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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Solandra
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ARCHIVED Hormones, Hashi's And Celiac- How Does This All Work Together?
Solandra replied to icelandgirl's topic in Related Issues & Disorders
Open Original Shared Link1% Celiac in the general population, 2-4% in the Hashimoto's population. We have 2-4x the chance of having Celiac, but that's sill only 2-4 out of 100 people. I think there's a lot of BS out there promulgated by the "gluten is evil" trendy people that we need to sort out. Gluten isn't an irritant unless you're actually allergic to...- 144 replies
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- hashimotos
- hormones
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ARCHIVED Confused About Whether Or Not To Get Biopsy
Solandra replied to rach7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was mildly high on the AGA IGA test, 22 and normal is under 19, but the TTG tests were at 4 and 5, and anything under 19 is normal. Since I have an autoimmune disease, my Endo said that can affect the results. This was a little over two years ago. I went gluten free and didn't notice a difference, so I'm adding it back in and rerunning the blood tests and... -
ARCHIVED Hormones, Hashi's And Celiac- How Does This All Work Together?
Solandra replied to icelandgirl's topic in Related Issues & Disorders
The problem with treating FT3 is it changes every day. My Endocrinologist doesn't even bother with it since it's varies so widely.- 144 replies
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ARCHIVED Hormones, Hashi's And Celiac- How Does This All Work Together?
Solandra replied to icelandgirl's topic in Related Issues & Disorders
The only relation in the actual scientific medical literature that I've personally found is that the general population has a Celiac rate of about 1% while the Hashimoto's population has an occurance of about 2-4%. So the likelihood that you can have Celiac is about 2-4x more likely if you have Hashi's... BUT! That's still only 2-4 people out of 100! So,...- 144 replies
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ARCHIVED Want To Know About Anti Gliadin Antibody Test
Solandra replied to FoggedIn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
To be honest, I don't notice too much of a difference. I had some pizza last night, no stomach upset, nothing out of the ordinary. So I'll get another blood test next year. See, it's tough to know what's related to what, since a lot of symptoms I've had could just be related to Hashimoto's. Which, some other studies I've read say Celiac occurs in about 1... -
ARCHIVED Want To Know About Anti Gliadin Antibody Test
Solandra replied to FoggedIn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I found this article to be interesting: Open Original Shared Link It said that five people with positive AGA IGA antibodies but negative for TTG went on to have positive biopsies, but 61 were positive AGA, negative TTG and negative biopsies. I was only positive on AGA, so I'm thinking I should probably challenge and go on to get a biopsy. Diagnosis on... -
ARCHIVED Do You Ever Break Down And Eat Gluten Every Once In A While?
Solandra replied to supersquatchy's topic in Coping with Celiac Disease
I have a lot of trouble because I don't really have any symptoms like other people.. I don't have to spend all night in the bathroom or anything. I've been having a bad day today and went to Trader Joe's and saw all their yummy things.. I got my son and husband some bagels that look delicious, and I got some goat cheese with cranberries and crackers for them... -
ARCHIVED Celiac Night Vision
Solandra replied to PCB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is interesting, I noticed some night blindness in the past couple of years, worse in one eye. I never used to wear glasses before and I suddenly had to get them for distance at 30... before that, I was pretty much 20/20. How frustrating that it could be related.- 50 replies
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- malabsorption on gf diet
- night vision
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ARCHIVED Is This Celiacs? Mystery Illness.
Solandra replied to dan95's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sounds like they either may have been contaminated or you also have a corn allergy. I would suggest getting some allergy tests and maybe try a paleo type diet and see how you feel. No dairy, beans, peanuts or grains, lots of veggies and fruits and meats. Basically it just cuts out common allergens. -
ARCHIVED Anxiously Anticipating Side Effects Of First Real Glutening In 29 Months
Solandra replied to Raywuwei's topic in Coping with Celiac Disease
Yeah, it's pretty annoying, but I just remind myself that it can cause long term neurological issues as well as osteoporosis. Most doctors don't even know that, they just think it gives you a stomach ache and that's it. -
ARCHIVED Anxiously Anticipating Side Effects Of First Real Glutening In 29 Months
Solandra replied to Raywuwei's topic in Coping with Celiac Disease
I think you're freaking yourself out. You spit it out. I have anxiety, too, so I understand that we can go full on hypochondriac.. which is what I think you're doing. I think a lot of Celiac people freak themselves out, though. Sometimes, stomachs just get upset from other things, but everyone always assumes they got glutened. Just relax, and remind yourself... -
ARCHIVED Coeliac Or Gluten Intolerant?
Solandra replied to Starla8's topic in Food Intolerance & Leaky Gut
I've had Hashimoto's and never retested my antibodies.. but they were around 3500. I don't think diet affects them, I think as long as my TSH is good I feel OK. -
ARCHIVED Is This Celiacs? Mystery Illness.
Solandra replied to dan95's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It can last a week or two for some people, up to a month for others. Some people say it takes 6 months to feel completely better. -
ARCHIVED Test Interpretation?
Solandra replied to shihtzujane's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would say you have Celiac by the test results, the genes, and the fact that you developed Osteoporosis early. 6 weeks of gluten prior to an endoscopy isn't enough.. They usually have you shoot for 12, so that's probably why they didn't see any damage. I'd keep going gluten free if I were you. -
ARCHIVED See-Through Scalp In Frontal Crown Area
Solandra replied to egger's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A girl at my work has that problem and she's had hypothyroidism since she was a kid. She started using a new shampoo and her hair is looking thicker and better. I don't think she has Celiac, but she does have soy allergy. -
ARCHIVED Gastro?
Solandra replied to Solandra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've read that, some say Paleo, even. But my Endocrinologist didn't say anything about it. She said also if I didn't have tummy problems to keep eating gluten. SIGH. -
ARCHIVED Gastro?
Solandra replied to Solandra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah I'm worried about that! Not really sure I want to even mess with it, maybe I'll just continue operating under the assumption that I need to be gluten free. -
ARCHIVED Gastro?
Solandra replied to Solandra's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I emailed him back and reminded him that he told me a "weak positive was still a positive" a couple of years ago and that I'd like to see what else I can do. I'll probably see if I can find a doctor who knows more, and a GI as well. -
ARCHIVED Is This Celiacs? Mystery Illness.
Solandra replied to dan95's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Could be, trial and error is another method a lot of people end up using. If it makes you feel crappy, don't eat it, you don't need to have a doctors approval. -
ARCHIVED 5 Months Out The Good, Bad And The Ugly.
Solandra replied to Serielda's topic in Coping with Celiac Disease
Yeah, I was vegan for a while, and I have some vegan gluten free cookbooks, but it's definitely going to be more difficult if you can't have ANY grains, especially if you can't have things like tofu. You would basically just be eating vegetables and fruits. That might get boring! -
ARCHIVED 5 Months Out The Good, Bad And The Ugly.
Solandra replied to Serielda's topic in Coping with Celiac Disease
Quinoa is a seed, not an actual grain. I'm not sure what kind of doctor you have. Sounds like a Naturopath. If you're on a Paleo diet, which it sounds like, you can make stuff with coconut flour. I got a good cookbook called Against All Grain just for some different things to try, you might want to look into that. Or finding a different doctor, because rice... -
ARCHIVED Extra Wide Stools, Then Extra Long Stools
Solandra replied to egger's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Weird, I wonder if that's my sons problem. He's been clogging the toilet for years. -
ARCHIVED Is This Celiacs? Mystery Illness.
Solandra replied to dan95's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
TTG is the Tissue Transglutaminase so you were tested for that. I don't think Celiac would cause the low T4, your T3 and TSH are fine, BUT, like I said, you might want to have them test you for Hashimoto's disease, which is an antibody test, and that can give you some weird numbers like that. Your thyroid hormones vary from day to day, and you can only get... -
ARCHIVED Is This Celiacs? Mystery Illness.
Solandra replied to dan95's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, a low T4 wouldn't cause Celiac. T4 is converted into T3. If you didn't have enough T4, your TSH would be high. Low T4 doesn't CAUSE anything, but thyroid problems can be CAUSED by Celiac. I think mine were. However, you could have them test for thyroid antibodies. My Hashimoto's Thyroiditis wasn't diagnosed off TSH or T3/T4, it was caught because I had... -
ARCHIVED Is This Celiacs? Mystery Illness.
Solandra replied to dan95's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your thyroid actually looks normal to me. My TSH was around 5 and doctors were ignoring it. Mine is currently .87 with meds, and Endocrinologists generally want it between 1-3, so you're good. As far as your symptoms, I would say some type of allergy, it may not be gluten but you may be reacting to wheat itself or another food allergen. You might want to...