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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by cornbread
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Congrats on the teacher training Tiffany - that's awesome. Do you think it's beneficial for a novice to join a class or just as good to try and work from a video or something, at your own pace? The thing about the classes I tried was that there were so many other people who were way more experienced at it, and the instructor would come around and...
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I read a summary that said the difference is that allergies are an immune reaction and intolerances are not (ie: lactose intolerance is due to a lack of the lactase enzyme, not an immune response). However... wouldn't that make gluten intolerance an allergy, rather than an intolerance? Our reaction to gluten certainly involves the immune system, and it...
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ARCHIVED Dairy Issues - Your Experience Please?
cornbread replied to Mongoose's topic in Coping with Celiac Disease
Mongoose, it sounds like casein intolerance. I found I had that a few months after going gluten free (both things give me that depressed/angry/irritable thing, amoung other symptoms). Casein is the protein in dairy and it's VERY similar structurally to gluten, about 70% of gluten intolerant people also react to casein. You can have a simple test done... -
ARCHIVED Celiac Reaction From An Allergy Test?
cornbread replied to katshow's topic in Coping with Celiac Disease
Since a skin prick test pricks your skin with a small amount of the allergen, then yes, no doubt that could cause a reaction, I would think. I mean, they are LOOKING for a reaction when they do the test, so why are they so disbelieving that they might've provoked one? Grrr, makes me mad! So sorry you had to go through that. -
My gluten/casein reactions last anywhere up to 14 days. It doesn't relate to the amount I consumed either,they just seem to get steadily worse each time. They used to last a day, then 2, then 3, then 5, then a week, then 10 days, then the last time it was a solid 2 weeks. This was from one small taste of egg that had been mistakenly fried in butter...
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You can read some excerpts here: Open Original Shared Link
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ARCHIVED Dh / Tiny Pimples With Blisters On Belly ?
cornbread replied to marciab's topic in Dermatitis Herpetiformis
Anyone heard of DH *not* itching? I get blistery flat spots whenever I get glutened, and they are often symetrical (in same place on either side of my body). They usually appear on my upper chest and on my midrift. I did have them on my inner arms once too. I usually only get 2 - 3 'pairs' at a time, but they ONLY come after a glutening and fade afterwards... -
ARCHIVED Specific Carbohydrate Diet?
cornbread replied to PreOptMegs's topic in Related Issues & Disorders
Thanks Nancy! -
ARCHIVED What Are Foods That We Would Like?
cornbread replied to Neshy's topic in Gluten-Free Foods, Products, Shopping & Medications
I have nightmares about eating something with gluten/casein etc. in and then frantically trying to spit it out, rinse my mouth, etc. Very good feeling to wake up and realise it was just a dream! -
ARCHIVED What Are Foods That We Would Like?
cornbread replied to Neshy's topic in Gluten-Free Foods, Products, Shopping & Medications
Something about reading that whilst looking at your Beavis avatar cracked me up! -
ARCHIVED Cross-reactivity?
cornbread replied to slpinsd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You can get tested for casein intolerance here: Open Original Shared Link -
ARCHIVED Vomiting With Weight Gain?
cornbread replied to jcgirl's topic in Parents, Friends and Loved Ones of Celiacs
Laurie, is the vomiting related to what he eats, ie: is it on days he has consumed gluten (wheat, etc.)? Very often the celiac blood tests are negative even when people have celiac - the catch is that it's an intestinal disorder, so the antibodies are in the intestinal tract and don't always reach the blood. The most sensitive test is a stool test. You... -
Sorry, I thought my answer was helpful! Here's a more straightforward version... This is what I have learned based on 12 months of bloating, post-gluten-free diet. Hopefully it will save you all the same: 1. Get tested for other IgA food intolerances. Open Original Shared Link is a very good place to start 2. Get tested for leaky gut. ...
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Grrrr....
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Steve, there is gluten free Challah bread! Search the forum - someone posted a recipe, plus I remember posting a link to a lady who bakes gluten-free stuff to order, and she had Challah bread. And also I think a store in NYC that sold it.
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ARCHIVED Anyone Doing Scd?
cornbread replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Julie, you can read the intro diet instructions at the SCD web site: Open Original Shared Link That way you can get started before your book arrives. It's very important to do the intro diet for at least 2 days. I didn't think it was because I didn't have D, so I just looked at the legal food list. But the legal food list was basically what I... -
I am/was in exactly the same boat (or should that be bloat ). I was reacting to almost everything I ate, bloating out and sometimes getting stomach pains too. My Dr. is sure I have a leaky gut (just to make sure, I did a test and will get the results next week). I've just started the Specific Carbohydrate Diet to get all this fixed once and for all. Within...
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ARCHIVED Specific Carbohydrate Diet?
cornbread replied to PreOptMegs's topic in Related Issues & Disorders
Hi Dani, Elaine said that she approved of flax oil (in small amounts) but not of flax seeds, because they are tough on the system. My recent posts were re: flax meal, which makes things even more confusing! So yes, flax oil is officially ok by Elaine, although it wasn't mentioned in the book itself. I think raw foods are just too much work for... -
Nessa, I had my 30th birthday 2 weeks after I got my diagnosis, and my mother ordered me a gluten-free birthday cake from these guys: Open Original Shared Link It was the BEST cake me or my husband (who is not gluten intolerant) had EVER eaten!! We couldn't get over how insanely delicious it was. It was a chocolate one. They do mail order and make...
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ARCHIVED Oh Happy Spring
cornbread replied to GlutenFreeAl's topic in Gluten-Free Foods, Products, Shopping & Medications
Judy, Claritin (and Claritin-D) have casein. I found this out after I'd been taking it for 3 months! (I'm casein intolerant). It was a low enough dose to not exactly mess me up big time, but it was keeping me from feeling as well as I could. I found that most of the over the counter anti histamines have a lactose/milk-derived base. I went to People... -
ARCHIVED Specific Carbohydrate Diet?
cornbread replied to PreOptMegs's topic in Related Issues & Disorders
Nancy, I've also had no luck with probiotics in the past (I've been on them solidly since November), but I've ordered some pure acidophilus to try with the SCD, since I can't do the yogurt. They're being shipped on ice from Kirkman Labs. I'm hoping they won't be DOA! The probiotic blend I was taking before contained some of the bifo- strains that Elaine... -
ARCHIVED Specific Carbohydrate Diet?
cornbread replied to PreOptMegs's topic in Related Issues & Disorders
I've actually not had any processed foods in months because I can't eat any grains, dairy, soy, eggs or yeast. Yes yeast, so that also means no coffee , black tea or alcohol. My diet could not have been cleaner. I have been on a strict, Paleolithic home-cooked diet (grass-fed meat, fresh wild fish, organic fruits, organic veggies, a few organic almonds... -
ARCHIVED Specific Carbohydrate Diet?
cornbread replied to PreOptMegs's topic in Related Issues & Disorders
Thanks greengirl - I just read that article. It amazes me to read over and over again how 'restrictive' people feel this (or even just the gluten-free) diet is. I pretty much ate the SCD way (minus dairy and all legumes) for 6+ months before starting the SCD, purely based on eliminating foods I felt bad eating, and it left me with a Paleolithic diet - the... -
ARCHIVED Specific Carbohydrate Diet?
cornbread replied to PreOptMegs's topic in Related Issues & Disorders
Rachel, I've found it helps me and the diet is still working, so I'm not afraid to use my personal discretion on this one thing, esp. since I had C (past tense! woo hoo! ). There's a guy who has kept his Chron's in (drug-free) remission with the SCD since 1997, and his blog (Open Original Shared Link) has multiple references to eating flax seeds.... -
ARCHIVED Specific Carbohydrate Diet?
cornbread replied to PreOptMegs's topic in Related Issues & Disorders
Erm... at 4 days in I said it appears to be working! I'm not sure how much faster it could be going! Are you getting me confused with somebody else?