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Latest Celiac Disease News & Research:
Everything posted by gf4life
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ARCHIVED My Doctor Wants To Put Me On Medrol, Help!
gf4life replied to meganlatebird's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You could go back on the diet and see if it helps. You could always try the medication later if the RA symptoms don't go away on the diet. Then you wouldn't necessarily have inflammation in the intestines, since you wouldn't be eating gluten. Don't take the medication if you feel it will do more harm than good. It isn't like you will die if you don't... -
ARCHIVED Just Have To Vent....
gf4life replied to Hennessey's topic in Parents, Friends and Loved Ones of Celiacs
Been there... Two incidents that come to mind are: My husband is Filipino, went to the Filipino market and got some wheat based treats. Then as he is standing in the kitchen eating it he offers a bite to my 4 year old daughter who just started the diet and didn't know better. She takes a bite just as I am walking into the room. Boy did I let... -
ARCHIVED New Certification For Gf Food Processing
gf4life replied to daddyez's topic in Gluten-Free Foods, Products, Shopping & Medications
The website is Open Original Shared Link If you go there and click on the contact link, you should be able to show as much support as you want! I hope a lot of companies utilise their services. It would be wonderful. It says in the FAQs section that in order to be marked gluten-free it has to be tested at less than 10 ppm. I think even... -
ARCHIVED Cross Contamination Possibility?
gf4life replied to Mjohnson73's topic in Coping with Celiac Disease
Vincent, You are certainly entitled to your opinion and I'm sure you are healthier by skipping the fast food, but those of us who choose to eat it are also entitled to eat it and share our experiences. I understand how frustrated you are, but I have never felt sick after eating McD's fries. We don't go there often, but it is nice to have a quick easy... -
ARCHIVED Help For A Friend
gf4life replied to CH16's topic in Parents, Friends and Loved Ones of Celiacs
It would be helpful to know what her diet consists of now, so we don't suggest too many things that she is already eating. Is she mainly just needing help with eating more calories, and a wider variety of foods? Or does she think she might be getting some gluten in her diet accidentally and needing help to find the source? I am glad that she is... -
If you are looking for a replacement for Yoshida's then you should try Greta's Marinades. She only makes two and they are both gluten free. The Sesame-Soy is wonderful and similar to Yoshida's. Open Original Shared Link I get it at SaveMart here in central California, but if you can't find it locally you can order it online. It is worth the cost...
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ARCHIVED Discussing Endoscopic Procedure With 7 Year Old
gf4life replied to jsmasudek's topic in Parents, Friends and Loved Ones of Celiacs
It probably wouldn't be a bad thing to let your son know that they will be puting a thin plastic tube down his throat with a tiny camera in it to take pictures. That shouldn't scare him, and he might even think it is cool. My son did! If it were me I would let him know that it won't hurt, he can still breathe and swallow while the tube is in his throat... -
ARCHIVED Temper, Temper
gf4life replied to abqrock's topic in Parents, Friends and Loved Ones of Celiacs
My oldest son has anger issues when he gets glutened. He also has severe emotions that swing from extremely angry to crying all the time. He is a wonderful kid when he is gluten free. My son didn't start getting so angry (and even violent outbursts) until he was about 7 and I handled it by sending him to his room. A time out wouldn't work, he had to be... -
ARCHIVED Mainstream Food List
gf4life replied to Rachel--24's topic in Gluten-Free Foods, Products, Shopping & Medications
Open Original Shared Link The link above is the best, but make sure you still read the labels. Ingredients change often and some of the list might not still be accurate. I use it more as a guide to point me in the right direction towards products that are most likely safe. Then I read the labels. God bless, Mariann -
ARCHIVED Cross Contamination Possibility?
gf4life replied to Mjohnson73's topic in Coping with Celiac Disease
Open Original Shared Link Here is a link to the McDonald's gluten free list. The pickles are gluten free. It could be that the fries are not cooked in a dedicated fryer, or that the burger was contaminated. I only ever get the double cheese burger, so I am not familiar with the quarter pounder. Does it have a special sauce or just ketchup... -
ARCHIVED Gluten Intolerance...
gf4life replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't want to freak anyone out here, but are you sure that Midol is gluten-free?? I tried to check and never got a response from the company. It isn't on ANY gluten-free medication list I have ever seen and when I went gluten-free two years ago everyone seemsed to think it wasn't gluten-free. So for anyone who does take Midol, please double check that... -
ARCHIVED New Certification For Gf Food Processing
gf4life replied to daddyez's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree Tiffany. It would be very helpful. I really liked having the Kosher symbols on foods when we were dairy free, and to have a symbol on foods for gluten-free would also be great. -
ARCHIVED Dh Wants To Let Ds "cheat"
gf4life replied to redheadheather's topic in Parents, Friends and Loved Ones of Celiacs
Does your son get sick with obvious symptoms when he eats gluten? If he does, then this alone should show your husband that your son should not cheat, or he will be sick for at least a few days. It just isn't worth it. It is not fair to him to allow him to cheat anyhow. You know it is hurting his body and as his parents it is your job to help him to... -
ARCHIVED Please Help Me >_<
gf4life replied to tama-chan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The 2-5 biopsies is really only small tissue samples taken from the inside lining of the intestines. Ideally they should take at least 5 from different areas and as far down as they can go with the scope. Otherwise they risk missing damaged spots, since in most people the damage from gluten is patchy and not all over the entire intestines. You should... -
I haven't seen any in the stores. Online all I have found are the acrylic stands with slots to slice the bread evenly, but they are not adjustable for different levels of thickness or the industrial sized bread slicers for a few thousand dollars (figured that wasn't what you were looking for though!) God bless, Mariann
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Rachel, You may not have the Celiac gene marker, but you might have gluten intolerance genes. When doctors run the gene test for Celiac they only check for DQ2 & DQ8. At Enterolab they also test for DQ1 and DQ3 (other subtypes other than the 8) because those have been found to cause gluten intolerance, but are not at this time considered to be...
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Have you checked into having the gene testing done by Enterolab here in the US? I believe they ship to Canada, and the gene test is a cheek swab, which is dried before you package it and then you just mail it back to the lab. It wouldn't effect it if it took longer to ship. It costs about $150 per test. Open Original Shared Link You can view the order...
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ARCHIVED Outgrowing Celiac
gf4life replied to lipreader's topic in Parents, Friends and Loved Ones of Celiacs
I have one person I have encountered multiple times who keeps telling me about how her son had Celaic when he was a child, but he outgrew it. I have tried to tell her differently, but she has no intention of hearing what I have to say. As far as she is concerned her son is fine now and won't have to deal with that difficult diet again! The worst part about... -
ARCHIVED I Might Look Like A Vampire
gf4life replied to otnemem's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Keep up the good work of staying as gluten free as possible and keep taking those vitamins. But it will take longer than a few weeks to renew your health. Everyone is different and heals at different rates, but it is generally recognised that at least 6 months is expected to fix a lot of the damage. Some people need over a year to heal completely and start... -
I have had hair loss off and on since I hit puberty. I still have a completely bald spot on my scalp from hair loss at 13. Despite this I had a thick head of hair until I was about 25 and them I started loosing so much hair that I left a trail of hair everywhere I went, and the tub was FULL of hair floating in the water so bad I had to strain the hair...
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ARCHIVED Several Items
gf4life replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
VanCamps Pork and Beans are supposed to be gluten free. If you add your own "weanies" and use a gluten-free hot dog, then it is pretty much the same dish. I don't know if the actual Beanie Weanies are gluten-free, but should list ingredients on the label. It is a ConAgra brand and they say they clearly list the gluten grains ont heir labels. I do not... -
ARCHIVED More Questions For The Experts!
gf4life replied to JLK's topic in Coping with Celiac Disease
Hi Judi, I was on the BTD when I found out about gluten. I stopped the diet since i wanted to pursue testing and couldn't do it while on a low gluten diet. Once I was able to be tested and started the gluten-free diet, I wasn't able to follow the type A diet without feeling like I couldn't have ANYTHING, so I gave up. I did feel very good while... -
ARCHIVED Enterolab Results...
gf4life replied to Rachel--24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is true, but what are you going to do with all that pasta? And there is a slight risk of contamination from the outside of the cheese packet, since it is sitting in there with the pasta for who knows how long! Some people have found the Kraft cheese powder in a can. If you can find that it would work just the same. I personally don't like the... -
ARCHIVED Enterolab Results...
gf4life replied to Rachel--24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Another book I highly recommend is Wheat Free, Worry Free by Danna Korn. Both this and Dangerous Grains are only $10.17 each at amazon .com (I just checked ) And for cookbooks I recommend the Incredible Edible Gluten Free Food for Kids by Sheri Sanderson. This is not just for kids, but easy to make, tasty recipes that are also kid friendly. This... -
ARCHIVED Enterolab Results...
gf4life replied to Rachel--24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As far as I can tell, and from my own experience, YES. I also highly recommend Dangerous Grains. I buy most books from amazon .com, since I don't have a "local" bookstore and I like that I get free shipping (on orders over $25.00). Their selection of Celiac/gluten intolerance/gluten free lifestyle books and cookbooks is great. God bless, Mariann