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padma

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by padma

  1. padma
    I can't eat the Chex either. I think I have tried everything I could find available at the store (not on the internet) and I am reacting to every one. It is very frustrating. I finally threw them out so I couldn't talk my self into them being ok. I have been making steamed organic brown rice and putting either organic almond mild or organic soy milk on...
  2. padma
    Pacific Organic Foods makes a great tasting organic almond milk. Almonds are one of the heaviest sprayed crops and they are all irradiated now (new law), so organic is best. They list on the box "Gluten free". I have been drinking it for 2 or 3 months now with no reactions. Plus it is delicious and low in carbs. I switched from an organic soy milk because...
  3. padma
    I am convinced since tracking the foods that I react to, that there is a BIG difference between organic and non-organic. The two main differences are pesticide residues and GMO's. Pesticide residues create a reaction of their own. Some are neurotoxins, which are some of the worst for me. PAN is a data base to look up fruits and vegetables and find out what...
  4. padma
    You have gotten a lot of good ideas here. To test thyroid, you need Free T3 and Free T4. Those numbers are what is actually available to you to use. When I was first diagnosed I was very malnourished. My nails had ridges, my skin was not smooth all the time and my hair was brittle. I took good quality supplements and I simply couldn't absorb them. All the...
  5. padma
    Hi. I was diagnosed 10 years ago. I found I also have other conditions that cause the same symptoms. Here is a site that might give you some extra info: Open Original Shared Link Hope it comes through. There are so many systems in the body and when one is off balance, then others can become off balance, too. You are on the right track. It has taken me...
  6. padma
    Would you like to share your bread recipe? The one I have isn't so great, it is like glue. I am also going to try the pita bread looking recipe. It will be a real breakthough when I get this part of my diet worked out. I have a blender with a special attachment for making flour. I haven't tried it yet. Thanks to all of you for sharing your ideas...
  7. padma
    Having been at this for 10 years, I no longer keep anything that could potentially gluten me for a back up. I got rid of anything I had a reaction to a few months ago, then have added only one thing a week to see if I react. If I don't have a reaction in one day, then I eat it again the next day, etc. Usually, if it is low in gluten, it might take a few...
  8. padma
    I have seen you post this before and it has been very helpful to my understanding. The other day I was trying to imagine how much volume a million grains are. Anyone have an idea? As far as Udi's is concerned, I tried it when it came out. I was thrilled with the way it tasted and how it felt more like real bread. Unfortunately, I can not eat it. After...
  9. padma

    ARCHIVED Yeaaaa - Sharing.

    padma replied to T.H.'s topic in Super Sensitive People

    Hi. It is so inspiring to hear a positive story. Keep up the good work. I, too, didn't feel a lot better for 2 - 3 years after I went gluten-free. That was 10 years ago. This site didn't exist then, so I was on my own to figure out what was making me ill. Knowing I am super sensitive has been such an important step. I would eat something like corn chips...
  10. padma
    I didn't read your whole post: I have to pay for my labs and meds. The labs are around $400 each time. I really shopped for a lab where there was a doctor who was grandfathered into the old fee schedule. Otherwise, it would be over $1000! Ridiculous.
  11. padma
    Hi. I, too, have thyroid issues. When I finally found a good endocrinologist, Dr. Dan Purser, MD, in Utah, he finally figured it all out. Age has a lot to do with our endocrine system. Being gluten free did nothing for my thyroid. In my case, they are separate issues. He did a full hormone panel, incl. progesterone, estriol, estrone, estradiol, free testosterone...
  12. padma
    The easiest way I have found to start a gluten-free diet successfully is to eat veggies, fruit, meats and small fish, and organic brown rice that has been rinsed well before cooking. Once the symptoms have subsided, then add a gluten free food one at a time. There is so much cross contamination in processing these days that finding a truly gluten-free food...
  13. padma
    This has been a helpful thread. I can not tolerate any oats, so have stayed away from them for almost 10 years. Learning there is oat c.c. is so helpful. This year has been a year of setbacks,and lots of confusion. For many years I was symptom free. After getting info from members here I decided to quit eating any gluten-free products for a while. Within...
  14. padma
    I have been free of all grains for almost 2 months now. I have tested a few gluten free foods and a few do not cause a reaction. I am doing much better just sticking with veggies, fruit and fish. I read all your inputs every day and am learning a lot. Thanks.
  15. padma

    ARCHIVED Vinegar...

    padma replied to dube's topic in Super Sensitive People

    I ate some pickled herring recently and didn't feel well afterward. Thought it might be the vinegar. Has anyone else tried that? I read that hydrolyzed wheat protein is used to "clarify" some wine, (and therefore, probably vinegar). I can eat organic Paul Neuman vinegars, both red and balsamic.
  16. padma
    Hi. You are still really a newbie at this gluten issue. I am 10 years down the road and still have the same questions you do occasionally. There is a group on here for "super sensitive Celiacs" that might help you. I, too, was starting to react this past year. After speaking with a super sensitive man it occurred to me that the gluten free food I was...
  17. padma
    Hi. I just came across a new "cross-contamination" definition which is much broader and may explain some of our symptoms. I came across this article by Donna Gates about coffee and gluten reactions. .. there is a sinus-gut connection, added to neurodegeneration, inflammation and cross-reactive inflammatory triggers (something new to me): Open Original...
  18. padma
    One of the reasons you may be getting sick from beans may not be the gluten. I just found out all beans are fumigated. That is a pesticide gas that it says "mostly" evaporates in 5 min after exposing the food. If residues remain, which I think they do, and they are oil soluble, it might not wash off very easily. I have started washing all rice and beans...
  19. padma
    Hi. I can sympathize with you about having to change. All of us have had to do lots of changes in order to be well. And, yes, there are times you just want to cry and feel totally hopeless. I still do sometimes even though I have been diagnosed for 10 years. Just a few weeks ago I went totally off all "gluten free" foods. I had a real melt down and pity party...
  20. padma
    Hi, Shawna. I was thinking about issues with veggies. In Ayurvedic medicine from India, which is about 5,000 years old, they teach that if you have a digestive problem, you should cook food thoroughly with spices that help digestion. I know you have a problem with some spices, but maybe you can find some that you are ok with. They say, "no raw food", especially...
  21. padma
    Over the years I have "tested" soy, potatoes, rice, garbanzo flour, other bean flour, etc. Thank God they don't bother me. I think someone's remark that perhaps I have gotten more sensitive could be true. I also think that many of the new products have too high levels of gluten for me. I am still pain free after almost 2 weeks. Gluten pain for me is specific...
  22. padma
    This is a very interesting post. I am super sensitive to gluten and never thought about anything topical being a problem. I wouldn't rule anything out. To say something is impossible is not being very open minded. If everyone stays open and curious, we just might figure out what is causing the problems we are having. We don't need to debate, just share what...
  23. padma
    Your theory may be correct. It is certainly worth testing. I am part Eskimo and my digestive system is like my dad's, who had celiac. My brother took after my Greek mom and can eat gluten, dairy, and everything I can't eat. Life is not fair. I like your avatar...haahaa. I am going to look for one.
  24. padma
    There is a fellow in the Kona Farmer's Market who grows his own sugar cane and has a press to get the sweet juice out. Usually sugar gives me a rush, but this stuff feels just like regular food, no rush.
  25. padma
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