Jump to content

mamaupupup

Advanced Members
 View Profile  See their activity

  • Posts

    279

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by mamaupupup

  1. mamaupupup
    I agree with the above posters: we have three Celiacs in our household. Our out-of-the box thinking cardiologist Dr Gundry insisted we go 100% grain free and avoid nightshades after we explained some of one of our kids' symptoms persisted. we have followed an autoimmune paleo protocol very successfully and are healthier than ever. listen to your instincts...
  2. mamaupupup
    for me it is sugar that makes me toot! carbs/fructose/maple syrup!!! my husband always busts me when I've dipped into the sugar world!!!
  3. mamaupupup
    we are a family of four with three Celiacs. We have been following an auto-immune paleo protocol for more than two years now and all of our symptoms are at bay. the paleo mom blog is my constant inspiration! we are all proud of how we are eating and wish you improved health!
  4. mamaupupup
    Hi there! We also find that going in to a restaurant and talking to the Chef at 3:30 in the afternoon and then returning to eat on the early side ensures an AWESOME experience . We also tip REALLY well and return to the places I feel safe eating
  5. mamaupupup
    Hi! You are not alone...I have a 6.5 year old little girl who developed tummy aches over 8 months ago. We have eliminated a TON of things and haven't found an answer yet. Here are some things that we did discover were triggers for "big" tummy aches (she has pain all day, every day though...). She did have a "KUB" xray which showed she was constipated...
  6. mamaupupup
    You are a great Mom! I was CRAZY with the cleaning I did...I have those $100 slipcovers over couches I got pre-kids...sanitized them, put 'em back on. I replaced all my pots and pans, toaster, baking sheets, etc... I even emptied every cabinet, put down new contact paper, etc. Somehow a chocolate maltball made it through all of that...showed up randomly...
  7. mamaupupup
    Hi Lisa--the test we did was to have my daughter "fill" a bag by breathing into it every 15 minutes. We capped the bag and labeled it. I think it gets sent off somewhere--so I don't know the numbers yet. I was thinking about the poor company that does these tests and HOPES for a higher accuracy rate--which could be higher if the nurses administered it...
  8. mamaupupup
    Thinking of you! In our house we "fell" one by one -- first one daughter was diagnosed, then the second, then me. We ended up purging the house of all gluten. We call our house the "all-inclusive" dining experience and don't let anyone bring anything over. It's just simpler... It might be good to have everyone in the...
  9. mamaupupup
    As a quick update, we did the SIBO breath test yesterday at Children's Hospital in LA. Results due back Tuesday. Super simple test (the nurse had ME administer it...which was a slight bit annoying just because I'm sure it costs insurance an arm and a leg...). My daughter was a champ. Took about 2.5 hours all in.
  10. mamaupupup
    Hi Lisa, Thank you so much. We are going to the allergist tomorrow...we'll see how receptive she is... (She is the doctor who did finally do the Celiac testing for my kids after I had asked and been turned down by the pediatricians for 18 months...so, I have hope!). Courtney
  11. mamaupupup
    thanks Lisa! I'll take any/all links to this you have. A couple questions: - I've read mixed reviews on the DAO blood serum test. Have you read anything definitive? What is your opinion? - Have you read anything about doing a two week trial where you go on anti-histamines for two weeks--if symptoms go away (they are supressed, really), then go through...
  12. mamaupupup
    Wow! This is an amazing perspective! Thank you! I'm going to go to the kitchen, eat some chocolate chips, do the dishes, get kids to bed and come back an re-read that! Thank you! I doubt we would have ever thought to look at the histamine list! She's still eating a tiny bit of chocolate, pineapple, and many other things on that list! Avocado made...
  13. mamaupupup
    Hi Lisa, Thank you so much for your input. It's interesting, we see two specialists in LA--a GI pain specialist and a Celiac researcher. The pain specialist is also considered one of the thought leaders in SIBO in kids. From what I'm gathering, SIBO is typically an adult "term" and that there are lots of kids with undiagnosed SIBO. We removed almost...
  14. mamaupupup
    Hi there, We have a six year old who was diagnosed a year ago with Celiac. We were gluten-free and happy/no problems until about month 9 gluten free. She developed abdominal pain below her belly button which is moderate, constant pain and sometimes flares up. We have had numerous doctors visits (also with our Celiac GI) and are now embarking on an effort...
  15. mamaupupup
    You are a great Mom!!! You are asking great, smart, thoughtful questions. I had to go around LOTS of doctors to get my kids tested and eventually got in to see Dr. Michelle Pietzak at Children's Hospital Los Angeles (a huge drive for us and so worth it). Ultimately, our twins were diagnosed with Celiac (as I had suspected) and Dr. Pietzak insisted my husband...
  16. mamaupupup
    looking forward to hearing about the can lining. ...as another data point, I can't do anything with canola oil ...we LOVE tuna with avocado mash ...I also use soy-free vegenaise (from Whole Foods) and like it Good luck!
  17. mamaupupup
    Tooth enamel defects is definitely an issue for Celiacs...but even our Ivy League trained pediatric dentist can't find research linking the two for kids. We have two girls who had cavities between all of their molars at 4 yrs old. Yep, 8 cavities each. They were diagnosed with Celiac at 5.5 years. Now at 6.25 years (almost a year gluten free) the girls...
  18. mamaupupup
    I didn't answer the kids GI question very well...sorry! Here are my thoughts on peds/Celiac in the greater LA region: - San Diego is supposed to be very very good, but I haven't been there - Dr. Pietzak at Children's Hospital LA is excellent but she's there only 2x a month and it is incredibly difficult to get in - Dr. Collins Open Original Shared...
  19. mamaupupup
    We were incredibly well taken care of at the Westion Ocean Villas on Maui. The Chef there, Francois, completely had things dialed--and I know it because he keeps the collander for the gluten-free pasta in his office! That is a great sign! I, too, am looking for a great gluten-free resort, so keep us posted!
  20. mamaupupup
    @ shadowicewolf--probably! Maybe it's even good that your body knows how much too much fat is! We have an extremely low fat diet in our house b/c of all the heart disease in the family (both sides), so I know I have some gut work/healing still to do...it's all a process isn't it? Also, I finally remembered in the middle of the night about the Bristol...
  21. mamaupupup
    I see Dr. Harmon, GI/Celiac researcher and Nancee Jaffe, Registered Dietician at UCLA's Celiac Center. Poop shouldn't float. It floats due to malabsorption of fats. It is important to absorb fats. As the gut heals, usually fat malabsorption subsides and poop will start sinking . (One of my twin's poops floated. We are at 9 months gluten free and...
  22. mamaupupup
    Hi there, I believe a positive test (and I believe his was) is very accurate and specific to Celiac. We have an incredible GI who trusts TTG enough to diagnose Celiac on that test alone. (One daughter diagnosed through positive TTG and we ended up also doing genetics and endoscopy which revealed a little, but not much damage. The biggest outcome:...
  23. mamaupupup
    Hang in there! I also vote for going to a doctor. I had (and have) similar pain which I brought up numerous times (before and after I was diagnosed Celiac). Doctors palpated and didn't come up with anything. This went on for seven years. This summer I got diagnosed Celiac and had a colonoscopy which removed a pre-cancerous polyp. My brother died this...
  24. mamaupupup
    This is such a great question! We have fraternal twin girls, both diagnosed with Celiac (along with me) so we have a gluten free home. We have a TON of "fairness" issues daily, including some food-based (for instance one was lactose intolerant for a few months, now the we have likely discovered a fructose issue for the other). My basic approach puts...
  25. mamaupupup
    ...I hate to be a worry-wort, but a lot of what you described can also be SERIOUS heart issues! I just had a family member die (young) from a heart attack and a year ago a friend's brother died of a heart attack...in memory of two who lost their lives to bad hearts, I wish, wish, wish you would rule out any possible heart issues Thinking of you (and...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.