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debbie-doodles

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by debbie-doodles

  1. debbie-doodles
    Hi there. Little bit of background: My daughter is now 5 and a half years old. She was diagnosed at 2 years old. I have been wondering about her diagnosis all along...thinking it might have been incorrect, but have had her gluten free for 3 and a half years. Her symptoms were poor sleep, lots of vomit, and diahrea and irritability. After lots of testing...
  2. debbie-doodles
    Hi, my daughter has been gluten free for 3 years now..but is now starting kindergarten. What is a 504? and do I need to get it so her school helps her? I'm confused! Who should I get the note from..her PCP, or her gastro? Thanks!
  3. debbie-doodles
    Last year for my daughter's birthday we took her to Disneyland and had a great experience with food options for her. Does anyone have any ideas about things/places she can eat in Universal Studios in Hollywood and at Knotts Berry Farm? Any info at all or anyone I can contact will be of great help! Thanks!!
  4. debbie-doodles
    I just noticed that about Cocoa Puffs. I'd been buying them for my daughter and when I went to pick up some more, I checked the label like normal and saw WHEAT. I was so mad I could have thrown a serious tantrum right there in the store!
  5. debbie-doodles
    okay, so even though the fries are NOT on the gluten free list on their website, they ARE gluten free if cooked in a dedicated frier? also, I had heard that the frosties were not safe because they had malt in them. Is that not true?
  6. debbie-doodles
    Wow. this sounds amazing. Does anyone know if Disneyland has the same kind of service? We are going there this winter with our 3 year old daugter with celiac.
  7. debbie-doodles
    I have a question about enterolab too....my daughter has been gluten free since april 2005. Can she still do the test and will it come back with correct results? Or has my daughter been gluten free for too long?
  8. debbie-doodles
    I'm confused about this very topic. My daughter's initial work came back negative, but then she had a biopsy and the doctor said it was positive for celiac, but it could also be other things. So we went gluten free in April 05. He rebiopsied in Dec. 05 and said that a lot of the damage in her intestines had been healed and he was almost certain she...
  9. debbie-doodles
    My daughter has been diagnosed with celiac disease. She is now 3 and a half and was diagnosed last april. First she had the test, which came back negative, but I was told that it could come back negative in many kids. So then she had a biopsy. The doctor thought she had it, so she made me put her on a gluten free diet. We did see improvement, but...
  10. debbie-doodles
    I recently called Campbells about their new line that comes in the Gold Box. I think it might be Gold Label soups? Anyways...they said that all of those were gluten free EXCEPT the one. They even have a tomato version that is gluten free. I was pretty unbelieving the first time, so I called back and got a different person and they said the same...
  11. debbie-doodles
    My daughter who has celiac is 3 and a half. I want to get her in a preschool in the fall. then next year it will be time for pre-kindergarten and then kindergarten. I am PETRIFIED to put her in a public school. here in Arizona the kindergartens have about 30-35 kids to one teacher. No way could one teacher keep a close enough eye on my daughter. I looked...
  12. debbie-doodles
    Is there a government program or something that will give us grants to help pay for gluten-free food for our kids since it is a medical necessity? Any info would help...this is getting expensive. thanks!
  13. debbie-doodles
    I had heard about an event in Phoenix, Arizona called "Make Tracks for Celiacs". I am sure they have it in other locations too. How do I find more information about this and get involved?
  14. debbie-doodles
    Jo Ann, which Outback do you go to? I'm nervous about taking my daughter and wanted to know if you've had success at the one by me (McKellips and gilbert roads) I want to try the pizza place in Scottsdale even though it is farther away because i want to see the items available at the store across the street. I am so excited to try this.
  15. debbie-doodles
    So is this due to the damage in her intestines already? Or from her intolerance to wheat? Or is there a chance that she has this instead of celiac? (still hoping I guess)
  16. debbie-doodles
    Are ALL duncan hines frostings gluten-free? Also, what about food coloring? I need to die some frosting yellow for my daughters flower bday cake. And what about colored sprinkles and sugar? I can call, but I'm getting tired of calling for everything and thought someone just might know.
  17. debbie-doodles
    How do we go about getting this done for our child? Do we request it from her ped GI doctor? What exactly are the symptoms of this problem?
  18. debbie-doodles
    Okay, so just 4 weeks ago my daughter's GI doctor took her off of her generic prilosec (she has reflux disease too) to see if she has outgrown the problem. My daughter got sick and wouldn't sleep, wouldn't eat, started throwing up and having diahrea and acting really cranky and bad. She seems really tired, but won't take naps or sleep at night. So I told...
  19. debbie-doodles
    I went to a health food store and couldn't find any that didn't have alcohol in them. My daughter never seemed to react to the kind I have from mexico. Maybe I'll keep using that. I DO have some schilling (I guess that's the brand, but it also says McCormick Co. on the bottom of the box)..so maybe I'll use that. I was more scared of the schilling brand...
  20. debbie-doodles
    That's wonderful! I live in Mesa and can't wait to let me daughter try this!
  21. debbie-doodles
    Okay, in a recipe somewhere I saw that is said to use gluten-free vanilla extract. Where do you buy that? And do other vanillas have gluten in them?? I've used a pure one from mexico in my banana bread recipe and my daughter didn't seem to react to it at all, but I want to be sure I'm doing the right thing. The only thing I can see that might be a problem...
  22. debbie-doodles
    What a wonderful idea! I even have some of the mix on my shelf and was going to make some breadsticks tonight. This is a much better idea. When you roll it out, is it really thin? Maybe someone can help me with my chebe mix. My first attempt at rolls was awful. I rolled them into little balls....maybe i made the balls too small because when...
  23. debbie-doodles
    I thought i have seen a gluten free corn muffin mix somewhere. We don't like corn muffins, so I never really paid attention to it. I think it was either the gluten free pantry (since that's where I order all of my mixes) or at a local Wild Oats store.
  24. debbie-doodles
    shirley....have you found a gluten free potato soup? I use potato soup in cooking a lot and haven't found a gluten free one yet. I used to love the cheese and broccoli potato soup that progresso has. i don't beleive that one is gluten free.
  25. debbie-doodles
    Okay, I'm a big dork, but where do you get dehydrated onions and dry mustard??
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