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mamaupupup

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Everything posted by mamaupupup

  1. mamaupupup
    Thanks Laura--that's a BIG help! I "tested" my little Lactaid puker today...I took her to McDonald's for a vanilla milkshake and didn't give her a Lactaid tablet. No vomit. Hmmm. No belly ache, no bloating, crazy! Not sure I'm going to test the Lactaid tablet only...I'd have to be out in the backyard with her for an afternoon to be prepped for...
  2. mamaupupup
    I'll ask if it doesn't come up! I hadn't heard of that--thank you!
  3. mamaupupup
    @ Janet--LOVE the comment about if one place is good to you give them all your business--that is so true! @Minette--yay, twins! I tested my puker today and gave her a vanilla milkshake from McDonald's (no Lactaid tablet) and she was fine...she only drank about 1/4th of it though (typical). @Cara--Yes, Sundae School is wonderful--we are very...
  4. mamaupupup
    I'm going to the CDF conference this weekend in LA and will try to ask what the connection is between lactic acid and gluten! If I get an answer, I'll let you know!
  5. mamaupupup
    I just dug up my daughter's allergy testing: her Casein IgE came back negative. Does that mean she is not casein intolerant?
  6. mamaupupup
    Hi All, My husband and I are heading to the CDF conference in LA on Saturday. There are a number of Q&A sessions. What questions to you all have? I'm sure I'll be able to ask a few and I'll keep my ear open for answers/opinions to the others...I'll do my best to do a post conference recap, but I'll be on the road a bunch for the following week,...
  7. mamaupupup
    Thanks Tom! Yes, I could do the test "Here's a tablet, let's see how you do!" And, yes, we are about to go dairy free. Newbie question: is there a difference between dairy free and casein free? And, here are her disaccharidase scores as background: Lactase 2.2 Abnormal <15 Sucrase 13.4 Abnormal <25 Maltase 56.8 Abnormal <100 Palatinase...
  8. mamaupupup
    Thanks Janet! I'm going to the CDF conference in LA this weekend--I'll ask about healing rates! Kelsmom: I had emailed our GI about the tummy pain, so I thought you might gain something from reading the response... The tummy pain can be due to a couple of things: > > 1. Pain with eating (i.e. dinner) can be that she has to have a > bowel...
  9. mamaupupup
    Hi there, Quick reminder: I'm a newbie! Reading this about scoops and CC issues emphasizes in my mind a) how much I have to learn and how awesome y'all are to share and care so much. Thank you! It's been a month since our girls have been diagnosed. Here have been our ice cream trips so far: 1. Pick up the pre-packaged single serving Haagen...
  10. mamaupupup
    Kelsmom--I think I mentioned the stomach pains one of our twins has in another thread (the Chex one). She is now on Prevacid (also see my thread on that if you'd like). She tested negative for H. Pylori but had a reddish section in her stomach which was discovered in the endoscopy...PM me if you want! On the stomach pain note--I'm noticing that fatty...
  11. mamaupupup
    I heard a statistic yesterday that Celiac families spend 10-12 hours a month reading labels!!! Seems like a lot, but maybe I do! Good luck with the muffin mix
  12. mamaupupup
    You asked how long our kids have been diagnosed: 3/2012. We are a month into being 100% (as far as we know) gluten free. I agree with another poster--that it takes time to heal. I appreciate the paper cut analogy! I found it interesting that she describes the pain as a burning warm sensation. Twin A has been requesting "ice cold water" -- maybe...
  13. mamaupupup
    ...as I sit here late at night researching and formulating yet another tweak to my twin girls' diets, I know I'm not alone! There are dozens, perhaps hundreds of you out there doing the exact same thing! Thank you all for sharing your paths, hiccups, and wisdom! I appreciate you all! I thought I'd reach out to you all and send you hugs and best wishes...
  14. mamaupupup
    Hi all, Quick question for the lactose-free crowd...has anyone had problems tolerating the Lactaid tablet itself? Our twin who is Celiac and has an incredibly low lactase score seems to be having more stomach pains taking the Lactaid tablet and eating dairy. In fact, she has twice thrown up after the combo of Lactaid tablet and ice cream. Our plan is...
  15. mamaupupup
    Hi Echen! Yes! I spent countless hours during the middle of the nights massaging one of my little girl's legs, arms, wrists, feet, toes. This went on for about two years--three nights a week. Two pediatricians said, "It's growing pains" repeatedly. I took her 90% off gluten and in about six weeks she was down to muscle and joint pain about once every...
  16. mamaupupup
    Hi there! I'm thinking of you! I can add a little on the BC front: I finally went with the Mirena IUD. I never thought I would and I'm so glad I did. My hormones/emotions are very well balanced, of course with some ups and downs. I tolerated BC pills before I had kids, but afterwards something changed. Sometimes gynecologists can be the best, most...
  17. mamaupupup
    Hi there, I have two kiddos with Celiac -- but the Canola Oil issue is mine. I am highly sensitive to Canola Oil. If I have any flavor of Chex I run for the bathroom. I let my kids have it, but I try to keep Canola Oil out of the house. I often put processed foods back on the shelf if Canola Oil is an ingredient. Also, if I go to a restaurant and...
  18. mamaupupup
    :) Awesome. It looked a little like the Gunks in New York. Jtree was awesome--with little kids we're only doing single pitches these days! We also climbed at Red Rocks outside Las Vegas earlier this year--gorgeous rock, friendlier than Jtree! Keep climbing!
  19. mamaupupup
    :) Awesome. It looked a little like the Gunks in New York. Jtree was awesome--with little kids we're only doing single pitches these days! We also climbed at Red Rocks outside Las Vegas earlier this year--gorgeous rock, friendlier than Jtree! Keep climbing!
  20. mamaupupup

    I didn't want to high-jack the persons thread, you had asked a question in. Nice to hear from a person in the forum that knows how to tie a figure eight knot. The climb is at barn bluff in redwing Minnesota. All single pitch climbs. Nothing compared to joshua tree (soooo jealous). Cheers.

  21. mamaupupup
    Our girls have been recently diagnosed, so we are being conservative to start. We want to give their guts time to heal. For now, we are not feeding them oats. Over time (6-12 months) we will likely do a trial with certified gluten free oats. I have heard that some kiddos have a hard time at first but over time may be able to eat oats. I believe the oat...
  22. mamaupupup
    You could always call it "virtually" gluten free or "as gluten free as we can be" or something similar. A good lawyer can help you iron it out and write a good disclaimer for parents to sign Hidden sources of gluten: - ALL pet foods in our house had to be replaced: aquarium fish flakes, dog food, bird seed, etc. There are fine replacements, we...
  23. mamaupupup
    Hi Cheryl, From my experience in trying to pinpoint allergies with my twin girls, some of the allergens are best assessed via skin (scratch) test and some are best via bloodwork. A good allergist will guide you in the right direction. Also, our pediatric GI did some allergy testing during the endoscopies for Celiac Disease. Also, I personally have...
  24. mamaupupup
    Hi Mushroom--how long would you suggest going gluten free, soy free, and lactose free before starting a challenge? Which one would you challenge first? Thanks!
  25. mamaupupup
    Hi there, My twin 5.5 year old girls have just been diagnosed with Celiac. - Don't reduce the gluten in your daughter's diet until you've completed testing--you'll possibly get false negatives if she isn't ingesting gluten. - Tests to do: Open Original Shared Link This has the best, simple overview. Find a GREAT GI who knows Celiac. If you are near...
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