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Latest Celiac Disease News & Research:
Everything posted by gf4life
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ARCHIVED A Word About Neg Biopseis...
gf4life replied to VydorScope's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I did. And my next one was only slightly better. She at least did the biopsy and took samples, but she was determined NOT to find Celiac. She (the new Doc) still thinks IBS is my problem. She won't diagnose celiac disease unless there is complete damage to the intestines and no villi left. I won't go back to her either. After the problems I am having... -
ARCHIVED Gluten-free
gf4life replied to Nevadan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that one of the reasons people "suddenly" discover that they have other health issues after they go gluten-free is that the symptoms of their gluten reactions were masking the symptoms of their other health issues. Once you eliminate the gluten and your body is healing, then you start to notice the other health issues. It doesn't mean that going... -
I am female. My son is another male on this site. His name is Ben and he goes by the user name Teku.
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I second the cornmeal. I'm not a big fried fish eater, but I WILL eat it this way! Some of the other gluten-free flours get sort of gooey when fried and that won't work well with fish. the cornmeal coating gets nice and crispy. God bless, Mariann
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ARCHIVED Excedrin Brand
gf4life replied to ShortStuff2309's topic in Gluten-Free Foods, Products, Shopping & Medications
Anyone know about Excedrine Tension Headache?? I have e-mailed the company many times and NEVER get a response back. Maybe if I called I might have better luck. I just can't tell if I am getting a reaction to it or not. I usually do have some tummy discomfort, but it could have been something else I ate. Like yesterday I took some of the Excedrin Tension... -
ARCHIVED Reactions To Distilled Drinks/vinegar?
gf4life replied to anerissara's topic in Coping with Celiac Disease
Kate, I am interested in the vinegar/yeast connection. I am highly suspicious that I am having problems due to yeast, and I have noticed lately that vinegar in larger amounts bothers me. It is not a gluten reaction, just a lot of bloating and terrible gas. I avoid yeast breads and anything that obviously gives me problems, but I might need to take more... -
ARCHIVED A Word About Neg Biopseis...
gf4life replied to VydorScope's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I know! I even took in documentation of overweight Celiac being quite common (in the form of medical journal articles) and he blew me off. In fact other than that first visit and the endoscopy (in which he didn't even take one tissue sample ) I never saw the doctor again. I always saw the physicians assistant after that. I stopped going to that... -
ARCHIVED A Word About Neg Biopseis...
gf4life replied to VydorScope's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Vincent, I agree with your statistical analysis of the endoscopy. Statistically you are going to get a false negative more often than a true negative or a positive. I am one of those who's doctor only took 3 samples in the duodenum and of course it came back negative. There is a way to look at the tissue sample on a cellular level to see if the intraepithelial... -
ARCHIVED New Poster To The Board
gf4life replied to melly's topic in Introduce Yourself / Share Stuff
I LOVE angel food cake! I just made one the other day for my kids and I to have at two b-day parties we went to this past weekend. It was so yummy. But I have a problem with Carrie's recipe. It says that it serves 16. Not at my house. My kids know better than to leave much left the day I make it, or I might eat it all before the next morning! It... -
ARCHIVED Constipation
gf4life replied to BamBam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
To me it isn't about how often you go, but more about how hard (in texture) and how difficult to pass. I also get cramping pain when I have constipation because of the difficulty of the whole process. Not fun. But sometimes I can get constipated even when I go everyday, and I have known people who go every few days and are NOT constipated... I knwo... -
ARCHIVED Enterolab Results - Comment?
gf4life replied to Nevadan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dr. Fine is the only one who tests for the gluten intolerance genes as far as I know. The other labs only check for the 2 known Celiac genes (DQ2 & DQ8). In my signature you can see which ones my family has and my boys would have come back negative for the genes at any other lab. I am thankful that he is so far advanced in the genetic aspect of gluten... -
ARCHIVED Tortillas
gf4life replied to Kasey'sMom's topic in Gluten-Free Foods, Products, Shopping & Medications
I must be missing something. I went top foodsaver.com and did not find the Grand Uno Flatbread Maker. I even tried to search for it using each individual word and such, but no luck... Any suggestions? God bless, Mariann -
Carrie, at the bottom of the emoticon box there is a Show All option. Click on that and it will open up the whole box in a separate window. God bless, Mariann
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Sorry, I forgot to log my son out before I posted. Oh well, I'll get used to sharing the computer with him. He is really interested in communicating with other Celiacs. God bless, Mariann
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ARCHIVED Please Help Me Understand The Difference
gf4life replied to aidansmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Okay, I hope I don't cause more confusion here, but there are the two main Celiac genes (DQ2 & DQ8) but there are also some lesser genes that can cause gluten intolerance. Your child was most likely NOT tested for these. There may come a day where these are all seen as varying degrees of the same disease. Then there is also the fact that you could... -
Michelle, The bars I mentioned above (the ANDI bars and the Gluten Solutions/Aunt Candace bars found at the Gluten Solutions website) are all dairy free as well. God bless, Mariann
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ARCHIVED Yukky Question
gf4life replied to Cookie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
John, I completely agree! Sorry I misunderstood about the encounter with the woman...Oh well, next time. It probably caught you completely off guard. Next time you'll be ready. God bless, Mariann -
ARCHIVED Yukky Question
gf4life replied to Cookie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
John, Do you mean that you accidently ate gluten? Is that what you mean by "completely messed it up"? If so, that is normal. We all try to be 100% gluten-free, but accidents happen... I had a feeling that you might be new on the diet. If there was many years of damage then it can take more than a couple months to be able to digest everything. I would... -
I don't know if it is related to celiac disease or not, but I have had periods of boils before, as have 2 of my children and my husband. I don't know why it happens. The doctor keeps telling me that the bacteria is naturally found on everybodys skin and sometimes it just happens. Last November I had gone to the ER and came away with a staph infection...
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ARCHIVED Yukky Question
gf4life replied to Cookie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with the others here that what your eating could be hard to digest. Can I ask how long you have been gluten free?? Sometimes when you are healing it is best to eat easy to digest things. I mean, honestly, what is the point of even eating if the food just passes through you whole! I used to have this happen to me with nuts and seeds, but it... -
ARCHIVED Dr. Prager's
gf4life replied to Kasey'sMom's topic in Gluten-Free Foods, Products, Shopping & Medications
No problem. You probably had trouble finding it due to the misspelling of the name, but when I searched in my browser it noticed the wrong spelling and asked if I meant Dr. Praeger's... Anyhow, I wouldn't be able to eat them, even if I did eat oats, due to the soybeans in them...I'm allergic and I don't like itching severely. Also that last time I... -
ARCHIVED Tortillas
gf4life replied to Kasey'sMom's topic in Gluten-Free Foods, Products, Shopping & Medications
I've never noticed that Mission tortillas say gluten free on the bag! I don't buy them because they are made with guar gum (I believe) and I cannot digest guar gum very well. I don't recall the brand, but I found some that do not contain gluten or guar gum and that is what I use with no problems. I'm glad that Mission says gluten free. That will help... -
ARCHIVED Enterolab
gf4life replied to artlili's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I personally was gluten free before my children. I spent a few years trying to get the proper testing for myself through conventional means, but ended up going on and off the diet for testing (which at that point I did not know it would mess up my results). After testing negative for everything, but knowing that I felt better on the gluten-free diet, I... -
Here are a few topics regarding doctors in New York. Hopefully these can help you find a good doctor. I am in California, so I have no personal experience with any of them. Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link God bless, Mariann
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I know how frustrating it can be. We ate at a restaurant called A.J. Spurs on the coast in Grover Beach, California the other day. The kids literally ended up with just a 5 oz steak on their plates, and split a side of baked potato (which was big enogh to feed us all!). They would not give them veggies instead of the salad that came with the meal. I had...