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happygirl

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Everything posted by happygirl

  1. happygirl
    These aren't the tests that should be run for Celiac. These are the tests: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level.
  2. happygirl
    The other promising Celiac pill is described here: Open Original Shared Link
  3. happygirl

    ARCHIVED How Do We Make This Better?

    happygirl replied to cupp125's topic in Doctors

    NIH launched an awareness campaign among medical professionals because of many of the problems you described. Use this info to educate your doctors. campaign: Open Original Shared Link press release: Open Original Shared Link NIH consensus statement: Open Original Shared Link There is a lot of research going on right now, regarding ways to break...
  4. happygirl
    One of yours is now pinned, and I am setting the other one to invisible. We don't allow duplicate posts. I didn't want you to think it disappeared.
  5. happygirl
    A short piece of advice: Get copies of your medical records, including bloodwork for Celiac and biopsy reports. Call a local Celiac support group and ask for an experienced GI that their members use (that is educated about Celiac). Take your records and get to a doctor that will be able to provide the follow-up care and support that you need. And...
  6. happygirl
    Beagle, I checked all ten posts of yours, and they are all showing up in threads that are already pinned. If you click on your name, you can view all your posts and topics. Let us know if there are other things missing. I went through the board and did not find any unpinned topics of yours.
  7. happygirl
    You may want to ask your doctor if your IgA total (42) is considered IgA deficient. If you are IgA deficient, the AGA IgA, EMA IgA, and tTG IgA tests won't be as accurate for you. Keep eating gluten until your appointment and all testing is completed. Ask your doctor about the new pill cam for diagnosing Celiac. It appears to be more accurate than...
  8. happygirl
    By FDA law, wheat, if used in natural flavors, must be disclosed and clearly listed. That leaves rye, barley, or oats. I'm not sure if thoe would be ingredients that are used in a popsicle. Personally, I would eat it.
  9. happygirl
    April really IS a good month for everyone on here! In my world, April brings me the birthday of sweet niece # 1, the 39th anniversary of my wonderful parents, and birthday #27 for Eric! Susie, Hope you have some time to recover from your trip!!!
  10. happygirl
    Are you using the "google search" function at the top? If you use that search tool, you don't have to worry about the "3" letter rule.
  11. happygirl
    From: Open Original Shared Link Q: Why do my family members need to be screened for celiac disease? When the diagnosis is established in one family member, their first- degree relatives (parents, siblings and children) should have blood tests for celiac disease. This is because at least 10% of family members will have the disease, even if they are asymptomatic...
  12. happygirl
    I believe in the US, it is gluten free, and in Canada, they have a different version, and it is not.
  13. happygirl
    Just wanted to say hi Josh and hope you are doing well
  14. happygirl
    Scott, I'm not sure where in PA you are. If you are near Harrisburg/Hershey, they have a great Gluten Intolerant Group (G.I.G). Harrisburg: Gluten Intolerance Group
  15. happygirl
    If you are eating gluten and you do have Celiac, you have malabsorption which can cause a lot of problems/symptoms. So it may not necessarily be a 'certain' food, but the fact that you have untreated Celiac.
  16. happygirl
    If you post the ingredients, I'm sure someone would be happy to help you "interpret" them.
  17. happygirl
    Welcome to the board, Ben. Not as much is known about "silent Celiac" as compared to "symptomatic Celiac"---considering its often a struggle to get a very symptomatic Celiac diagnosed, even less is known about those without symptoms. 97% of those with Celiac don't know they have it. There is a lot known, but even more is unknown. Dr. Green says that...
  18. happygirl
    Do you know which blood tests were run, and which ones were positive? Some of the tests are more specific for Celiac than others. Were you eating gluten at the time of the testing? Do you know how many biopsy samples were obtained during the endoscopy? If too few samples were taken, it can lead to a false negative, as Celiac is a "patchy" disease...
  19. happygirl
    from: Open Original Shared Link Q: What follow-up care should I have after diagnosis? Patients need follow-up after diagnosis. Symptoms that persist after commencing the diet require elucidation and appropriate treatment. Bone density should be measured because osteopenia and osteoporosis are common complications of celiac disease. Iron, folic acid...
  20. happygirl
    Welcome to the board! The best way to know if something is safe is to learn how to effectively read labels. Here are not safe ingredients: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html Here are safe ingredients: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html Here is a list of companies that will clearly list...
  21. happygirl
    Open Original Shared Link hope this helps!
  22. happygirl
    Great article about Celiac and teeth problems, including a reference to a new study: from: Open Original Shared Link Dental Enamel Defects and Celiac Disease Celiac disease manifestations can extend beyond the classic gastrointestinal problems, affecting any organ or body system. One of these manifestations
  23. happygirl
    Discuss with your doctor your symptoms. Discuss how you have a family member with Celiac (which increases your risk). Discuss how Celiac is very underdiagnosed, and is often misdiagnosed as other things, and how 97% of those with Celiac don't know they have it (Open Original Shared Link) Discuss the Celiac bloodwork that you would like run: (taken from...
  24. happygirl
    Hi Michelle, Welcome to the board! Make sure that you keep eating gluten until you complete your endoscopy/biopsy. Ask your doctor to take 4-6 biopsy samples, since the damage in the intestines from Celiac is 'patchy.' You may also want the other Celiac bloodwork run---discuss it with your doctor. Anti-gliadin antibodies (AGA) both IgA and IgG...
  25. happygirl
    Neocate and Elecare, and other "elemental" foods, often have to be ordered by the pharmacist. Good luck, and please keep us updated on Alexander's appointments and what the doctor has to say regarding many of the ideas posted here.
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