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Chopper

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Chopper

  1. Chopper
    Well thought out words, well seasoned with salt. Thank you very much! The presentation of the posters here to portray me as simply being wrong or reacting psychosomatically did NOT sit well with me. I emailed my question to six celiac centers and/or physicians. The response I'm receiving does NOT agree with how the posters here have presented the...
  2. Chopper
    Thank you. Well stated!
  3. Chopper
    Taking into consideration every angle I can think of over the last few months, this is quite difficult to reconcile.
  4. Chopper
    A typical reaction to gluten, I think, is shared by most celiacs. In short: flu-like sickness followed by complete emptying of GI tract followed by lethargy. Do the posters here believe that extreme reaction can be caused "psychosomatically"? I can assuredly vouch that my level of being gluten free is extreme. I do not share utensils, cooking equipment...
  5. Chopper
    I appreciate that. I'm just having a hard time accepting that I'm psycho.
  6. Chopper
    I would like to suggest that posters and readers alike consider the difference between vapors from boiling grains versus distillation. In a complete distillation process gluten proteins are completely removed as I'm sure most are well aware. However, when grains are boiling in water, gluten particles do rise with vapor. When my husband is boiling grains...
  7. Chopper
    Interesting how all of your strong opinions label my reactions as psychological. Actually, it's quite insulting. This brings back memories when some friends and family thought if I simply ate more gluten my body would get used to it because there's no such thing as celiac.
  8. Chopper
    Thank you all for your replies. I truly did not anticipate being sick from those incidents - I actually anticipated nothing at all - so it was not psychosomatic. It was several times of truly not being able to figure out why I had gotten ill that lead me to the proper conclusion. For those of you not aware, the syrup used in beer making is highly condensed...
  9. Chopper
    My husband took up a new hobby, brewing beer. After he made it two different times, the next day I got sick. (I'm always sick the next day when I'm glutened.) He didn't believe me when I blamed it on the boiling brew. I volunteered to help at the fire department for their chicken bbq, and I was working in the kitchen with the boiling macaroni. Sure enough...
  10. Chopper
    Thanks for your reply. What you said makes sense. I've done so much reading online and I can't believe this is one thing that I haven't read about. I think it should be discussed more because the doctor and I were wondering if I had refractory celiac. I now have the peace of mind that my villi have healed and the GI trouble I'm having is probably from...
  11. Chopper
    I thought it might be helpful to share with others how after I went gluten free 1 1/2 years ago, my 'stomach' symptoms worsened. I felt full so quickly, would get painful attacks that would lead to vomiting, and I couldn't handle foods with much fat nor fibrous foods. 1 year ago I was diagnosed with gastroparesis. 10 months ago I was diagnosed with Hashimoto...
  12. Chopper
    That's me too! Either the celiac or the Hashimoto's has given me gastroparesis which is also unpleasant, but can be managed with diet and such. I bake every week. Here's my all purpose flour: 1 cup tapioca flour/starch 3/4 cup sweet rice flour (or more potato/tapioca) 1 1/2 cup sorghum 1 cup millet 1/2 c brown rice flour (or more sorghum/millet...
  13. Chopper
    Diane, only once did I intentionally eat a small pretzel to see what would happen and that was after my biopsy came back that my villi were healed. I wanted to know what to expect when I was accidentally glutened. My sister in law accidentally glutened me 2 weeks ago and I'm still feeling the effects. Marilyn, thank you for the illustration, it makes...
  14. Chopper
    Your post made me laugh. I went through a lot in 2011 with 3 different auto-immune diseases and I felt like I could diagnose anyone! Especially after watching every single episode of Mystery Diagnosis! LOL! Chopper
  15. Chopper
    Was that your complete test? If so, from my understanding, milk contains both lactose and casein, so a more accurate test is to consume something with only casein and no lactose, such as hard cheeses like swiss and cheddar. If a cheese nutrition label says "zero" sugars, that means there are no lactose sugars. I wondered the same thing, and still do...
  16. Chopper
    In August 2010 I was finally diagnosed with a failing gallbladder after 1 1/2 years, and was also diagnosed with celiac during the testing series. I never thought I had symptoms except my stomach always felt full. Now, nearly 1 1/2 years later, when I have gluten, starting with the following morning, I have GI troubles for about 1-2 weeks. Anyone else...
  17. Chopper
    I was wondering the SAME thing! I've been craving rice krispies treats and can't wait to make them! But I haven't seen them yet in my neck of the woods.
  18. Chopper
    I take the pill form, but there's liquid too.
  19. Chopper
    Wow, 80%! That's high! I lost 5 pounds immediately because I was afraid to eat! I do know some chubby celiacs though! It takes a lot of work, especially at first, to prepare things from scratch and a whole new way of life, so I can see how it could be easier for someone to eat a whole bag of chips instead of taking a ton of time to think "what's for supper...
  20. Chopper
    Sorry to hear your having trouble! With me, celiac was a silent disease, and still is when I'm accidentally glutened. It was discovered when my gallbladder went bad and a GI doctor did an endoscopy as part of the testing/diagnosis process. There is now way to know how well you're doing without another small intestine biopsy. Be sure to follow a gluten...
  21. Chopper
    Hello, I was diagnosed celiac in August, as well as gastroparesis. I have eliminated all gluten, or I thought so. On occasion when eating out I would accidentally get glutened. I had another endoscopy and biopsy in January and he said I had great improvement, but there was still inflammation. Just last week after reading in this forum, I discovered my...
  22. Chopper
    Did anyone hear the news?! Kelloggs Rice Krispies will be gluten free and made with brown rice starting in June! Yay! Can't wait to make some rice krispies treats!
  23. Chopper
    Sorry, just saw your question! I prepare most everything from scratch using gluten-free flours, like muffins and bread. There are a few gluten-free prepackaged items I buy, like Riceworks crackers and a couple other snacks. I avoid dairy except an occasional indulgence in a hard cheese. How do you 'test' your food? I just got the diagnosis this week...
  24. Chopper
    I was just diagnosed yesterday with autoimmune hypothyroidism and limited scleroderma. In my online searches it seems these commonly occur in celiacs. My gallbladder was my first symptom as well, followed by gastroparesis and gastritis. I didn't know until yesterday all this could be connected. I think there needs to be even more awareness in this area...
  25. Chopper
    Thank you all for your replies. If it turns out I don't have another AI disease causing it, I'll take comfort in knowing there are others with celiac and GP! Thank you!
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