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Mummyto3

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Everything posted by Mummyto3

  1. Mummyto3
    My hubby and I were tall and skinny as kids too. So we didn't think much to her height or being skinny.
  2. Mummyto3
    When my daughters bloods came back high last month, we were told to keep her on gluten until she's had the biopsy. That was done yesterday. She will go gluten free from next weeek or this weekend, I want her to just have what she wants before starting her new lifestyle. In the UK, if you get pos results with the biopsy you get food on perscription, so...
  3. Mummyto3
    Our dr prescribed EMLA cream for my boys. I put it on them this morning for their blood test today. They didn't even flinch when blood was drawn. They did really well, so I would highly recommend it.
  4. Mummyto3
    Me too, she's always ill on an evening and now its even worse because her throat is sore and swollen. She can't eat and won't drink much at all. Will be keeping a close eye on her. Looks like they managed to cut her uvula as there's a red line on it which is new. They didn't mention it so I assume it's ok and was done either during biopsy or just after...
  5. Mummyto3
    Intial results are, her villi were shortened and dr said that he'd bet money on my daughter having celiac disease. Results on Thurs afternoon. In a letter he gave me it shows mild scalloping of duodenal mucosa folds, normal apprearance of stomach and duodenam. Anyone else have these sorts of results? I'm trying to find out more on the more medical...
  6. Mummyto3
    Just wondering whether anyones kids are similar to mine. She's very tall, 4ft 6in, weight is 29kgs and coeliac. And although she's of a normal weight she is very very skinny. She looks underweight. Her legs and arms are like sticks and of course she has the trademark pot belly due to the illness. I know I've read a lot about kids being short and underweight...
  7. Mummyto3
    Do they have any other problems relating to coeliacs? My daughter has it but she's very tall and although of normal weight, she's very skinny. She looks underweight in her legs and arms. They're like sticks!
  8. Mummyto3
    Has he seen a dr about depression? This can be a reason for feeling down all the time, tired and irritable etc.
  9. Mummyto3
    Lol They've been booked in for Wed morning. Mine and hubby tested neg, but obviously that doesn't mean the boys will. Fingers crossed they do. I assume they would at least have the gene too...
  10. Mummyto3
    I spoke to a dr today and she said mine and hubbys test were neg but it doesn't exclude that we don't have coeliac. My levels were 0.3 and his just over 1. She said to ask more about it when my daughter has her biopsy tomorrow. I have the symptoms so not sure now... I don't think I'd bother with a biopsy, I may just go gluten free and see if I feel any...
  11. Mummyto3
    Its D-day tomorrow for my daughter. She's an emotional wreck this morning. Well, she's like it all the time but more so this morning. I've tried my best to calm her down and talk about whats going to happen. She asked me something I hadn't thought about, when the camera goes down into her intestine, how do they go about getting the biopsies? Does something...
  12. Mummyto3
    When my daughters blood was pos we were told to keep her on gluten until the biopsy. Perhaps thats why you biopsy was neg because you were already gluten free and also your dr only took samples from one area, so damaged areas were missed.
  13. Mummyto3
    I'm no expert, but from all the research I've done, I have come across this. I asked our dietician about it but she said you can't get a dairy intolerance once you go gluten free. I don't accept this. I've posted this from Coeliac UK as I wanted you to have the right info rather than just from me x What is lactose intolerance and what are the...
  14. Mummyto3
    Yes, the bread! lol That's probably going to be the hardest change. I'm constantly looking at labels and foods, I'm surprised I'm not dreaming of it! thanks for the good luck on Tues, not long now eek!
  15. Mummyto3
    It totally agree! This is what I've found with relatives and the doctors who just won't listen! Thankfully since diagnosis both sides of our families have been great and very understanding. Although they don't go what we go through with illness and behavioural issues (when gluttened), the are sympathetic to what celiac disease means to our daughter....
  16. Mummyto3
    Well the pharmacy attached does have lollipops that they love and just in case, a shop opposite
  17. Mummyto3
    I want to be able to say that too. My results are taking ages!
  18. Mummyto3
    I was after this advice as I posted lol I'm going to get my 7 and 3 yr old tested but am also worried how they'll be with the blood test.
  19. Mummyto3
    We've finally made the decision to get my boys tested for celiac disease as their sister has tested positive. They're 7 and 3 and I'm so so worried how they'll react to a blood test
  20. Mummyto3
    Hi, I'm another newbie. Been on here a month I think. My 9yr old daughter was diagnosed on 7th June, biopsy is on Tues but as her levels were very high, they're sure she'll test pos on biopsy. She has all the symptoms.
  21. Mummyto3
    is it free to create a blog? I was thinking about that myself.
  22. Mummyto3
    It's all I read about, talk about and think about. Its driving me crazy lol Since my daugher was diagnose early last month, I wanted to find out as much info about it as I can and I'm still looking. I also want to be well informed if people ask questions, like today. My hubby and I are awaiting our results and we'll be testing boys too.
  23. Mummyto3
    I assume it was in my genes for my daughter to get it, don't know if I'm right. I say it's from me because of family history of bowel problems. I rang today to check what was actually tested, thats when I found out they weren't back. I did consider asking for a copy thanks for advice x
  24. Mummyto3
    Rang drs surgery yesterday for coeliac results and was told they were 'normal'. I rang back today to find out exactly what was tested (didn't think to ask yesterday) and was told they weren't back! We'd had other blood tests done at same time, which I mentioned and they were normal, which I was told on Monday/Tues. I was confused for a normal result as...
  25. Mummyto3
    This is something I've been thinking about constantly. My 9yr old was diagnosed last month, just waiting for biopsy. My hubby and I were tested via blood test, which came back 'normal'. We haven't tested our younger two. At the moment, I'm thinking we'll probably be mostly gluten free and will put on bright stickers for my daughter for things she can...
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