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UKGail

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Everything posted by UKGail

  1. UKGail
    Yes. I was at least 155 lbs and in 5 months have dropped to maybe 130 lbs. I am 5'4", and my pre-illness post-children weight was about 125 lbs, so I am not worrying about the weight loss just yet. I seem to feel symptoms very quickly and one of the earliest is nausea and loss of appetite. I will eat through this, but not as much as normal. If I've really...
  2. UKGail
    Very interesting information, thank you.
  3. UKGail
    Hi. I hope you are feeling better today after your meal. You have such a lot to deal with at the moment, I admire how you are putting your friend first when you are in equal need of support. However please do take every possible minute to rest and eat that you can squeeze out of your day. I'd bring over something for you to eat if I were a bit closer...
  4. UKGail
    Bartfull - don't give up please. You tried something very new when you were stressed and under great time pressure. Perhaps you need to be kinder to yourself and stick to the things you know can work when you are in rush so that you can have some breakfast, plus some left over as food to go for lunch? Then try the new things maybe at the end of the day...
  5. UKGail
    The only thing I would like from a gluten free restaurant is to know that the premises are completely gluten free, with straightforward fresh food prepared on site. If I was sure it was safe, then I would visit regularly if it were reasonably close, and occasionally as a treat if it was a bit further away. As the above poster says, I think the trick...
  6. UKGail
    Weluvgators - thank you for responding. I am sorry you have such a challenging situation. My reactions are not as pronounced as yours, but it seems to be in the same ball park. I guess you both have a severe wheat allergy as well as/or instead of presumed celiac? I am suspecting that this applies to me too. I am intending to try to see a celiac specialist...
  7. UKGail
    I finally started on the road to twigging to my gluten intolerance when my physio pointed out to me that having 2 frozen shoulders (one with bone loss) in as many years is not normal, and probably indicates an underlying inflammatory process. Anyway, after lots of blood tests which did indicate a high level of inflammation, but no obvious cause for it, a...
  8. UKGail
    yes, thanks Skylark. It's not wildly helpful on non-celiac gluten sensitivity, but at least it acknowledges its existence. Hopefully it might help reduce the number of GIs telling patients who have had a negative biopsy or blood test to carry on eating gluten... What still annoys me is the idea implicit in that black and white approach that one day you...
  9. UKGail
    weluvgators - wow, that is very interesting, thank you for sharing your story. The symptoms you list for your daughter mirror mine, including the hypermobile joints, but muscle cramps for me rather than restless legs. In my twenties I hardly had an uninterrupted night's sleep due to calf muscle cramps in the early hours. I'm going to give what you said...
  10. UKGail
    Hi Marilyn I'm 47. I first fell ill in my early twenties. The docs just thought it was post-viral fatigue, but the symptoms were much more extensive than simple tiredness, and were pretty much identical to what I went through last year, apart from the hives which were new. After muddling through my twenties and thirties, I started getting more severe...
  11. UKGail
    I tested negative for antibodies, and also had a negative biopsy after a gluten lite diet. That was 2 years ago, and the GI said to carry on eating as normal. I took his advice and as a consequence my health continued to decline, and I ended up seeing a rheumatologist for a suspected connective tissue condition. The rheumatologist suggested I go gluten...
  12. UKGail
    Bartfull, I am so pleased you have made a good start on your new diet. Having some vitamins made up for you seems like a good idea. Attagirl re the coffee. You need to have something you love to see you through this process! I can't imagine filling my small city freezer with half a bison (not a meat on sale in UK supermarkets). My husband grew up on...
  13. UKGail
    I have trod your path too. Of the rheumatological antibody, thyroid and celiac tests I had done last year, the only adverse findings were very high ESR, high IgM anti-cardiolipin, borderline high TSH, borderline low RBC, and a couple of other very minor funnies. The rheumatologist, who was a lupus specialist, wasn't minded to diagnose me with any autoimmune...
  14. UKGail

    ARCHIVED Pet Food

    UKGail replied to Jaxonthehuman's topic in Super Sensitive People

    Our cats have always been on a grain free food as one of them gets bloody stools if he eats any food with wheat added to it. Ironic that I realised I had a celiac cat before I understood it was my problem too! Irishheart - I have not been able to find a wheat free chicken food, relying instead on my husband to feed them. Their food however is kept in...
  15. UKGail
    Oh gosh, the advice seems a bit of a mixed bag. I wouldn't touch the wheat grass or barley either. The basic thrust of her advice, that your system is in hyperdrive, and temporarily needs a small number of very simple foods to help it calm down seems reasonable. This approach helped me when I first went gluten free, when I reacted to many foods (I...
  16. UKGail
    "Birth defects? Not likely. Screamy, colicky baby with ear infections, reflux and funky rashes? Quite likely. Don't worry that you have done permanent damage, the majority of us were un dx celiacs eating gluten thru pregnancy. But do yourself and your little one a big favor and go gluten free from here on out. You will both feel better! " Yup, that ties...
  17. UKGail
    Be careful of Trufree biscuits. Although they are a tasty treat, the couple of types I tried contained lactose powder. There is plenty of dairy free stuff in Sainsbury's to choose from though. The other major British supermarkets have similar free-from ranges, but they don't seem quite so extensive. There also seems to be Tesco superstores in the...
  18. UKGail
    Gemini - I defer to your experience on feeding up a very poorly underweight person. Sainsbury's are really good on labelling allergens, and their free from range goes the extra mile, with the main allergens being avoided prominently displayed on the front of the product (eg, wheat free, gluten free, dairy free). I attach a link to their website...
  19. UKGail
    You don't say if you are gluten free or not, and if you are, how long it has been. Some see an improvement, but not neccessarily a resolution, to their symptoms after going gluten free.
  20. UKGail
    Its also the starting place for pilates. My transversus stopped working properly after I hurt my neck and back in a car accident. To recover I did rehab work with qualified pilates trainer to rebuild my core muscles (after spending lots of insurance money on chiropractors). It took while, but worked a treat, and worked much better alongside a gluten free...
  21. UKGail
    OMG Bartful - you have it tough! I hope the nutritionist can suggest a way to get the calories into you without filling your stomach up too soon. I suspect the answer lays somewhere in high fat foods and as many eggs as you can bear, and working on the range of veggies and other foods as a secondary target. That's all a bit over my head though. ...
  22. UKGail
    Strawberry - I don't suppose your boyfriend would drive up to Northern Ireland for you? There are Sainsbury's supermarkets in various places there, and they have a great range of gluten free food, as well as being a large well-stocked supermarket. The nearest to you is Newry, but the largest one is likely to be in Lisburn, and it is just off the motorway...
  23. UKGail
    Hi Bartful I'm happy to hear you are having a better day today. I really felt bad for you yesterday. Shame about the seafood. Living in a small island like the UK, we forget that a lot of the world can live a long way from the sea. Do your supermarkets not stock decent tinned seafood? For me, that has become a real store cupboard staple for a quick...
  24. UKGail
    Hi Bartful, I am so sorry you are feeling so rough at the moment. I could be about to write a complete load of tosh, as I am no scientist, am still fairly new to this life, and don't suffer from psoriasis, but I did just want to offer the few thoughts that I can muster from your posts, as well as my moral support. Firstly - you didn't mention whether...
  25. UKGail
    Hi Dani Doctors like getting you diagnosed as they think that celiacs need to be very strict about the diet to avoid further health problems. They currently think that people with non-celiac gluten sensitivity may not need to be quite as strict, and may even have a level of tolerance to ingesting small amounts of gluten. However I haven't managed to...
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