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Kimmik95

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kimmik95

  1. Kimmik95
    If you think it's a possibility - have the blood test done to see if that comes back positive. If it doesn't then she may just have a gluten sensitivity or allergy vs. celiac disease. If it comes back positive, then you can decide if you want to have the endo done. I would either decide to do the testing or just go gluten-free, but I really wouldn't recommend...
  2. Kimmik95
    That's interesting you say that because my son had horrible issues with gas pains as an infant. He was fed EBM for about 3 months and then switched to formula, but eventually needed to have lactose free to ease the gas pains. Once I discovered those gas drops for him, he was much better, so we never looked into it more than that.
  3. Kimmik95
    Thanks for the post. Everything I've researched and have discussed with doctors has indicated that the full gulten protein does not pass through breastmilk and therefore a child cannot develop celiac disease until they are on solids with gluten. The article below is the best one I've seen for explaining why: https://www.celiac.com/articles/297/1/Breast...
  4. Kimmik95
    Thanks for the info.
  5. Kimmik95
    My 7 year old son has Celiac Disease and was diagnosed 11/2010. I just recently had a baby with Down Syndrome, so we are pretty much expecting her to have a diagnosis at some point, therefore, I was just going to keep her gluten free at least until she was old enough to communicate problems so if/when the disease develops, we can figure it out quickly...
  6. Kimmik95
    Ingredient-wise, the popcorn should be fine - we don't let Chris have it because of cross contamination issues. If someone would grab a soft pretzel and then go in to get popcorn, then the whole thing is now contaminated with gluten. We just pop and take our own and the theaters have always been very understanding.
  7. Kimmik95
    My son was just diagnosed a few months ago. His main complaint was joint pain, but he did have occassional belly pains. He also wasn't growing. He'd gone from 75% height and 25% weight to 15% height and 3% weight in about a year and had gained no weight in about a year. We are pretty sure his celiac disease was triggered last year during Kindergarten...
  8. Kimmik95
    My son (he'll be 7 in a few days) was diagnosed a few months ago with celiac disease and the diagnosis all came about because of joint pain. I kept saying he was having growing pains because he constantly complained that the back of his knees really hurt to the point that he took pain meds every night and used a heating pad. After my mom pointed out he...
  9. Kimmik95
    Thanks for the response. I think I'm just going to play it all by ear. Now I know to watch out for the breastmilk at least.
  10. Kimmik95
    Honestly, I had no idea what celiac disease was. I took my son in to his pediatrian because he was having joint pain in his knees every night. I had thought it was growing pains until my mom pointed out that he wasn't growing. The pediatrician sent him for some bloodwork, which came back for some markers for RA, so we went to a pediatric RA and she evaluated...
  11. Kimmik95
    Is your daughter on a gluten free diet? I'm not sure I understand how she would be diagnosed over the phone. My son had bloodwork done and then, based on that and symptoms, he had an endo which confirmed villa damage, which is kind of the golden rule for diagnosing celiac disease these days. celiac disease damages the small intestine, among other things...
  12. Kimmik95
    My son is 6 and was recently diagnosed with celiac disease. Although it's nice to actually have the diagnosis, what's nicer is the fact that he feels so good eating gluten free. Personally, in your situation, I would take your kids gluten free and see how it goes. If they improve, then does it really matter if they have celiac disease or just an intolerance...
  13. Kimmik95
    She may have physical symptoms that she's not vocalizing or doesn't realize are there. My son had very mild physical symptoms. He would have ocassional stomach aches and then he had bad leg pains, but he was very irritable. If your daughter is feeling like crap internally, then the temper tantrums could be a sign. I would at least make an appointment...
  14. Kimmik95
    I agree with the other poster - turn your class as gluten free as you can. As long as you wash your hands after using and before touching food, the playdough and paint and such shouldn't be an issue, but the sensory table could definitely be changed.
  15. Kimmik95
    We are planning a trip to Cancun in May, so I'm thinking through the same type of things. Many canned baked beans are gluten-free. Progresso has some soups that are gluten-free. Amy's has a boxed Mac & cheese. Dinty Moore has some stews that are gluten-free. My mom thought of maybe checking a disposable cooler for some items. I don't...
  16. Kimmik95
    Thanks. I think the counselor is starting to get it. I try to explain it to people that it's very similar to a peanut allergy in the cross contamination, but where as with a peanut allergy, the child might need an epipen immediately, my child won't die from ingesting gluten. However, when someone with a peanut allergy gets an epipen, the issue's over and...
  17. Kimmik95
    If you have Celiac Disease, then it has to be kicked off by something (surgery, pregnancy, tramatic event, stress, etc). It's quite possible for a parent to be a carrier, but not have celiac disease. If you have a gluten sentivitiy, then I'm not sure how that works. Pure spices are fine. Vanilla is sometimes gluten-free - check the brand you have...
  18. Kimmik95
    It's crazy, right? The funny thing is that the person who has probably ben one of the most understanding is my cousin. Her son has a peanut allergy and she said to me one time that if her son has something with peanuts, she has an epipen - there's no quick fix for Chris. I thought that was beyond understanding, actually. I try to explain it to the people...
  19. Kimmik95
    Thanks for the response. We've been on top of the medicine. I really thought there would be a change in the fact that he might be absorbing more of the medicine now that he's actually absorbing things! We were hoping that maybe some of his focus issues were due to being malnutritioned as well. I didn't expect him to be 'cured' as then he would have been...
  20. Kimmik95
    Thanks for the response. It is always good to hear a teacher's perspective. I'm a teacher too. I personally have made everyone very aware of all of the issues. His teacher at the beginning of the year was very familiar with celiac disease as her husband has it, so that was a big help. I submitted a 504 (they wouln't actually let me do a 504, so I called...
  21. Kimmik95
    I know nothing about WIC, but I do know that if you itemize your taxes, you can get a deduction, I think for any money you spend on allergy related foods. I know it's not immediate assistance, but it could help in the long run.
  22. Kimmik95
    I think it all depends on the kid and the timing. Chris was squeezed in for his endo and therefore he was at the end of the day vs. being in the morning like he typically would for his age. Hoping they'd get him in earlier, they didn't want him eating or drinking after midnight (which included no ADHD meds). His biopsy wasn't until 2:30, so he was starving...
  23. Kimmik95
    My son's teachers (his original went on sabatical for 2nd semester) have been amazing! I have some cupcakes in teh freezer and I just take some in to leave at school. When a child brings in a dessert for a birthday or whatever, Chris' teacher just takes one of his out of the freezer and he gets a treat too. His classroom has been amazing as well. The...
  24. Kimmik95
    Honestly, I've done most of that. I've talked to the counselor, his teachers, and the school nurse. I have a Health Plan in his file and all of his teachers and anyone who interact with him have received a 1 page summary of the form. We're working with Chris on the eating thing. He's actually pretty good at asking if something is gluten free. He...
  25. Kimmik95
    The waiting to meet with the GI and then have an endo done to confirm is the worst part because when your child has a chance of celiac disease, you know you can be hurting them by giving them gluten! My son is 6 and was diagnosed in November 2010. We are about 90% gluten-free here. I have a 3 year old daughter and she loves her gluten The big thing...
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