
squirmingitch
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by squirmingitch
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ARCHIVED Dh After Going Gluten Free? Dr. Says Not Possible
squirmingitch replied to Jortyle's topic in Dermatitis Herpetiformis
I wonder rosetapper if your thyroid failed because you had no iodine for so many years? You stated only that it failed but not in what manner. Gosh, there is so much to talk about here & so many implications..... And here's a thought... They say if you live within 50 miles of the ocean you don't need iodized salt or any other form of iodine as you... -
ARCHIVED Does Anyone Have Any Idea?
squirmingitch replied to Di2011's topic in Dermatitis Herpetiformis
Excellent suggestion itchy & an excellent letter. -
ARCHIVED Op Procedures, Surgery, Dh & Iodine
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
I know the feeling. At present we have one, a doggie. -
ARCHIVED Eczema...how Long After Going Gluten-Free Did It Stop?
squirmingitch replied to Metoo's topic in Dermatitis Herpetiformis
Terrific news Metoo! And I hope it stays gone! Be sure not to get glutened. -
ARCHIVED Op Procedures, Surgery, Dh & Iodine
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
Thanks Raven! Years ago I had made up a little laminated card with all the medical info & contact info --- keep it with my driver license. I need to re-do that now. Good idea about the fridge info. I did that for my dog in case anything happens to both of us. I'm seeing these USB devices in a bracelet --- it's a thought. That way we can change info... -
ARCHIVED Op Procedures, Surgery, Dh & Iodine
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
Let's seeeee..... stretching from the inner elbow to the wrist! :lol: :lol: Seriously, I would do that if I thought tattoos were harmless but I don't. Then on the other wrist we would have to have this tattooed: "See other wrist" :lol: :lol: :lol: :lol: -
ARCHIVED Op Procedures, Surgery, Dh & Iodine
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
I know. I keep worrying about that. Honestly, I sometimes wonder if it wouldn't be smart to just get tattooed on the inner wrist! -
ARCHIVED Op Procedures, Surgery, Dh & Iodine
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
Thanks Pricklypear. I will check & see. Or I was thinking maybe they now have or I can get custom printed one of those ?rubber? ones like the MIA, breast cancer & all the other things. -
ARCHIVED Op Procedures, Surgery, Dh & Iodine
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
Thanks Raven -- good to know. Fortunately I didn't have to drink anything --- the doc only wanted contrast in the IV. But good to know if I DO have to drink it in future! Also, I think it's time for me to get a medical alert bracelet with all this stuff on it plus the penicillin allergy plus the sulfa allergy plus the note about no soy. I would like to... -
ARCHIVED Op Procedures, Surgery, Dh & Iodine
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
That's it too Roda. After I posted, I remembered that I thought they asked me the same thing when I got an abdominal CT scan with contrast. These tests were all done within about a 1 month period fall of 2010. I can't say I had any increased breakout of dh immediately following that but I had also gotten 2 epidurals during that time period for my DJD so those... -
ARCHIVED Op Procedures, Surgery, Dh & Iodine
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
Yes, I'm sure it was used as an antiseptic but it was ALL OVER me when I woke up. -
ARCHIVED Op Procedures, Surgery, Dh & Iodine
squirmingitch posted a topic in Dermatitis Herpetiformis
Before I knew I had celiac disease or DH last year when I had my first colonoscopy they asked me if I was allergic to iodine because it was to be used during the colonoscopy. Now I'm wondering what they use if not iodine for people like us who have DH & need to limit our iodine? Does anyone know? -
ARCHIVED How Do I Manage This Rash Until I Can Go Gluten Free?
squirmingitch replied to Juanitahoy's topic in Dermatitis Herpetiformis
I can't find the source where I found this list but I have copied it here for you. No guarantee it is complete but it's better than nothing. ---------------------------------------------------------------------------------------- Apparently listed below are all the gluten additives that are in our makeup & skin care that we need to avoid!! Avena... -
ARCHIVED What Is Your Dh/skin Issue Experience?
squirmingitch replied to Di2011's topic in Dermatitis Herpetiformis
My dh hasn't left me yet. Haven't been gluten-free long enough being such a newbie. However, I've been wondering if anyone else has noticed any correlation between two things. So this is along the lines of what you're asking Di.... I used to get a lot of keratoses (skin tags) which itched. Now I know that virtually everyone gets or will get those as... -
Hooray for you! That's wonderful news to hear. Doubly wonderful since I'm walking the same road behind you. It gives me hope. After a night spent tossing & turning trying not to scratch it is refreshing to get up this morning & see your post. Yes, the support found here makes a huge difference in keeping one's sanity.
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ARCHIVED A Great List Of Hidden Gluten Names In Foods?
squirmingitch replied to squirmingitch's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you so very much. I did find it. -
ARCHIVED A Great List Of Hidden Gluten Names In Foods?
squirmingitch replied to squirmingitch's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you Lisa. I lost this topic. I had posted it in the DH forum & then it disappeared so I reposted it a few hours later. I saw no evidence it had been moved to this forum. Sorry about that. I guess you or one of th eother moderators moved it. Took me some digging to find it. Newbie. If by the home page, you mean Celiac.com Celiac disease & gluten... -
ARCHIVED A Great List Of Hidden Gluten Names In Foods?
squirmingitch posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Does anyone have a really great list (or link to) of all the complicated names of the hidden glutens in foods? -
ARCHIVED Does This Sound Like It Is Caused By Gluten?
squirmingitch replied to misslexi's topic in Dermatitis Herpetiformis
Well I don't sting. I ITCH!!!!!!! Like the very devil! And most of the people here say they ITCH. The literature says intense ITCHING. So I would not want misslexi to get the wrong impression that it stings more than itches. Perhaps it does with you itchy & that's okay if that is your take on it. But you might wish in future posts to make it a little... -
ARCHIVED Does This Sound Like It Is Caused By Gluten?
squirmingitch replied to misslexi's topic in Dermatitis Herpetiformis
itchy, Are you saying that you sting rather than itch? -
ARCHIVED I Need Help Understanding
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
My hubby said he didn't think I should be drinking soy milk when I began drinking it to help with the menopause. So now he's all "I told you that stuff wasn't good for you!" Course that's all based on his knowledge of NOTHING --- simply his fear of EVERYTHING. (It's easy to be brilliant by accident) Sorry. Had to vent for a minute there. Been a rough... -
ARCHIVED I Need Help Understanding
squirmingitch replied to squirmingitch's topic in Dermatitis Herpetiformis
rosetapper ~~~ the only eating egg whites is about limiting the iodine intake as the yolks are what contains the iodine. As I am newly gluten free, but still itching like a million chiggers had a feast on me, I am going iodine free to try & get this stuff to lay down a little faster. Otherwise I would be gobbling up the eggs --- WHOLE! As to the... -
ARCHIVED Still Itchy, Sad, But Hopeful
squirmingitch replied to Di2011's topic in Dermatitis Herpetiformis
You said a mouthful there Diane! We could be looking at taking drugs for the rest of our lives. "Just gluten free and it is good". Maybe we ought to get T Shirts with that phrase printed on them. It pretty much says it. -
ARCHIVED The Obligatory "is This Dh?" Post.
squirmingitch replied to saintmaybe's topic in Dermatitis Herpetiformis
Good for you. Go, get it done with & then you can stop wondering & get on with whatever it is you need to do. Let us know what turns up. -
ARCHIVED The Obligatory "is This Dh?" Post.
squirmingitch replied to saintmaybe's topic in Dermatitis Herpetiformis
Saintmaybe; humor will make a survivor out of you. I know it's my #1 life survival tool. Honestly, I get ones on my back that look like that & on that portion of my back too. I also get ones in many other places which present themselves quite differently. I think my body has seen any/all forms of dh on any given portion of my body at one time or another...