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Nevadan

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Everything posted by Nevadan

  1. Nevadan
    You might want to do a DNA test to help you understand your situation. I had Enterolab do mine and it came out that I was gluten sensitive (which like you I had already figured out by eliminating it from my diet) but not likely to ever have celiac disease type damage to the small intestine. I have two DQ1 genes. Nevertheless I was dx'ed with osteoporosis...
  2. Nevadan
    I decided to go ahead and try the Montina All Purpose Flour Blend that our local Wild Oats store started carrying. (You can also purchase Montina products from their website at www.montina.com ) My wife used this to make bread and we both thought it was outstanding. It yielded a great texture as well as excellent taste. The Montina All Purpose Flour Blend...
  3. Nevadan
    After a lot of research re gluten sensitivity/intollerance vs celiac, I'm convinced that sens/intoll is also a genetic disease - and genes don't change. So it's pretty much for life unless someone finds something we can take that helps with digesting gluten - Stanford U is working on this now. I find that I feel so much better w/o gluten that being gluten...
  4. Nevadan
    Our Wild Oats just added a new bread mix, Montina brand. It is a blend of Indian (American) rice grass flour, tapioca flour, and white rice flour (Ithink). They have a nice write up on the package about Indian rice grass and their new factory that is dedicated to gluten-free only products. Just wondering if anyone has tried it yet? Hope it is good...
  5. Nevadan
    You might want to check a post I just did on the Post Diagnosis/Recovery Board in response to a topic started today by janu re Enterolab results. I'm also a non-celiac gluten sensitive person. I definitely recommend "Dangerous Grains" and its available at Amazon for about $12. George
  6. Nevadan
    Welcome to Purgatory. I know how you feel. My recent results from Enterolab were similar except for the malabsorption: Antgliadin IgA = 22 (Norm < 10), Antitissue Transglutaminase IgA = 17 (Norm < 10) Malabsorption = 84 (Norm <300), HLA-DQB1*0602*0602 (Serological equivalent = DQ1), anticasein (cow's milk) antibody IgA = 19 (Norm <10) I had...
  7. Nevadan
    Regarding tests and labs, I too find Labtestsonline.com to be a good source of information on specific tests. Also if you have a Quest Diagnostics Lab, Inc nearby, they have an affliate, Questest, that provides patient ordered testing in most of the states they operate in. You can view the available tests at Open Original Shared Link George
  8. Nevadan
    Another book I found quite helpful is "Dangerous Grain" by Braly and Hoggan. I think it does a better job than most in trying explain the relationship between celiac and non-celiac gluten sensitivity. I happen to appear to have the latter. Anyway the book has a credible hypothesis of why gluten is bad news plus some good exposure to "related illnesses...
  9. Nevadan
    Regarding my anemia level, its not too bad - just marginal. A couple of months ago I self-diagnosed my gluten sensitivity by diet changes and was subsequently tested by Enterolab about a month ago. Enterolab found me gluten and casein sensitive but to not have the genes for celiac; however I do have the genes for gluten sensitivity. My original concern...
  10. Nevadan
    After going gluten-free how long should one expect it to take before anemia shows signs of recovery? makes a full recovery? Thanks. George
  11. Nevadan
    The issue of making people (docs, sufferers, family, friends, etc) aware of gluten sensitivities is obviously a very difficult one. From what I read some of the major countries in Europe appear have instilled considerably more awareness than here in the US. I keep hearing the statistic regarding how much quicker celiac disease is diagnosed in Europe than...
  12. Nevadan
    Hi Robin, I was diagnosed with osteophorosis 5 yrs ago at age 54 after my much older brother was diagnosed. I first did the wrist scan at a local drugstore during osteo awareness week which showed low density; I subsequently requested a DXA bone density scan which confirmed it. I am not celiac and don't have the genes to become celiac (no DQ2 or DQ...
  13. Nevadan
    Same here, I'm the same as Elonwy. I've been gluten-free for only about 2 months, but the health improvements have been so dramatic that I can't stop thinking about and researching this. I'm a scientist by education so maybe that has something to do with it, but I've even written a couple of letters to Health Editors of various newspapers trying to encourage...
  14. Nevadan
    I am wondering what is the main concern with shampoo's containing gluten - is it that you may swallow some while washing your hair, or is it that gluten might be absorbed thru the skin, or something else? Thanks. George
  15. Nevadan
    I am a 60 yr old male diagnosed with osteophorosis 5 yrs ago after my much older brother was diagnosed. (Subsequently his son has also been diagnosed at about 50 yrs old so it appears genetic.) I take fosamax routinely. My osteo was how I got to relalize I might be gluten sensitive: after reading an article that stated that all celiacs should have a bone...
  16. Nevadan
    I agree in general, but perhaps a more free market approach might work better than seeking a political solution. Look at the Atkins diet and the effects it had on the food industry (e.g. most restaurants now have low carb menu items) and it was based on dubious nutrition principles at best. It might be worth taking a very "marketing" approach and try to...
  17. Nevadan
    You might want to look at the following link; it has what I consider an excellent overview of the effects of gluten sensitivity as being much more than just celiac disease related: Open Original Shared Link I discovered my gluten sensitivity by going gluten-free and seeing my abdominal bloat, gas, and constipation problems go away within 48 hrs. Subsequently...
  18. Nevadan
    If yours clears up too, please post the results, or at least contact me by email. Mine took about 2 months of gluten-free before I noticed it was gone. I am most interested in your results. Thanks. George
  19. Nevadan
    Julie, My skin splits on the end of the fingers starting at the side edges of the fingernail (same place as hangnails) and extend outward toward my fingertips for about 1/8"-1/4". They do not respond to any lotions I've ever found. Even when a split is not present, the skin in this area feels thick or callous-like - this appears to be going away also...
  20. Nevadan

    ARCHIVED Favorite Sports

    Nevadan replied to KaitiUSA's topic in Sports and Fitness

    Couldn't tell if the original question was re favorite sport to observe or do. I'm not much of a sports observer at all, but I love biking. Last year I did 2000 miles - hope to do more this year. George
  21. Nevadan
    I've been gluten-free for about 6 wks and have noticed that a problem that I had with my skin splitting on my fingertips near the fingernail edge has gone. I'm wondering if this is from the gluten-free diet. The splitting was triggered by any exposure to dust/dirt - a trip to Home Depot had become very painful with their dusty warehouse enviornment. Before...
  22. Nevadan
    Thanks to all for the good discussion. I am enjoying it and hope others are too. Where else can you have such a discussion with such an experienced group. I thought the point about vitamins and fiber very worthy of some extra attention. I agree about just feeling better being a major positive. George
  23. Nevadan
    I guess newbies are allowed to ask a few irreverent questions, so here goes. My question is "What is the downside of switching abruptly to a gluten-free diet?" In my experience most behaviorial decisions require trade-offs, so I wonder if there aren't some here (never mind the inconvenience factor, etc). I can't help being a bit suspicious when all I read...
  24. Nevadan
    Many thanks to those who replied. All help is appreciated. I should have been more clear in my original post re my question. First I would not consider going back to gluten - it just feels too good without it. My real question was regarding the interpretation of the Enterolab results, particularly the gene testing in conjunction with the antibody and...
  25. Nevadan
    I'm new to this gluten thing and would like a little bit of the experences of the other forum members re interpreting my Enterolab results. Background: I'm male, 60 yrs old, very active and seemingly healthy but with a lifelong problem with intestinal bloat, gas, and constipation. I'm also diagnosed with osteoporosis. Base on the latter I saw an article...
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