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MitziG

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Everything posted by MitziG

  1. MitziG
    Yes, if you have been gluten-free more than a week or two, you run a big risk of a false negative, so if you are doing blood tests, start eating gluten again at once! Depending on how long you were gluten-free, you may need to wait a few months before testing. Sorry!
  2. MitziG
    Yes. Even amongst dx celiacs the reaction can vary greatly. There were times shortly after my dx when I cheated- and nothing happened. Now that I have been gluten-free over a year I have an immediate and definite reaction to small amounts of cc, but initially, it was very unpredictable and had I not had the dx, I would not have pinpointed gluten as the culprit...
  3. MitziG
    Yes, you reAlly do. By being 2 weeks gluten-free you run the risk of your antibodies already dropping, so if you are going to be tested, start eating it immediately. I don't think you would need a 90 day challenge though, since you haven't been gluten-free too long. Just start eating it and schedule the tests. Be sure it is a full panel. And be prepared...
  4. MitziG
    Yes, the levels would be above the given ranges if they were positive. Ufortunately, the only test for gluten intolerance is if eating it makes you feel sick. It doesn't sound like they did a complete celiac panel on you however, as there are 6 tests in the panel. Depending on which 3 they did though, a negative on all 3 would make it unlikely that you...
  5. MitziG
    She apparently has significant damage then, and I would guess, like my son, you aren't going to see big results for awhile yet. The healing has to happen first! Don't be discouraged, it will happen!
  6. MitziG
    Those actually aren't bad numbers. Your TTG has gone way down...it can take over a year to get the numbers all the way down when it was as high as yours. As for EMA, I am not certain, but I believe that if you have celiac, EMA stays positive. Again, not certain on that. The big question is, how do you FEEL? If you are feeling better then you ARE healing-...
  7. MitziG
    It was very, very gradual for my son. When he was dx with celiac, I thought going gluten-free would make an immediate difference, but it didn't. But, a year and a half later he is a different little boy. He is happier, better behaved and his sensory processing disorder is greatly improved. The tummy aches are few now, and no longer severe. About 7-8 months...
  8. MitziG
    It was about 6 wks before there was a noticeable difference I think. Been about 3 months now and they have very few bumps left at all. The KP didn't get worse at all, but my daughter's eczema flared up really bad when she quit dairy, so it is certainly possible that your kp could worsen a bit at first.
  9. MitziG
    It sounds like your options for getting a celiac-knowledgeable dr in Turkey are slim. Can you get a copy of the bloodwork that was done and post it here? Celiac isn't an allergy to gluten, so if they did "allergy" tests that is not something that would show celiac. Anyway,m if you posts the tests so know what has been done, we can give you better advice about...
  10. MitziG
    With inflammation showing up after a short return to gluten, that seems to point to celiac, as does the low IGA and vit D. Low IGA is a red flag. Personally, I wouldn't make myself sick just to get the dx. Your dr sounds fairly reasonable, and I would just call yourself a celiac and go with it. I would however get any immediate family tested before THEY try...
  11. MitziG
    Usually plain ice cream bars are fine, 9avoid the crunchy coated ones) most popsicle type things are safe, as are every kind of sno-kone I have found. Cool tubes (orange sherbet push-ups) are gluten free as well. Yes, it is all junk food...but for me, the ice cream truck and summertime are just too much fun to avoid altogether!
  12. MitziG
    It takes some time to get used to a completely new way of eating. I think most of us eventually reached that point where we just about gave up eating because we were relying on a few gluten-free processed foods. (You can only eat Cheetos and Hershey Bars so many days in a row!) Eventually it sinks in that this is your LIFE now...not a temporary thing,...
  13. MitziG
    HALF of a baby donut?!! That is just enough to drive me insane! But seriously, I know sugar and carbs trigger these ridiculous sugar binges in me, so generally, I avoid it altogether. Been trying to do primal/paleo...but I'm not very good at it obviously! But, moment of weakness is over with...so no need for your gigantic donut shipment, but thank you!
  14. MitziG
    Yes, it was a joke! I thought the little winking guy would clue everyone in, sorry! But yeah, I just was chuckling cuz sometimes it seems we blame everything on gluten... but yup, gluttony, not gluten, was the culprit this time. And in answer to another posters question, I ate them frozen! I picked some up on my way to work cuz I was dying for a donut...
  15. MitziG
    Bloated, stomach hurts...so clearly they are contaminated! Its not my fault they made them so delicious- and way too small. They are like...baby donuts. Really. Chocolate covered infant chew toys. Sitting like rocks in my stomach. Ugh.
  16. MitziG
    KP is very strongly connected to casein intolerance, moreso than gluten. Both kids and my hubby have it, have been gluten-free for over a year. No change in the KP until we cut out ALL milk protein. Now they have smooth armms and legs!
  17. MitziG
    In response to Tom: not really exaggerating in the sense that I was thinking the vast majority of those who have an issue with gluten will STILL test negative for celiac. Roughly 30% of celiacs will get a false negative, + there are those who are gluten intolerant who won't show up either. So, while the study you meentioned does indicate smaller quantities...
  18. MitziG
    Enterolabs is controversial at best. I would not be convinced that such a restrictive diet is necessary for you. How long have you been gluten-free? I would personally try being gluten-free and casein free for a good 6 months and then see where you are before eliminating more foods.
  19. MitziG
    If he only tested TTG IGA that is far from being accurate celiac testing. Before you start the diet, I would insist he do a FULL panel. It needs: Total IGA TTG IGG Deamidated Gluten Peptides Endomysial Antibodies Anti-Gliadin IGA and IGG
  20. MitziG
    Well, your doctor screwed up big time by having you try the diet, then testing you. If you were gluten free for even a few weeks, you would need to return to eating gluten, heavily, for a minimum of 3-4 months to even hope to have positive blood tests. This isn't unusual, few doctors no much about celiac, or how to test for it. Also, weight GAIN with celiac...
  21. MitziG
    It depends on the doctor you have, and how knowledgeable they are of celiac. Your body is making large antibodies to gluten. Whether you have intestinal damage yet is anyones guess- it may not be there yet, or the doctor may have missed it. Happens a lot. But, it is a given,if you continue eating gluten. Consider yourself a celiac now.
  22. MitziG
    Yup, reactions can be random. It happens to me and I have biopsy confirmed celiac. You know how sick you were before, don't second guess yourself now!
  23. MitziG
    Something else those ignorant doctors are discounting: the fact that every time you even accidentally ingest gluten, you are triggerring an auto-immune response. Continue doing so and one of those times you will trigger the start of another auto-immune disease, one that can NOT be controlled completely with diet. So, if you want to develop Multiple Sclerosis...
  24. MitziG

    ARCHIVED New Ally

    MitziG replied to Adalaide's topic in Coping with Celiac Disease

    Too funny! I have been after my hubs to be gluten free 100% as well, but he insisted he doesn't have a problem. But, vanity got the best of him so he went on the Primal Diet to lose weight and lo and behold, without grains he feels great, his heartburn is gone and no bloating and constipation! He told me today that maybe my "internet hoakum" isn't all internet...
  25. MitziG
    It is evil. And I think almost everybody would feel better with less of it in their diet! Hope you will soon!
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