and was chewing on it. There are not any ingredients on the package or a phone number to call. We get them from Sam's Club. Any idea if there would be gluten in this? I have no idea how rawhides are made.
  2. suziq0805
    I'm a teacher so hopefully I can help you out here. All staff just needs to be aware that even a tiny crumb can be harmful to you child. If they don't completely understand celiac they may think that if they are not seeing a reaction then they must be doing everything correctly. Our district prepares all of our lunches in a central location and then...
  3. suziq0805
    My son has an appointment with an ear/nose/throat doctor next week due to several ear infections over the last few months. Since he's had 7 ear infections since August I am guessing we will be discussing getting tubes put in. Does a child with celiac need an special precautions when going under anesthesia or getting tubes in?
  4. suziq0805
    A local author in my area just wrote a book about kids with celic disease. The author's son was diagnosed with celiac this year and they wanted to help other families with celiac and so she wrote this with her 7 year old son. I haven't purchased a copy of it, but our local news station did a story on it and it looks cute. It's geared towards helping young...
  5. suziq0805
    I have an 11 month old that is on a gluten-free diet and we give him the corn Chex for breakfast each morning. We just crush up the pieces and then put some formula in there so it gets mushy. I keep hearing that Kix are gluten free but the box doesn't say "gluten-free". I'm still getting used to reading food labels so for now I'm just buying products...
  6. suziq0805
    That's really interesting to know that your experience is so similar to mine. I had muscle pain/weakness/tightness in both arms up through my shoulders, constantly tight muscles in my neck and upper back, headaches, jaw pain, this weird pressure/throbbing in my ears, burning pain in my armpits, occassional tingling in my pinky and ring fingers, occassional...
  7. suziq0805
    I am not diagnosed with celiac. My infant son may have it and I just got tested (as I do have a few symptoms of it), but my bloodwork was negative for celiac. The pain I dealt with improved greatly after about a year of physical therapy. My physical therapist said that my hips/abs were just so weak that it was throwing my upper body out of whack and causing...
  8. suziq0805
    Last week I had blood drawn for testing for celiac disease. My 10 month old son may have it- he severely vomits after eating gluten/wheat, but tolerates gluten-free food fine. So since I realized I do have some symptoms of celiac disease we decided to test me to find out if I have it. The nurse today told me that the doctor said my test results came back...
  9. suziq0805
    I don't have this, but did go through a period of chronic pain. While researching what the doctors thought I had, I did hear about something called Complex Regional Pain Syndrome. Not sure if this matches what you are experiencing but webmd.com has a bit of info on it.
  10. suziq0805
    Do you have any links to research about the elevated ANA correlating with celiac disease? We recently began to wonder if my son has celiac and when I began researching it I wondered if I could have it when I discovered it can cause muscle weakness and neurological symptoms. I went through years of pain that no doctor could figure out (not even Mayo Clinic...
  11. suziq0805
    Thanks everyone for the replies. This is all just so confusing about what to do...mainly since we are waiting for our doctor appointment and not sure of what causes his reaction to wheat products. I'm still breastfeeding but not on a gluten free diet. I don't produce enough milk for him anymore so he gets more formula than breastmilk now. Any solids he...
  12. suziq0805
    So I'm pretty new here but have recently been reading a lot about celiac disease online. My 9 month old son gets sick after eating grain products and after several negative allergy tests we wonder if it is celiac disease. We have an appointment with a pediatric GI doctor next month for him. If he would have celiac disease I began wondering if I could have...
  13. suziq0805
    I am an elementary teacher so hopefully I can offer some help! I would say speak with the teacher again- if you haven't already. Make sure she realizes the importance of your requests. Keeping up with a room full of little ones isn't easy and if she's not aware damamge can happen to your child that's not visible she may think she's doing everything right...
  14. suziq0805
    Hey everyone! I'm new here a have a number of questions, so I hope you don't mind! But first here's a big of background. I have a 9.5 month old son that may have celiac disease. 2-3 hours after eating grain products he throws up. This has happened after oatmeal, Gerber puffs, and baby food with wheat flour in it. He also got sick after eating Gerber...
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