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happygirl

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Everything posted by happygirl

  1. Celiac is a life-long condition. I recommend www.celiacdiseasecenter.columbia.edu and www.celiaccentral.org for more information (besides this site!)
  2. Yes, you do need to be eating a full/regular gluten diet for a few months for the tests to be accurate. https://www.celiac.com/articles/5/1/How-is-...osed/Page1.html "All of the laboratory tests that can be performed are strongly affected by a gluten-free diet. Tests will return negatives if the individual has been on a gluten-free diet for some time...
  3. Patti, Can I just say that I would have NEVER thought that you ever smoked. Guess we all learn something new every day.....
  4. You might want to contact pixiegirl --- she travels a lot for her job. Its certainly not impossible. However, you will have to take charge of your health. Ordering food that you know isn't safe will not make your new job any easier.
  5. I buy many products from the companies listed in this link. They will clearly list gluten. Open Original Shared Link
  6. No. Spelt is not safe for those gluten free. Open Original Shared Link
  7. VCU also has experienced GIs. They are participating in a Celiac research study.
  8. Are you eating out at all? Have you checked your medications and personal care products for gluten? Are you careful about cross-contamination? Best of luck, and I hope you find answers to your symptoms.
  9. Open Original Shared Link "Common findings include (1) iron deficiency with or without anemia; (2) behavioral disturbances, such as tendency to depression, irritability, or impaired school performance in children; (3) impaired physical fitness,
  10. From the NIH Consensus Statement: Open Original Shared Link "In addition, a variety of neuropsychiatric conditions such as depression, anxiety, peripheral neuropathy, ataxia, epilepsy with or without cerebral calcifications, and migraine headaches have been reported in individuals with celiac disease."
  11. Hepatogastroenterology. 1996 Nov-Dec;43(12):1513-7.Links Anxiety and depression in adult untreated celiac subjects and in patients affected by inflammatory bowel disease: a personality "trait" or a reactive illness?Addolorato G, Stefanini gluten-free, Capristo E, Caputo F, Gasbarrini A, Gasbarrini G. Institute of Internal Medicine, Universita' Cattolica...
  12. Am J Gastroenterol. 1999 Mar;94(3):839-43.Links Depression in adult untreated celiac subjects: diagnosis by the pediatrician.Corvaglia L, Catamo R, Pepe G, Lazzari R, Corvaglia E. Department of Pediatric Gastroenterology, St. Orsola Hospital, University of Bologna, Italy. Untreated celiac disease can lead to serious behavioral disorders. We describe...
  13. J Affect Disord. 2007 Apr;99(1-3):117-26. Epub 2006 Oct 6. Links Coeliac disease and risk of mood disorders--a general population-based cohort study.Ludvigsson JF, Reutfors J, Osby U, Ekbom A, Montgomery SM. Department of Paediatrics, Orebro University Hospital, Sweden. jonasludvigsson@yahoo.com BACKGROUND: Earlier research has indicated a positive association...
  14. Br J Gen Pract. 2007 Aug;57(541):636-42. Erratum in: Br J Gen Pract. 2007 Sep;57(542):748. A case-control study of presentations in general practice before diagnosis of coeliac disease. Cannings-John R, Butler CC, Prout H, Owen D, Williams D, Hood K, Crimmins R, Swift G. Department of Primary Care and Public Health, Centre for Health Sciences Research...
  15. Open Original Shared Link Meeting dates/location have been updated.
  16. They are NOT investigational at all----you are right. Good luck! Hopefully your doctor will be able to clear this up.
  17. Thanks for sharing this! Great news that numerous areas of research are being investigated (breaking down gluten (this pill) and stopping the autoimmune reaction (Alba Therapeutics)) Research is always needed---the more we know, the better!
  18. Any experienced doctor will tell you, Dr. Green or others, for testing to be accurate, that you need to be consuming gluten for an extended period of time. Which blood tests were run? Did the doctor performing the biopsy take multiple biopsies in multiple locations? You may not have had the full panel run, and your dr. may not have taken enough...
  19. It will get better! Also, once you heal, you may be able to tolerate dairy products. Its not necessarily a long-term problem. "Lactose intolerance may be a transitional problem until the villi heal." Open Original Shared Link Hang in there.
  20. You may want to discuss Dapsone with your doctor. Open Original Shared Link "What is dermatitis herpetiformis? Dermatitis herpetiformis (DH) is the skin manifestation of celiac disease. All patients with DH have celiac disease. It is an intensely itchy rash that usually occurs in the same place for each patient. This may be on the hands or fingers...
  21. At least Amanda and I.....who else? By the way, Amanda, you definitely have to go see Billy Joel. Great, great show.
  22. Ghee, which is clarified butter, is casein free. For some things, people replace butter with Spectrum Shortening.
  23. Congratulations!
  24. Prometheus labs. Genes are HLA-DQ2 and HLA-DQ8 Bloodwork for antibodies: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level.
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