potatopeelingmom
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Latest Celiac Disease News & Research:
Everything posted by potatopeelingmom
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ARCHIVED Vertigo After Going Gluten Free?
potatopeelingmom replied to hem's topic in Coping with Celiac Disease
It's likely Benign Positional Vertigo. An ENT specialist can confirm it for you. Mine went away after going gluten-free. When you are experiencing it, sitting at the side of your bed and flipping yourself back and forth sideways will induce it, but will also cause your ear to settle down and it will diminish. I also find it is important to keep your ears... -
ARCHIVED Question For Anyone That's Done Skin Allergy Testing
potatopeelingmom replied to salexander421's topic in Parents, Friends and Loved Ones of Celiacs
Hi My son has Celiac and is anaphylactic to soy. We met with an Immune specialist prior to meeting the GI specialist. The Immune specialist insisted on doing the skin prick testing. My son completedly tested negative. Despite having an anaphylactic reaction to soy 1 week before and again 2 weeks after the testing, the dr. was not able to figure out what... -
ARCHIVED Something Is Still Not Right :(
potatopeelingmom replied to ChristyL's topic in Parents, Friends and Loved Ones of Celiacs
I doubt the skin prick test will give you any clear results. My son had the testing done after his first anaphylaxis and all was negative. He continued to have a second anaphylaxis 3 weeks later. Then when we saw the GI specialist, he informed us that the skin prick test is waste of time for food ingested allergies/reactions. The skin test is more for... -
ARCHIVED Is Anyone Else Seeing A Rise In The Number Of Kids With This?
potatopeelingmom replied to T.H.'s topic in Parents, Friends and Loved Ones of Celiacs
Hi all, We homeschool as well. We have noticed a few that were gluten-free, but I did not pay much attention to it until my son started to have gut symptoms. I diagnosed him myself, after all different types of milk trial, dairy free and then severe illness with diagnosis of Kawasaki Disease, followed a few months later with anaphylaxis. Then at the... -
Hi Jack, Flour in the air take 2 days to settle. I think you are getting cross contaminated, at the school cafeteria and home. Perhaps you could speak to your mom about setting up the kitchen, so one area is completely gluten-free and she could limit her meals to non-complete gluten ones. There are so many pizza restarants. Perhaps she could go out and...
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ARCHIVED What Would You Do If It Was Your Child?
potatopeelingmom replied to katiekay's topic in Parents, Friends and Loved Ones of Celiacs
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ARCHIVED Endoscopy
potatopeelingmom replied to Annaatje's topic in Parents, Friends and Loved Ones of Celiacs
Something that will allow you a restfull sleep and clear mind in the morning is 5 HTP. Find it at your natural health store. Hope all goes well, Monica -
ARCHIVED What Vitaminsdo Give Your Kids?
potatopeelingmom replied to momtok&m's topic in Parents, Friends and Loved Ones of Celiacs
I find Genestra has been the best for us. We take them separately, not a multi. My son needs to avoid soy as well. Also, we use Natren for probiotics and Carlson for fish oils. Monica -
ARCHIVED Endoscopy
potatopeelingmom replied to Annaatje's topic in Parents, Friends and Loved Ones of Celiacs
I'm not sure why you would need a biopsy, if you already know he is positive from the bloodwork? You do have the right to refuse it, unless you need the positive biopsy for insurance purposes? About the potential IV and/or further bloodwork. In Canada, one can by a cream over the counter that helps numb the skin before needle sticks. It is called Emla... -
Hi I have a son who has had KD one and 1/2 years ago. He was 10. Very typical with all the signs and symptoms. It took 3 pediatricians and one GP to diagnose. The final Pediatrician was the most suspicious and spent more time organizing bloodwork and considering what the symptoms were. We were rushed to emerg on day 10 finally. Treated with IVIG and HD...
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ARCHIVED Daughter Experiencing Joint And Muscle Aches/pains
potatopeelingmom replied to lynnmb's topic in Parents, Friends and Loved Ones of Celiacs
Hi Marlie and all, I find your daughter's history very interesting. My son was finally diagnosed with Celiac last year. He is now 12. He has had 3 fractures... femur at age 2, tibia/fibula at age 5, and toe last summer. Calcium is a huge requirement for Celiac's esp. children that have not completed growing their bones. Also, vit D. We see a Naturopath... -
ARCHIVED Intestinal Bleeding
potatopeelingmom replied to alex11602's topic in Parents, Friends and Loved Ones of Celiacs
Hi Alex, I hope your little girl is feeling better, but if not I think you need to ensure she sees a Pediatric Gastroenterologist. Bleeding could be indicative of something other than Celiac. She could have Ulcerative Colitis or something else (the root cause could be Celiac however). If it is Ulcerative Colitis it needs to be brought under control. I... -
ARCHIVED Searching For Gluten-Free Dried Beans
potatopeelingmom replied to potatopeelingmom's topic in Super Sensitive People
Thanks guys... I'll see if I can order them up to Canada. Or maybe I'll have to take a trip to California. :-) We have been using Eden and washing them. I think we are be CC'ed still. Take care, Monica -
ARCHIVED Asthma And Dairy - Is It Lactose Or Casien Or Other That Is The Culprit?
potatopeelingmom replied to StacyA's topic in Related Issues & Disorders
>>>Regarding asthma and dairy - is it all dairy, or just lactose or some other part of the milk that is the problem typically with asthma, does anyone know?<<< Hi Stacy and all, My son was wheezing badly everyday. We were treating it with homeopathy, without complete success. We eliminated all sources of soy a few months ago... -
ARCHIVED Searching For Gluten-Free Dried Beans
potatopeelingmom posted a topic in Super Sensitive People
Hi all, I am having difficulty sourcing out a company that makes dried beans that does not cross-contaminate with packaging. Have you located any good dried bean/legume companies? TIA, Monica -
My son and I both react to 10 ppm or higher. I am very picky about which companies we purchase from. It has to be manufactured in their own "wheat free" factory and test at the lowest level. I purchased a vita mix with the dry bucket and now make my own Lundburg rice flours. Also El Peto is good for the other flours. Take care, Monica
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ARCHIVED Celiac And Other Auto-Immune Diseases
potatopeelingmom replied to Gluten Glutton's topic in Parents, Friends and Loved Ones of Celiacs
Hi Amanda, I've just joined the forum. Your post totally caught my attention. I completely believe that your son and possibly yourself have Celiac. I will try to tell you my story quickly as it is long.... I was diagnosed with Ulcerative Colitis, when I was 17 many years ago. I ended up having my large intestine removed in my early 30's. Fast forward...