pondy
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Latest Celiac Disease News & Research:
Everything posted by pondy
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Sounds like you are doing all the right things... My GI told me to stick with whatever works, which for me is polyethylene glycol (MiraLax)daily. I wish I could drink the herbal lax tea I have in the house - but it's Yogi brand, which is not necessarily gluten free. Metamucil? It's another fiber supplement like Benefiber but it has psyllium fiber...
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ARCHIVED Rib Cage Woes.... Again & Again & Again
pondy replied to pondy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am trying to avoid soy & sugar but I've had a few Snickers bars lately so that may have been too much... Guess gluten free doesn't equal safe for me. -
ARCHIVED Rib Cage Woes.... Again & Again & Again
pondy replied to pondy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the responses! I'm going to retrace my steps over the past few days & check for cc. Good news is that I did not wake up with the pain today - yea! Time to start anew... -
ARCHIVED Rib Cage Woes.... Again & Again & Again
pondy posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've seen so many threads here about rib cage pain, yet here I am with questions - sorry I've had burning pains right underneath my rib cage - both sides - for the past couple days. They come and go, but mostly they are present. This is the "mystery" pain that has stumped both my PCP & GI since early February, but the one that finally got... -
ARCHIVED Veggie Slices (Gluten Free Cheese)
pondy replied to RVluvin's topic in Coping with Celiac Disease
Wisconsin Cheesehead here with a question... I did not know that aged hard cheese was lactose free... is Parm included or just cheddar? I used Sartori brand BellaVitano Gold (a creamier kind of parm - no offensive ingredients listed) in a recipe yesterday and then promptly had burning ribcage pain, extreme fatigue & "loopiness". Are these some... -
ARCHIVED Follow Up Appointment Soon - What Labs Should I Request?
pondy posted a topic in Coping with Celiac Disease
Hi Folks, Are there any labs that are typically done around the 6th month check-up point? Does it depend on my list of complaints/symptoms or is it standard practice to check healing progress with blood work and/or another endoscopy? Guess I want to keep my doctor in check Seems to me that you all are much more knowledgeable about this disease... -
I'm glad you're going to see a GI. He will probably ask you if you have bloating, nausea and/or vomiting. They asked me that 100's of times - I believe it's a symptom of a blockage or impaction. Are you taking a fiber supplement? I ask because - from personal experience - I would NOT recommend it for someone with chronic constipation. Here's why...
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Hi, Constipation is a huge issue for me also... so I get what you are going through. I had a colonoscopy a month or two ago to rule out a fecal impaction - it was all clear but my GI put me on Miralax 2 to 3 times per day - like maybe till whenever my intestines heal up - could be years. Point is, my GI told me that Miralax is totally mild and totally...
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I'm really sorry that you're suffering. I can relate - not only to the brain fog/fatigue/no motivation issues, but to the job stress as well. What seems to help me is to eliminate sugary foods (including dairy) - these I tend to eat more of when I feel under pressure. In the end, cereal, cookies, ice cream - anything processed really - all make me...
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ARCHIVED Gluten Ataxia Vs. Neurological Problems Due To Nutritional Deficiencies
pondy replied to T.H.'s topic in Super Sensitive People
Some of my neurological symptoms are difficulty concentrating, balance issues & forgetfulness. I have lab orders in for a B12 level check. I have not seen a neurologist yet. Anyway, these symptoms are almost constant - accidentally glutened or not. -
Wow, ok. I will ask for some B level labs ASAP - that and perhaps another stress test. Right now I take just 1000mcg of B12 in the morning - the tablets. Thanks very much for the insight - these symptoms are incredibly frightening.
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I've never had a reaction like this - unless the "high" you describe is like brain fog - that out-of-it, can't remember 12 to noon, what was I saying?, o.k. why did I come in here?, I'm-gonna-fall-asleeezzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz.... feeling?! All I remember is horrible pain & the above mentioned crazy neurological symptoms. Good luck to...
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ARCHIVED Shared Kitchens?
pondy replied to TwitchyMcLurcherson's topic in Coping with Celiac Disease
I'm sorry that you're going through all this... I share a kitchen with no dishwasher also. Here's what helps me: Wipe down counter surfaces before I do anything. Use lots of paper towels & tin foil. Have a designated (top) shelf in the fridge, and a cupboard for my own for gluten-free food. Use a clean dish rag each time I do dishes. All best... -
Of course not - isn't that the way it works? I only wore it for 24 hours because the symptoms were so frequent. My mom has A-Fib & yes, it is hard to catch sometimes.
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I've had several EKG's since 1997 or so... My last two were abnormally normal for me. Meaning, the one I had in 2007 was abnormal - that prompted the stress test. The one that the hospital did was pretty much the same as the one from 4 years earlier (both abnormal, but no sig. change). I was told that I "may have" some heart tissue damage in the ventricular...
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Yes, I had it checked a couple months ago (August maybe?) - all they said was that my thyroid function is in the normal range.
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Hey Folks, Since September I've had a change in condition - not sure if it is anxiety or heart related. Here's the lowdown: - episodes of sudden & extreme fatigue - shortness of breath - lump in the throat & choking feeling (sometimes - not every episode) - racing, pounding heart which I can feel way down in my descending aorta. - sometimes...
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I take MiraLax twice daily - that's the non generic polyethylene glycol. Been doing this since my hospitalization two months ago - so far it has worked. I also drink at least 4 liters of water each day & try to avoid processed foods.
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What did the bra say to the hat?..... "You go on ahead, I'll give these two a lift!" Hope someone gets a smile outta that
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So true! I'll ask my primary care Doc. when I see her next month. Funny, I always thought I was just a big time klutz!
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Yes, I have muscle fatigue/weakness/pain/cramping that comes and goes... I have learned from my Chiropractor that that particular phenomenon - at least for me - is due to my Ulnar nerve "firing" all willy-nilly. That nerve innervates the muscles of the forearm and the last two fingers, which is exactly where my issues are. My Chiro has adjusted my spine...
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Doc said that Fibromyalgia is a catch all phrase for any kind of nerve impulse mis-fire or disconnect... which is why it can present in different ways. Chiro Doc also said that - contrary to what older research found - neurons CAN regenerate with treatment. I should mention that he has over 25 years of both Nero and Chiro experience. Tests for "Fibromyalgia...
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This new chiro seems so knowledgeable - he is also thorough and seriously listens to me. It is so refreshing. I'll be sure to ask about "tests" for Fibromyalgia... I'll take notes or something so I don't forget it all.
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I saw a chiropractor today who specializes in autoimmune disorders. He said that I have multiple neuro issues due to too many years of undiagnosed Celiac. Fibromyalgia is a definite possibility. I will see him again on Friday & share all I learn from him about all our bone & nerve pain here... I still hurt but at least I found someone who has...
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May I ask what the "cheap imitation version" of Xanax was? I'm on Alprazolam - generic form of Xanax. Please tell me this doesn't contain gluten!!! How do I find out?
