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gf4life

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Everything posted by gf4life

  1. gf4life
    Hi Beth, Welcome to the board. You could just be taking a while to heal, or you could be getting a fair bit of gluten in accidently. If you post a sample of what you usually eat maybe we could try to pin down any culprits. You wouldn't believe all the things they put gluten in! If we don't find any foods (or medications) in your daily diet, then...
  2. gf4life
    Either way, if you are gluten sensitive/intolerant or early celiac, any form of gluten grain is going to cause damage in your intestines, whether or not you have pain or other symptoms. You should probably give up all the gluten pastas. I like the brown rice pastas by Tinkyada. They have the best texture. God bless, Mariann
  3. gf4life
    Here is what I have found, but if it is not correct, then someone please correct me. There is a difference between lactose (milk sugar) intolerance and casein (milk protein) intolerance. I have never heard of being specifically intolerant to whey, but whey contains both lactose and casein, so an intolerance to either of the others would cause a reaction...
  4. gf4life
    Hi Heather, Many licorice candy products contain wheat, but natural licorice root is gluten-free. You can get gluten-free licorice candy and the DGL supplements are good for aiding digestion, but certainly don't taste much like licorice! Read every label if you do try to get some licorice. Running Rabbit brand makes black cherry, raspberry and black...
  5. gf4life
    Hi Ostap, A gluten free diet is quite easily digestible, and so by feeding this to a transplant patient (as well as cancer patients) it allows the body to focus more on healing the body and accepting the bone marrow transplant, by freeing up the excess effort the body would normally have to spend on digestion. You can read more about this process...
  6. gf4life
    Your symptoms do not have to be severe for a biopsy to be positive, but you do need to be on gluten. Are you currently eating gluten-free or have you stayed on gluten for the biopsy?? The biopsy may not accurately show what is going on if you have already been eating gluten-free. My symptoms (before gluten-free diet) were off and on with some daily...
  7. gf4life
    Hi YankeeDB, Anyone who tests negative would not bother to post at a Celiac message board. There are some people here(or at least on the old board) that have relatives who have tested negative. Obviously they are going to have a high number of positives since the people paying for testing are generally very symptomatic, and will have a higher rate...
  8. gf4life
    I got this email from another support group I belong to and thought I would pass it on. Boy am I looking forward to getting the new labeling law passed!! Study: Wheat-Free Foods May Contain Wheat As Much as 20% of Wheat-Free Foods Contain Detectable Amount of Wheat Proteins By Melissa Schorr WebMD Medical News Reviewed By Brunilda Nazario...
  9. gf4life
    It may take up to a week or two for symptoms to go away and be obvious when a food is reintroduced. I am casein intolerant (so no dairy of any form for me) and when I have a dairy accident I suffer for quite a while (up to a week with bloating, gas and diarrhea). Judy is right about the tomatoes, they can be very irritating, also the OJ. I would skip acidic...
  10. gf4life
    I did read somewhere that smoking can mask the symptoms of Celiac in some people and they don't realise that they have it until after they quit, or the symptoms get so bad they can't help but notice them. I've never heard it put quite they way your doctor did, to say that it "protects against Celiac". That's interesting. God bless, Mariann
  11. gf4life

    ARCHIVED Leaving

    gf4life replied to a topic in Board/Forum Technical Help

    I agree with this. Most of the doctors that I have had problems with are gastro doctors who didn't think I could possibly be Celiac since I did not fit the symptoms (that they had learned in medical school) exactly, or I wasn't exactly like other Celiac patients of theirs. They did not like ME telling them what I thought about my own body! But on the...
  12. gf4life
    Hi Ruth, I heard that not all Brachs brands are gluten-free (but this is not confirmed), and since my kids don't like the taste/texture of them I just avoid all of them anyhow. God bless, Mariann
  13. gf4life
    You can usually find potato starch in the Kosher food section of most supermarkets. But you can also find it at healthfood stores and online. Potato starch is different than potato flour. The starch is what is used most often, so be careful not to get the potato flour. If it says potato starch flour then that means it is potato starch. God bless...
  14. gf4life
    Robin, Quest labs does not do the gene test. It was ordered in the lab slip for Prometheus, but it wasn't done when the blood was sent to Quest. Enterolab uses a genetics lab in Denver, CO called Laboratories at Bonfils. They are one of the top genetics labs in the country. They do blood and cheek swab testing. Kimball labs also does blood and...
  15. gf4life
    Hi Mario, Why they would make different meds for different counrties is unknown to me, but they do. And sometimes even the people who work for the companies don't realise it. I was looking into digestive enzymes a while back and found a really good brand called Udo's. They had a gluten free blend that was listed on their Canada site, but not their...
  16. gf4life
    Yes there are gluten-free cakes. The best I've tried is The Really Great Food Company Chocolate Cake Mix. This is also dairy free. But as your b-day is monday, you should probably try to make one from scratch, as you don't have time to make an online order. Do you have gluten-free flour? Rice flour and potato starch is a typical blend for gluten...
  17. gf4life
    Tiffany, Sometimes written words can be decieving. I have unintentionally offended people by some e-mails I wrote to them. Unfortunately we cannot always accurately express the feelings behind written words and they can give the wrong impression. Especially frustration, and I get a sense of frustration coming from my e-mails from Dr. Fine. I do not...
  18. gf4life
    Hi Robin, In regards to the symptoms, Yes, the diarrhea did come and go, often with constipation in between. I don't think I had had a normal stool in more than a decade. My insurance paid for the blood tests, but through Quest labs all the kids came back inconclusive (psotive IgG, negative IgA). Their doctor wanted to run the tests through Promethius...
  19. gf4life
    Are you looking for drink mixes you can take with you or a list of safe drinks you can get while on vacation??
  20. gf4life
    Sara, It sounds yummy! I don't know if I want to go through trying to make enough wrappers to feed my large family. Does anyone know of any brands of egg roll wrappers that are gluten-free? I know that the filipino lumpia wrappers are made from wheat and rice flour (and I was very disappointed to find this out, since it will make family parties...
  21. gf4life
    Kathleen, Where do you get the "flat fruit"? I would like to get the real fruit bars since they are healthier, and Costco used to sell then, but they stopped a few years back. I can usually only find them in healthfood stores now and they are very pricey. With three kids (who want to eat them everyday) I can't afford $.50(and up) each. That would...
  22. gf4life
    They should have told you ahead of time that they might be taking a biopsy. This would have been less stressful for you. I was asleep for my endoscopy, so I wouldn't have known anyhow, but the first time the doctor did not biopsy, and the second time I made sure she was going to biopsy. If your blood test was positive for antibodies and you already...
  23. gf4life
    Hi VAGuy, What are you waiting for? You can do the tests on any diet you are on. If you have diarrhea, it does not matter. They are testing the levels of antibodies in your stool and the amount of fat that would indicate malabsorbtion. You do not have to be gluten-free or dairy-free. You do not have to wait until the diarrhea subsides, or anything...
  24. gf4life
    Hi Heather, How old is your son. It can be hard on kids to switch suddenly. I know that he needs the diet, but what I did (and this may not be best for everyone) is to let the kids choose whether they finished off the food that was already in the house. (one of my boys ate a lot of it, my sickest child never touched one bit of any of it!) Explain to...
  25. gf4life
    This is the response I got from General Mills. it pretty much backs up what you said Dessa! Thank you for contacting General Mills regarding gluten in General Mills products. It is our primary goal to help our consumers determine whether or not they can include our products in their diet. To accurately accomplish this, we believe it is best...
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