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KMMO320

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Everything posted by KMMO320

  1. KMMO320
    Yep...my DQ Genotype says: DQ2-, DQ8- (with the negative signs after them) and next to that it says Risk: Extremely LOW. I just love the part though, that SAYS right on the serology report that the test is invalid if IgA is not sufficient and she CIRCLED where it says "Celiac Unlikely" Doesnt the fact that its tells you its not valid tell you something...
  2. KMMO320
    no no..DQ2- and DQ8-..the minus signs are for negative...its from the Prometheus labs... At the very least, I feel I have an intolerance and I just want to know that I am not imagining things. but I am IgA deficient and I feel that that means something. I am also mad the original GI for not even TRYING to help me find out WHY I am so sick, rather than...
  3. KMMO320
    I finally got my copies of my results from the GI. I read the biopsy report she wrote and it sounds like she went in specifically looking for ulcers. She wrote that i went in for abdominal pain..which I did NOT! I specifically told her I was there because of my nutrient/vitamin deficiencies and other head stuff that I felt was food related. I had chronic...
  4. KMMO320
    I dealt with that for the last 17 years. Since this is a TMI post to begin with, lol, I will just say that for the past 17 years, maybe..just MAYBE 1 out of 10 movements for me were anywhere CLOSE to "normal". So I always thought what was going on with me was normal, or normal for me, so I just dealt with it and didnt complain. This past year I started...
  5. KMMO320
    I really dont know what it was. I dont know if it was/is DH. This was way before I suspected gluten to be a problem, so I never made the connection. 2 of my 3 kids have pretty severe eczema. We have been to regular drs, dermatologists and allergists. When the flare ups get really bad, the allergist prescribes some steroids and antibiotics and thats it. One...
  6. KMMO320
    Oh My! Squirm, that look so painful! A few months ago I got a terrible rash on the same places..on my neck, behind my ears, and all over my chest. It looked EXACTLY like that. The itching wouldnt stop. I was waking up in the middle of the night scratching, waking up with blood all over my chest. Had a few blisters that were oozing. It was gross and embarassing...
  7. KMMO320
    Thank you so much. I am so enjoying all the help here and the research I have been doing on my own. My primary is very.good, I am just a new patient of hers, and she has been.instrumental in getting me to actually be involved in what is going.on with my body. Ally other drs just threw pills at me but this one runs tests and calls to check.on.me. Ive only...
  8. KMMO320
    I hace never been told I have Hashimotos...is that what you.see? I feel so out of.control of myself
  9. KMMO320
    YES!!! I used to HATE even slightly runny yokes but now I practically dream about them!!! and yes, I am IgA deficient.
  10. KMMO320
    I am currently on 175mcg of levothyroxine.. the levels she took are: TSH 8.12 (high) 0.35-5.50 uIU/mL FREE t4 1.17 (0.89-1.76 ng/dl) T3 Total 0.98 (0.6-1.81 ng/ml) Thyroid Peroxidase Autoantibodies 325 U/mL (high) (<60 U/mL) I am guessing this means the "normal" is less than 60 U/mL and I am at 325...which is high?
  11. KMMO320
    My Primary mailed me my initial blood work...the test she took which made her send me to a GI specialist in the first place. I have been reading and researching how to read it, so I will just put it here. I understand the test to be totally negative It says: Celiac Panel (Quest) TransglutaminaseIgA Autoantibodies: <3.0 U/ml (<4.0 U...
  12. KMMO320
    They should be on their.way. She mailed.them yesterday and I only live 20 mins away so I expect them tomorrow, thursday the latest. my dr gave me a paper that said the endoscopy was negative...and under reason for.endoscope, it said
  13. KMMO320
    I did have an endoscopy, she admits that once she saw my ulcers, she.assumed that was.what my problem.was. I was negative.for h.pylori though. She said she then.took A, as.in ONE,Sample of my small intestines.
  14. KMMO320
    My dr did another set of blood tests last week after she got some confusing results the first time. According to my primary care physician's blood test, it looked like I had celiac but according to my GI's test, which she did through Prometheus, it came up negative. As in..the paper work had the word NEGATIVE FOR CELIAC on it. She didnt show me any levels...
  15. KMMO320
    I am in the same boat as you, I had testing done and everything came back "normal" My dr had no answer as to why I felt better when I went Gluten Free for 3 weeks. She made me feel like it was in my head that I felt better. So I came home and started eating gluten. I dont get deathly ill, I just feel BAD. like not normal, "off" and when I went gluten-free...
  16. KMMO320
    I went through testing only to have everything come out negative. I KNOW what I feel and I went gluten-free and felt amazing. My Dr said she took TWO samples during my biopsy, which is nothing..she should have taken at least 4!! I am so mad, I cant retake the Endo because it cost me 1000 out of pocket!! So I am at a crossroads..do I just eat gluten because...
  17. KMMO320
    according to tests, I am not Celiac and according to my Dr I have no problems with Gluten at all, despite the fact that I cut out all gluten for 3 weeks and felt SOOO GOOD! She swears its not gluten but something else. All I know is what I know, you know? I have been back and forth with doubting myself, after all she IS a doctor! @@ but today I ate some...
  18. KMMO320
    You described me exactly. Yesterday, I found out all my results which were.negative. I told my dr..but I feel.better being gluten-free how do you explain that. She said I cant...all my evidence says you do not have.a.gluten issue. I was not.gluten.free until after testing.. I had a.bad day yesterday and today. Im doubting everything. I.feel like I imagined...
  19. KMMO320
    Another thing... I have a few ulcers, which I am happy she found. She prescibed me prilosec and I immediatley started feeling better. Today at the follow up, she says I was negative for H. Pylori, which causes most ulcers..so that must mean that I take too much advil for my migraines. She said 3 times a day every day is too much! I said, I never said...
  20. KMMO320
    Thats what I asked my dr too...and she said oh no, it will be fine. Whatever. I decided I am done. I will just do what I know works from now on.
  21. KMMO320
    Oh yeah, it was full gluten cornbread. I was so upset when I came home, I said oh well the Dr says I am not Celiac OR intolerant and to start eating gluten again so fine!!! I felt a little bad but not terrible...so tonight I also ate full gluten chinese food and NOW I feel full blown awful. Going to bed soon. After I calmed down, my husband said if I...
  22. KMMO320
    Also, my primary dr did a blood test..I dont think it was a full panel..and it showed signs of celiac disease, which is why I got sent to the Gastro in the first place. My Gastro today said that all the blood work she herself took, showed NO signs of celiac disease at all..which contradicted what my Primary took..which led her to believe that there...
  23. KMMO320
    I think she thought shed save me money, she kept saying how expensive being gluten-free was. I didnt mean to discount intolerance, I apologize. And believe me, i.feel so miserable most days, I get it. Feeling lousy.now after.eating all that cornbread lol...sigh...but seriously, thanks all for being here. I am going.to keep plugging away. i am thankful at...
  24. KMMO320
    Thanks everyone. I just really thought Id get an answer ah well, i should be happy.
  25. KMMO320
    Oh...my b12 and iron were great..but vitamin D was.very very low. She.prescribed.some high.dose for me
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