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JonnyD

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Everything posted by JonnyD

  1. JonnyD
    Posting a follow-up on this. I haven't been on the site for a while. I recently went dairy free (in addition to gluten free for celiac) and had an almost immediate positive response in my EoE symptoms. My doctor gave me a recent study on EoE and the two leading allergens by far were identified as wheat and dairy. I'd been suspicious of other allegens...
  2. JonnyD
    I was diagnosed celiac almost 2 years ago now. I recently started generic zoloft (sertraline) at the 50mg level. It's been a couple months and I plan to give it at least a year before deciding to keep it or go off. I'd caution you about making too many changes at once. When you do that, you don't know what's causing the effect. Is a bad day from a...
  3. JonnyD
    Not sure where you live but Cincinati Children's has a specialty clinic set up for Eosinophilic Disorders and I think they're one of the few that offers this. You can find out more with a quick internet search. My experience has been that GI and Allergy doctors tend to know some info about eosinophilic disorders but not a complete picture. At least I haven...
  4. JonnyD
    Momof2Boyz: Sorry, I don't have the eosinophil count. I need to request a copy of my records because I've had that question before. Sorry. I saw images from my scope though and it was textbook EE. 1974girl: I didn't have any noticable symptoms of EE other than occasional food getting caught in my esophagus (dysphagia). I started with the skin test...
  5. JonnyD
    I've been diagnosed with Celiac and EE too. From what I read, it's more common in boys than girls. In a first attempt to solve the EE, I tried swallowing Flovent for 12 weeks and had some success with it but the symptoms came back almost immediately after stopping the med. But, I'd rather not take a med if I don't have to. EE is essentially an allergy...
  6. JonnyD

    ARCHIVED Pediatric Gi In Cleveland

    JonnyD replied to StephanieL's topic in Doctors

    Judy Splawski is really good. We used to take my oldest daughter to her and were always happy. She's very nice too. I too stay away from the Cleveland Clinic. JonnyD Disclaimer: Not sure if it matters but my oldest did not have celiac but we saw Dr Splawski for other GI issues.
  7. JonnyD
    I'd suggest counting calories and/or reducing what you are eating. I've been pretty active for a long time and only recently started dropping weight but it's correlated with fewer calories. Be real careful of portion size and how much you are eating in the process. Even if you are eating the 'right stuff', you won't start dropping if you're consuming too...
  8. JonnyD
    I was diagnosed at about the same time and have been gluten free since. I was also diagnosed with Eosinophilic Esophagitis. From what I understand, multiple auto-immune disorders are common. I recently started a food journal to try to figure things out with my diet. It's a bit of a pain but worth it. I found it best to keep a pretty simple diet in the...
  9. JonnyD
    Completely your call. If it were me, I'd stay on gluten for now and have the biopsy. Knowledge is power. Plus, positive bloodwork with a positive biopsy make the diet easier to stick to.
  10. JonnyD
    We have a shared house. Our house is full of gluten products. Most dinners are gluten free. We have shared cookware (with some dedicated gluten-free ones too) and it hasn't been a problem. I must react to a higher level of CC. But, I do wash my hands all the time and my wife is good when gluten-free preparing meals. A total gluten-free house just wouldn...
  11. JonnyD
    I was diagnosed with Celiac as well as Eosinophlic Esophagitis (EE). I've been gluten free for almost a year now. But, I've often experienced the throat clogging from the EE. For EE, your esophagus reacts to an allergen in your diet and flares up for 12 days. I've recently started a food journal to see if I can narrow down what's bothering me. If you...
  12. JonnyD
    Thanks for all the input. I'm formulating a diet right now and am hopeful that I can identify my other food issues.
  13. JonnyD
    Hi, All, I hope you can help. I've been gluten free for almost a year but still suffer from an allergy to something(or multiple things?) in my diet. I'm going to have to do an elimination diet soon and am hoping for some advice. Just so you know, I've been allergy tested but those results all came back negative. A strict elimination diet is the only...
  14. JonnyD
    Thanks. I'm going to have to do the Elimination diet. My food allery tests also came back negative across the board but I've been still having problems. How did you undertake the elimination diet for your daughter? What foods did you start with and how did you re-introduce other foods? I've seen conflicting information on how to follow this. Thanks...
  15. JonnyD
    I was diagnosed celiac via bloodtest. During my scope, I found out that I also have Eosinophilic Esophagitis (EE), which is another auto-immune disorder affecting the esophagus. I've read a lot about it and even tried medication with some marginal success. My throat is often 'tingly' after I eat and I've occasionally gotten food caught in it when it's...
  16. JonnyD
    I have Celiac as well as Eosinophilic Esophigitis (EE). I went gluten free immediately after I had positive bloodwork for celiac. I've had an overall positive response to being gluten free. The EE, on the other hand, has gotten much worse since I overhauled my diet. I've been reading a lot on this and allergies. From my understanding, if you can...
  17. JonnyD
    I love Mike&Ikes candy.
  18. JonnyD
    I was about the same size as your son at that age and always short compared to my peers. My parents are nearly as tall as you and your wife but I managed to get to 5'7" but went undiagnosed celiac for many year. I suspect that I would have been another inch or so taller if I was gluten-free in my teenage years. I'd suggest letting nature run it's course...
  19. JonnyD
    Thanks for the advice. I do have a diagnosis for both Celiac and EE. I'll have to look into the elimination diet and see if I can identify the culprit for the EE, if there is one. When diagnosed with both initially, I initially hoped eliminating gluten would fix everything. But, that wasn't the case. Gluten-Free has made a hugely positive...
  20. JonnyD
    I was diagnosed with Celiac and EE back in Feb of this year. I obviously went gluten-free right away but chose not to do anything about the EE other than monitor it. In the fall, I had an incident where got some meat caught in my esophagus and it prompted me to investigate the EE further. First, I had food allergy testing done but I didn't react to...
  21. JonnyD
    I had very positive bloodwork as well as family history so I went Gluten-Free right away. I had a biopsy done a month later but never had any gluten before. My GI said it could take 6 months to a year to fully recover so he wasn't too concerned. My biopsy show some moderate signs but not slam dunk atrophy. It's been almost three months Gluten-Free and...
  22. JonnyD
    I've been gluten-free for about 2.5 months and plan to have my celiac levels tested again around the six month level. I also had high cholesterol so I'll get that rechecked then too. Since they're drawing blood, I'm going to have my vitamin levels checked, CBC and whatever else the doc will order. I haven't gone to a nutritionist so I'm waiting to see...
  23. JonnyD
    In hindsight, I've had symptoms my whole life but can identify definite triggers/episodes that made things worse. As a guy, I mostly just accepted it as my lot in life. Things got significantly worse for me after my daughter passed away in late 2009. That prompted me to finally go to the doctor and my lab results were definitely positive.
  24. JonnyD
    I'm a 37 yr old guy and have been Gluten Free for 2 months. I got a couple books on Celiac (gluten-free Diet by Elisabeth Hasslebeck and Dangerous Grains) from the library and found that reading about what celiac really means helped me a lot. There's a lot of advice on this blog but it's up to you to accept the diagnosis first. The book by Hasslebeck is...
  25. JonnyD
    First off, I'm no professional athlete but have been a runner for 20+ years and pretty fit overall. I've been gluten free for almost 2 months. From what I've read, you should focus on eating mostly whole foods and not a whole lot of the processed "Gluten Free" labeled products. That should help things heal quicker. For me, I saw an easing of symptoms...
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