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happygirl

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Everything posted by happygirl

  1. happygirl
    You have a few options here. 1. Take your lab work and pathology report to a doctor that has more experience in Celiac. You can get some names by contacting your local support group and asking for who their members use. A more experienced doctor may have a different interpretation of your results, or may ask for more testing. 2. Try going gluten...
  2. happygirl
    It is one of the better tests out there, yes! However, blood tests don't pick up on every case, and there are people who had negative bloodwork and a positive biopsy. The endoscopy will look for other things, besides Celiac, so it may be worth it if you are having symptoms. If you have the biopsy, discuss with your dr. that you want 4-6 biopsy samples...
  3. happygirl
    Patti, I know you'll make the right decision regarding the job. Just take it all one day at a time.....and breathe They would be SO lucky to have you and I guarantee their patients would think they hit the jackpot having someone as caring like you working there. I love Bradford Pear Trees!!!! You'll have to post pictures!
  4. happygirl
    If you don't see wheat, rye, barley, barley malt, or oats on the ingredient list of these companies, its not in there. Nothing hidden, etc. Just need to look for the above ingredients. Makes life a lot easier. Open Original Shared Link
  5. happygirl
    L-carnitine has been shown, in a pilot study, to help the fatigue symptoms in Celiac patients. Its also used for many other health concerns. Dig Liver Dis. 2007 Oct;39(10):922-8. Epub 2007 Aug 10. Links L-Carnitine in the treatment of fatigue in adult celiac disease patients: a pilot study.Ciacci C, Peluso G, Iannoni E, Siniscalchi M, Iovino P, Rispo...
  6. happygirl
    See this site: Open Original Shared Link for PDFs of many of Dr. Fasano's journal articles. Use www.pubmedcentral.nih.gov to find full text articles about Celiac. www.pubmed.gov usually only has the abstract of the article.
  7. happygirl
    Congratulations, Elizabeth! That is quite the milestone!!!!!
  8. happygirl
    Better Batter Gluten Free Flour is awesome and can ship to you directly.
  9. happygirl
    When you pursue a second opinion, ask about testing for Celiac Disease, as well as Eosinophilic Disorders (www.apfed.org). Best of luck!
  10. happygirl
    Maltodextrin in food products is usually made from corn/"maize." However, food labeling laws don't require it to list if it is from corn (which is why you don't always see the source). However, anything made from wheat IS required to be disclosed. If it is made from wheat, you would see, "wheat maltodextrin" or "maltodextrin (wheat)" If you have any...
  11. happygirl
    It sounds like the test done was the total IgA level. If she is below the reference ranges, she may be IgA deficient, which is common among Celiacs and makes blood testing for Celiac more difficult. Was the other bloodwork run for Celiac (IgA level isn't a 'test' for Celiac)...things like EMA IgA, tTG IgA, AGA IgG, and AGA IgA. If she is IgA deficient...
  12. happygirl
    Have you had your Celiac bloodwork re-done to check that your levels have returned to normal?
  13. happygirl
    Welcome to the board! So happy you decided to join. Do you feel like you "know" many of the members already? Please chime in----as you can see, there are always so many who are in need of help. Not everyone knows every answer, but everybody chipping in where they can makes a huge difference to that *one* person that needs help....
  14. happygirl
    It will all be ok. Welcome to the board! Unsafe ingredients: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html Safe ingredients: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html List of companies that will clearly disclose any gluten source on its label. If you don't see wheat, rye, barley, barley malt, or oats...
  15. happygirl
    If the goal is to eliminate your symptoms, then apparently the gluten free diet is helping. If you go gluten free and continue to have symptoms, you may need to consult a medical professional again. How many biopsy samples did they take? Also, there is a new study out that shows that the biopsy is unfortunately, not as accurate as we may like. Open...
  16. happygirl
    You scored "less than 1" on the EMA IgA, and the reference range for "normal" is 0 - 19.99. With your next doctor, bring the list of tests that you want done, and request that they are. You need the total IgA test done, otherwise your risk of false negatives is higher.
  17. happygirl
    Some people feel better shortly after they start the diet. However, many do not. Especially if you have a severe case, it can take many months to fully heal. Not meant to be discouraging, but hopefully the information will help you understand why your symptoms don't disappear overnight. Hang in there!!! Open Original Shared Link "Q: I've just been...
  18. happygirl
    You'll need to get a copy of the pathology report to see what was identified through the biopsy, and determine how many biopsy samples were taken. Also get a copy of the bloodwork and find out which tests were run....often, the full panel wasn't run. Don't worry, you aren't back to square one. You just need all of the information. Plus, if you...
  19. happygirl
    The list that you referred to on celiac.com is what you need to look for. Chances are, you will never see 90% of the ingredients in your basic everyday food shopping. You need to look for wheat, rye, barley, barley malt, or oats on the ingredient labels of the companies that won't hide it. It will be clearly listed.
  20. happygirl
    Open Original Shared Link Open Original Shared Link Open Original Shared Link
  21. happygirl
    As mentioned earlier, in the US, if wheat is in the product, it is required by FDA Food Allergen Labeling Law to be listed. If it was derived/contained wheat, it must be listed.
  22. happygirl
    From: Open Original Shared Link "Q: What is dermatitis herpetiformis? DH is the skin manifestation of celiac disease. It is characterized by an extremely itchy, watery blister or rash that is found on the limbs, trunk, face and scalp. The blisters are often mirrored on both sides of the body or face and reoccur in the same areas. The eruptions are often...
  23. happygirl
    The test you are thinking about is the total IgA (or the last test on your list), but that test isn't "for" Celiac. It merely tests to see if you are IgA deficient. If you are IgA deficient, then you can't produce enough IgA antibodies, which makes the other tests (particularly the AGA IgA, the tTG IgA, and the EMA IgA) tests unreliable - if you are IgA...
  24. happygirl
    duplicate post.
  25. happygirl
    You will probably be fine. Make sure you get the full panel of testing: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. You should be tested, regardless of symptoms. Many people with Celiac don't have symptoms, so that is why its important...
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