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Mom-of-Two

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mom-of-Two

  1. Mom-of-Two
    Insist on testing-- for all. It is so freeing to just KNOW.
  2. Mom-of-Two
    I think that's what I'll try- it varies and some days he has a lot- today they had pretzels for snack at school and it was a birthday so also had cookies- and then breaded chicken when out this afternoon. Maybe I will wait and do it in 3 weeks The reason I wonder if it is enough time in a child that is already eating gluten, is that the reverse happened...
  3. Mom-of-Two
    So, I got my celiac diagnosis a year ago, my 8.5 year old has been gluten-free 6 months and just had her follow up- her ttg in normal range (was 80) and she is now EMA negative (was positive 6 months ago). Her vitamin D also doubled and she appears to be absorbing perfectly now- I took my 5 year old along to the appt because he is having tummy aches, he complains...
  4. Mom-of-Two

    ARCHIVED Chipotle!

    Mom-of-Two replied to megsybeth's topic in Gluten-Free Restaurants

    I have had Chipotle probably 50 times since being gluten-free, so maybe I'm an expert it is all about the people handling your food- you have to be assertive in asking them to be safe, when you order- my husband usually gets the order since it's usually eaten at home, he makes them wash hands, change gloves, they also get new spoons, and fresh cheese from...
  5. Mom-of-Two
    My daughter had her 6 month follow up a few days ago! Her ttg went from 78 to 10 (<20 is negative), she tested negative on endomysial antibody (she was 4 times positive 6 months ago), her vitamin D was low 6 months ago at 27 and is now 52! She has gained 6 lbs total, but only about an inch (her growth was not affected though before). Joint pain gone. ...
  6. Mom-of-Two
    My 8 yo was low on vitamin D (27) with her celiac labs- today was her 6 month follow up and I'm happy to say she's now at 53 the GI doc fully believes she wasn't absorbing the vitamin D before and with the gluten-free diet past 6 months she's absorbing so much better- she gets 2500 units per day.
  7. Mom-of-Two
    My 5 yo gets 1000-2000, and 500 in multi. 8 yo (celiac) gets 2000 in drops and 500 extra in multi- she was low at 27 time of diagnosis. Hubby and I take 6000 daily, both low. Best thing is to know your levels- no one should follow the minuscule 400 unit suggestion, horribly outdated!!! As a general rule, at least 1000 per 25 lbs.
  8. Mom-of-Two
    My daughter has been gluten free for 5 months and not experienced any stomach aches, or any other symptoms that I can associate to eating accidental gluten. However our house is gluten free (I have celiac as well). She packs a lunch, only has snacks I send, etc so I suppose her risk of exposure is slim, but, she had no GI symptoms prior either- she was only...
  9. Mom-of-Two
    Sooo much candy is gluten free- we did trick or treat last night, came home and made piles- I am lucky that my daughter has such a wonderful attitude and is totally accepting of her diet and never feels excluded- she focuses on the things she CAN have which I think is an amazing quality, she has done way better in her 3 months gluten free than I am doing...
  10. Mom-of-Two
    I am curious about switching probiotics on a regular basis- I have been giving my kids Culturelle for years- daily, for immune health. Makes a huge difference and they are very healthy kids. I asked my GI doc about this issue and sent an email to Culturelle, both said there is no reason to change strains- and Culturelle is the only one with LGG so I just...
  11. Mom-of-Two
    My daughter tested positive to our shock after we had them both tested following my own disgnosis 8 mos ago. No abdominal symptoms or indications of anything wrong, very healthy. She had a normal biopsy, however tested pos on her ttg labs and pos for the endomysial antibody, also vitamin D deficient. She has been strictly gluten free for 3 months, and gained...
  12. Mom-of-Two
    I have had the flu vax every year for about 11 years, my hubby was Army so he's had flu vax for like 20 years. Kids get them too. This year not sure on mist vs shot or them, my pediatrician says mist is more effective in children. But live vs killed virus, more side effects and high fever likely so I am on the fence. Neither of us have ever had side effects...
  13. Mom-of-Two
    I highly suspect my gallbladder is an issue, however I do not have stones or anything visible and I do not want that sucker out unless absolutely necessary! I do not have severe pain or anything that would lead me to act urgently, in fact the symptoms have been hanging around for years now. It is what got me a celiac diagnosis 7 months ago. I had bloating...
  14. Mom-of-Two
    My 8 year old also had positive labs (including endomysial antibody), and I myself have celiac- she was only tested because of my own diagnosis. Her biopsy was normal, they took plenty of samples and her cell counts and everything were normal, first GI told me no celiac, no damage, keep her on regular diet and retest in 6 months. I was stunned by this advice...
  15. Mom-of-Two
    My daughter is 8 and only been gluten free a couple months (already gained 3 lbs we only found out after I was diagnosed back in Jan. no real symptoms in her (vitamin D deficiency) but she is happier and healthier than ever gluten free, has no problems and all and basically no transition. Retest 4 months from now and also see if her D is up. My youngest...
  16. Mom-of-Two
    I have been gluten free for 7 months and have not had any episodes of glutening that I am aware of. My daughter has been gluten free about 2 months and not a problem yet. We are super careful though and the only food we eat out is Chipotle which I've had 20 or more times since being gluten-free with never an issue, they are super accomadating. I think...
  17. Mom-of-Two
    My guess would be a stomach virus! Stay hydrated, and rest up!
  18. Mom-of-Two
    I am unsure of the vitamin issue but just wanted to comment that it can be hard to find a very supportive dr- I am lucky that I did, and she really treats me with the full spectrum- meaning, she tetss my vitamin levels, looks for any other complications of celiac, follows up every 3 months (it will go to once a year after this next visit, assuming it shows...
  19. Mom-of-Two
    So there I was at Target today, and saw their brand of nighttime cold stuff (same as Triamic, Dimetapp, and the Benadryl cold/sinus stuff I had bought- all same ingredients. Only this Target brand, big green gluten free label! And it was under three bucks! So I returned the other stuff to my Walgreens and saved $16. Lesson learned! You never do know!...
  20. Mom-of-Two
    I would not take gluten out until AFTER you get results because if his labs are positive, they will want you to biopsy him which is your call but you have to keep him on gluten to see the damage. Good luck!!!
  21. Mom-of-Two
    Yes, Dimetapp and Benadryl are on the list there (although they don't test)
  22. Mom-of-Two
    You may need B vitamins! I have had this issue for years, cracking/soreness on corners of lips- I will heal it and then it starts again in just a few days. My dentist even told me it was lack of B or C vitamins- this was before I knew I had celiac, after I found out and started supplementing with a B complex, the sore lips never returned. What I take is Country...
  23. Mom-of-Two
    When I discovered I had celiac 8 months ago, my primary dr (who ran the labs) said I did NOT need to have my kids tested unless they had symptoms. I then went to my specialist for celiac, and she had a whole other story- suggesting both kids be tested, due to the genetics. She also said we should test them every few years, and that it is not true that all...
  24. Mom-of-Two
    So, Tylenol replies that the gluten information for Children's Tylenol is not available, and they no longer have a gluten free list. They state that their testing used to be performed by an outside laboratory using the ELISA test kit, this only related to the products that they had tested. Which does not include the Tylenol. I guess I will return that...
  25. Mom-of-Two
    I have always heard that children heal very fast- no, his intestines have not healed, but his numbers will likely drop significantly by follow up, giving you a good indication. My 8 year old had been on a restricted diet at home only, since I have celiac and we had made the house gluten-free- she had a blood test 2 weeks later and her tTG number had fallen...
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