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1974girl

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Everything posted by 1974girl

  1. 1974girl
    Ok, just when I think I have this thing figured out!!!! I just called the Atkins hotline since I had bought some frozen dinners for my daughter. No gluten ingredients listed but I just wanted to make sure since I had the horrible experience with Campbell's hiding barley in their 2% of "secret recipe". The lady answered and said no, they were not gluten...
  2. 1974girl
    If he is getting glutened, I wouldn't think the couch would be the first thing that popped in my mind. I would guess eating out, grandma's house, or playdough. Maybe even another food sensitivity. My GI doctor had a good long talk with me about keeping my sanity after my husband told her I was going crazy. And he wasn't joking. I had accidently given...
  3. 1974girl
    We are a mixed household. 3 of us are not gluten free and my daughter is. We never worry about furniture. In the kitchen, we do wipe down fridge handles, counters, etc after touching anything with wheat. We wash our hands after eating a sandwich. BUT...we don't do anything different with furniture. My daughter still has normal bloodwork showing no exposure...
  4. 1974girl
    I am so sorry. I met a lady who was diagnosed celiac after her and her husband bought a pizza parlor! She now offers gluten free crusts. She makes them at home and then takes them to the restaurant to prevent cross contamination. (Not sure if that is FDA allowed but I trust that more than making them there!) Children with autism are often on a gluten...
  5. 1974girl
    She will tell you her quality of life was better before. Of course, she has no intestinal symtoms and could eat a loaf of bread with no symptoms. So she would revert back to not taking her own food to sleepovers and potlucks. She'd love to be able to eat anything off the menu at any restaurant. She has broken into tears at the sight of Krispy Kreams....
  6. 1974girl
    You can read the whole article called "Mortality Rates for Celiacs with Persistent Villous Atrophy Similar to those with Healthy Guts". It is on the Publications and Publicity board...page 2. I don't know how you tell the difference between refractory sprue and someone who just doesn't stick to the diet. Both would have villious atrophy. Nevertheless,...
  7. 1974girl
    So I get my invite to the Chicago Celiac Center's celiac convention. One of the topics is "Silent and Latent Celiacs: To treat or not to treat" Really? Is there any new info? I have kept my silent celiac child on gluten-free to the point of ocd obsession! I thought it was just standard knowledge in the celiac world that you treat silent celiacs...period...
  8. 1974girl
    I have been ready a TON about how type 1 diabetes may be linked to a Vitamin D def. My husband has type 1 and my daughter has celiac. She has both the DQ2 and DQ8 like he does and so, we can't rule out future diabetes. He was 19 at diagnosis and she is 12. Anyway, I know low vit D can accompany celiac. How much vitamin D are you giving your kids? The...
  9. 1974girl
    If this is the same brand as I think it is...my daughter gagged. LOL
  10. 1974girl
    Oh thanks! I called them today and they confirmed it was NOT gluten free. I asked her to look and tell me what it could have been since all I can do is read labels. She pulled it up and said it could have been the modified food starch. Thankfully, I have read from Peter enough to know that is NOT true in America. So I told her that would not be true...
  11. 1974girl
    I have a 12 year old silent celiac. (Only found due to her Hashimotos and a great pediatrician) She has been gluten-free a year this month! I made chicken marsala tonight with gluten free rice pasta and the Campbell's skillet sauce. It was actually a new brand of gluten-free pasta...rice plus flax. I couldn't see anything on the skillet sauce that...
  12. 1974girl
    If it would make a difference then do it. They did it on both my girls to try rule it out. It ruled it in. But.... Even though I know my younger dd has dq 2 I am still not gluten-free with her. 30% of the population has it, too. My celiac dd has both 2 and 8 so we are gluten-free with her despite no gi symptoms.
  13. 1974girl
    You can have the slides reevaluated for free somewhere else. I can't remember where but maybe someone here can help. My daughters biopsy showed "simplification" and didnt use the word blunt. Make sure you get the report and then I'd send it to a celiac center for a 2nd opinion since he saw it!!!
  14. 1974girl
    My dd has a 164 TTg and positive ema and they STILL wanted to do the endo. Of course it was positive and left us with all the hospital bills. I wish I had a doctor like yours who would diagnosis without biopsy. I know they might need it for certain things in school/college but for the price of our medical bills, I could have just paid for the college meal...
  15. 1974girl
    Sometimes below the ingredients, it will say "made in a facility that manufacters wheat" or "processed on the same equipment". They do not have to do this by law. It is optional and I am thankful for honest companies. I am sure others do not. But I avoid same equipment when possible.
  16. 1974girl
    Just want to make sure you have had her thyroid tested. It goes hand in hand with celiac sometimes. My dd was short at 7 and we discovered that she had hypothyroidism. She started the meds and grew 2 inches in 6 months. The doctor said that height not weight is an indicator in children. 4 years later same dd was diagnosed with celiac. Just wanted to throw...
  17. 1974girl
    I have a totally symptomless child but her dad is type 1 diabetic and she has low thyroid. It was those facts alone that led her pediatrician to run a random test. Positive. Oh and egg allergy can also cause exema.
  18. 1974girl
    Haha! Yes. Reverse those times! I homeschool my kids and today my 6th grader learned about pi. It has been a long long long day.
  19. 1974girl
    I am going to be in the minority here I know but I'd retest her in 6 months. Did they do the Ema test? If that was positive, ignore me and go gluten-free now. It is 98-99% accurate. My daughter was tested when her sister had celiac. She had a slightly elevated TTg and neg on ema. 2 GI doctors told metro retest in 6 months. We did and she was normal. We...
  20. 1974girl
    I am making my easy meal tonight. I got it off the crock pot 365 site. 1 pack chicken, 20 Oz pineapple, 1/4 cup gluten-free soy sauce like la choy. Put all in crock pot for3-4 in low or 5-6 on high. Serve over rice or spinach leaves. 3 ingredients! (You can add red pepper flakes if you want but my kids hate them)
  21. 1974girl
    I know I posted this thread but thanks for the new tips. I can't find the cinnamon chips this year. My friend ordered them online but I don't need them that bad. And jersey angel- thanks for the cookie tip. I made them last night and so they would sit overnight. You are so right! gluten-free stuff gets better overnight! And the cookie way eliminates any...
  22. 1974girl
    I grind up gluten-free crackers for meatloaf. For chicken breading, I use gluten-free bisquick. For fish, I use Zanteranes. (Sp?)
  23. 1974girl
    Just to reiterate what she said. My daughter has biopsy confirmed celiac but tests negative to wheat on the skin test because it is not an allergy at all. If your allergist will do the celiac panel then that would tell you. Your son may have an allergy but as for celiac a back prick won't tell.
  24. 1974girl
    My dd has no symptoms so I'd never know. But someone here gave me this same advice when she was diagnosed. They told me that they ate if it was shared facility but not in shared equipment. I have stuck with that rule and her antibody test was back in the normal range at the 6 month mark. (And we eat out once a week).
  25. 1974girl
    Add my 12 year old to the EE list. She has no symptoms if it. No swallowing issues or food getting stuck. They found it on accident on the way down to take the celiac biopsy. We have eliminated everything that was positive in the skin test and her patch test showed nothing. After eliminating all beans peas apples pork mustard gluten cantaloupe and bananas...
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