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happygirl

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Everything posted by happygirl

  1. happygirl

    ARCHIVED Lab Results

    happygirl replied to share0810's topic in Doctors

    What are the reference ranges for the IgA and tTG tests? It appears that you are in normal range for the IgA test (which doesn't test for Celiac, it just measures your ability to make IgA antibodies). It appears that your tTG, which is a great test for Celiac, is positive. Your doctor will probably want to schedule a biopsy to confirm Celiac damage....
  2. happygirl
    HLA-DQB1 Molecular analysis, Allele 1 0201 is HLA DQ 2, which is a Celiac gene. Enterolab says the other one is a gluten sensitive gene. There is considerably less research or consensus on this (at this point). Open Original Shared Link Open Original Shared Link Open Original Shared Link
  3. happygirl
    For those with Celiac: Open Original Shared Link Q: I feel hungry all the time. Is that normal? Yes, it is very common. Your body is making up for the time it wasn't fully absorbing foods. Hunger levels tend to normalize within the first months after eliminating gluten and beginning a well balanced diet of gluten-free foods.
  4. happygirl
    The tTG IgA and EMA IgA tests are the most sensitive/specific tests for Celiac. However, you can get a false negative if you are IgA deficient. You may want to ask your doctor to test for the "total IgA." (If you are IgA deficient, you won't be able to test positive - if you have it - for Celiac using the IgA tests). for more info on blood tests/IgA...
  5. happygirl
    Happy Mother's Day to all of the wonderful silly moms here special love to Patti
  6. happygirl
    Not sure if you can do sorghum, but Bob's Red Mill ingredients are: garbanzo bean flour, potato starch, tapioca flour, whole grain sweet white sorghum flour, fava bean flour If that doesn't work for you, here are some ideas that might help you mix/match what you can have: Open Original Shared Link
  7. happygirl
    If he had elevated eosinophils, did they discuss the eosinophillic disorders? (info at www.apfed.org)
  8. happygirl
    Ditto.
  9. happygirl
    Here's some lists that will help you learn to read labels. Gluten free eating can be summed up by this: 1. Know what the ingredients are in every item that goes into your mouth. 2. Know how it was prepared (when eating out, at a friends house, etc) in regards to cross-contact with gluten containing foods. If you don't know the ingredients, or...
  10. happygirl
    "Because my son was diagnosed with Celiac, I learned that leading Celiac physicians recommend that all first degree relatives are tested, regardless of symptoms, because of the increased risk of having Celiac. I am interested in talking with you today about having the full Celiac blood panel run." Here are the tests you want run: Open Original Shared...
  11. happygirl
    Open Original Shared Link Don't know if it is metro accessible. You may want to contact them for more info, as well.
  12. happygirl
    Print out information from the link (the part "Serological Testing) and bring with you. Its from a leading Celiac researcher at Columbia University. Open Original Shared Link Serologic panel Of the commercially available serologic tests that aid in the diagnosis of celiac disease, no one test is ideal. Using multiple serologies increases the diagnostic...
  13. happygirl
    Open Original Shared Link may be a more up to date alternative.
  14. happygirl
    Topics merged together.
  15. happygirl
    Can gluten cause constipation instead of loose stools? Yes. Open Original Shared Link "The vast majority of individuals with celiac disease have little in the way of gastrointestinal symptoms or have symptoms that may receive a diagnosis of irritable bowel syndrome. While the classical symptoms include diarrhea, weight loss and edema, other patients may...
  16. happygirl
    Duplicate thread: I merged responses together. Yes, you can still have Celiac. While most Celiacs have DQ2 or DQ8, there are Celiacs (2-5%) that don't have these genes. There is increasing research on what other genes are linked to Celiac as well.
  17. happygirl
    You can always find all of your own posts or topics, regardless of where they were posted and/or moved to, by clicking on your name and looking through your posts/topics. When you click on a topic, it will say where it is and what the title of the thread is. Hope that helps.
  18. happygirl
    However, the tTG and EMA tests are correlated (to some degree) of villous atrophy. If you have villous atrophy after this long of gluten free damage, then the bloodwork *probably* won't show anything different than what was seen in the biopsy. Another option would be to have another pathologist review your biopsy slides, and then a GI with experience in...
  19. happygirl
    Open Original Shared Link this post was moved to a different area by moderators. If its not one of these, please let us know what the topic title was.
  20. happygirl
    I really like the "Gluten Free Pantry" decadent chocolate cake mix with homemade buttercream icing. You can find it in many stores or order from various websites.
  21. happygirl
    For some good info to get you started about DH/Celiac, see Open Original Shared Link "Less than 10% of patients with DH have GI symptoms, yet if you have DH, you always have celiac disease. "
  22. happygirl

    ARCHIVED Prednisone & Azathioprine (imura)

    happygirl replied to a topic in Doctors

    If you can't go to Mayo, there are other Celiac specialists that may fit your needs..... www.celiacdiseasecenter.columbia.edu The doctors at Mayo, or other Celiac specialists should be able to direct you to someone that will fit your situation. You may want to have your doctor contact them. Best of luck and I hope that you find some answers.
  23. happygirl
    There are three main national Celiac groups that have local support groups across the country: CDF: Open Original Shared Link GIG: Open Original Shared Link CSA: Open Original Shared Link Hopefully you can find something that will meet your needs.
  24. happygirl
    As referenced above, not as weird as you think: https://www.celiac.com/articles/1077/1/39-o...bese/Page1.html
  25. happygirl
    Janet---don't tell anyone
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