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GlutenFreeAustinite

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Everything posted by GlutenFreeAustinite

  1. GlutenFreeAustinite
    Apparently it was the pathology report. He took tissue biopsies and I don't think he reads them.
  2. GlutenFreeAustinite
    I felt awful. There were days when I wasn't "so bad" but I definitely wasn't normal. I accept completely being NCGI, and I am glad that it's taken seriously (or starting to be). I did get upset when my doctor told me a little gluten was okay...I happen to disagree, as I am sensitive to small amounts of gluten, or at least was when I was gluten-free. So...
  3. GlutenFreeAustinite
    So I'm not pregnant, or planning to get pregnant, for a very long time, but I just got diagnosed with NCGI (though it's possible I could be celiac, I suppose, due to testing malfunctions). I was wondering if anyone with gluten sensitivity/NCGI had problems with fertility...I know it's an issue with celiac, but anything else?
  4. GlutenFreeAustinite
    I was gluten-free for roughly 18 months but then started a challenge that lasted almost three months.
  5. GlutenFreeAustinite
    So I had a negative biopsy today (four total taken from my duodenum), and my doctor has diagnosed me as gluten sensitive, which I prefer to call Non-Celiac Gluten Intolerance. I get the impression he doesn't take it as seriously (in fact, he told me that once I feel better/recover from the three months of gluten challenge, I can probably eat some small amount...
  6. GlutenFreeAustinite
    I've been on a gluten challenge but I've gained weight too. Not a ton, mind, just five or six pounds, but I hate that feeling. It's because I was eating tons of sugary foods, as I knew that whatever my results were, I was still going gluten-free at the end, and would never eat most of this stuff ever again. Worst justification ever. But seriously...
  7. GlutenFreeAustinite
    Posted in the wrong forum! Sorry.
  8. GlutenFreeAustinite
    Haha thanks. It comes and goes in cycles for me. Like I'm miserable for several days/weeks and then I can almost convince myself that I feel normal again and then sick once more. I'm gluten-free for good now, after breaking out in a horrible rash that isn't gone yet and I suspect won't be until after I am gluten-free for a while.
  9. GlutenFreeAustinite
    Congratulations!!!!
  10. GlutenFreeAustinite
    Right...I'm concerned because I believe he only took one biopsy from my duodenum. Gah. I'm nervous. I'd hate for him to not diagnose me celiac because he biopsied the wrong patch of my intestines. But thanks for the feedback!
  11. GlutenFreeAustinite
    Thank you! If I can't get them to waive the whole thing, I'd be happy with just paying a portion of the plan, and supplementing with my own foods. And I'll definitely post with what happens...I have another agonizing 24 hours before I know the diagnosis (not long at all in the scheme of things, but I'm just ready to know NOW haha). Colorado State sounds...
  12. GlutenFreeAustinite
    Yeah, my thought process is that I was gluten free for 18 months and only went on gluten again 2 1/2 months ago. So it probably isn't as "severe" as it would have been if I'd been eating it all my life. Plus I'm only 18, so there's hardly been time for long term damage. I thought I saw some odd mucosal patterns (also seen in celiac patients) but it could...
  13. GlutenFreeAustinite
    Yeah, I am going to contact the disability center on campus, but I'm waiting until I have the diagnosis, because I need to have that in hand before they will even talk to me...I checked out their website. I have the finances to purchase my own food (if I'm not paying a meal plan), and will be able to bring my own kitchen supplies (they have a dorm kitchen...
  14. GlutenFreeAustinite
    Thank you. The official diagnosis will most likely be in tomorrow so here's to hoping my school will be kind and understanding. They honestly provide like three gluten-free items, but maybe they'd be more careful if they had an actual celiac in the house...I don't think they do at the moment.
  15. GlutenFreeAustinite
    So I'm heading off to college in the fall, and I'm currently awaiting a diagnosis. Currently, I will have to pay $1639.99 a semester, and I've been to their dining hall, and it's limited in terms of gluten free. There's a small cooler with a few bread items, a salad bar (with high CC risk), and a few vegetable items I'd feel safe eating (plain baked potatoes...
  16. GlutenFreeAustinite
    So my GI doctor did an EGD on me yesterday, and he said that all of the slides looked normal (my esophagus and stomach weren't inflamed, and my duodenum wasn't visibly damaged), but that celiac is a microscopic diagnosis, so we're waiting for the results of the actual tissue biopsies. Will the fact that my duodenum isn't scalloped affect whether or not my...
  17. GlutenFreeAustinite
    I love Udi's bread, muffins, cinnamon rolls (though I HATE the frosting packets, super annoying), hamburger buns, and pizza crusts, though I haven't tried their bagels. One thing with Rudi's...they DO make a NOT-gluten free bread too, and I've seen a few stores put the gluten-free and the not gluten-free next to each other. Just be careful when buying...
  18. GlutenFreeAustinite
    That's exactly what's happening to me--it gets better at night and returns during the day. I'm going gluten-free tomorrow and am also going to try low-iodine.
  19. GlutenFreeAustinite
    Yeah, the stuff under my arms appears to be responding to the Clindamycin, but I stopped all of my antibiotics because I broke out in this head-to-toe rash. My legs/feet/arms/elbows are covered in bright red dots. They get better after a dose of the prednisone but resurge the next day. Very odd.
  20. GlutenFreeAustinite
    I asked my GI doc about the strange rash, and he said that while it would be an atypical appearance for DH, he said it was possible, especially as the prednisone wasn't really working consistently. But I don't know.
  21. GlutenFreeAustinite
    Thanks....my general practitioner wanted me on the prednisone and the GI doctor said it was fine, so I took another dose and it's clearing up, thank heavens. I won't be able to take it until after the biopsy, but it's doing better. Thank you so much for your support and encouragement!
  22. GlutenFreeAustinite
    As a kid, I constantly had eye and ear infections. I distinctly remember the Christmas I was three years old, and I refused to take my eye drops to treat a nasty case of pinkeye. My dad "called" Santa Claus to tell him I was not being a good girl by refusing to take my meds...needless to say, I complied instantly. I was the one kid in ten to go tubing...
  23. GlutenFreeAustinite
    My test is actually Tuesday......but my mom and I don't think that the dose I took today has had or will have an effect. The rash is still as bad as it was and I've been having normal gluten symptoms all day. I'm hoping that it doesn't cause problems but I'll call my GI's nurse tomorrow, as well as my general practitioner. And yeah, I totally agree...
  24. GlutenFreeAustinite
    Yeah, I'm not taking it anymore.....I only had one dose, that should be okay, right?
  25. GlutenFreeAustinite
    Oh yes! I had horrible migraines that were remediated by a gluten free diet that I followed for two years, though probably not as strictly as I should have (CC issues, I never ate actual gluten unless it was an accident), but wanted definitive answers through a diagnosis. So I've been eating gluten for two months, and all these random symptoms have cropped...
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