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happygirl

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Everything posted by happygirl

  1. Happy, Happy Birthday Scott! Enjoy your day.
  2. Researchers believe they have finally answered a basic question about the cause of celiac disease -- where in the body does the wheat protein gluten enter one's system? A study published in the July issue of Gastroenterology identifies the CXCR3 receptor in the intestine as a gluten gateway. When people with celiac disease eat gluten, the protein triggers...
  3. I'm slowly coming out of hiatus .... and then ... I see that. May go away again MG ---- OBX?
  4. When the forum goes out next time - add me to the silly email list for updates!!! BTW, if certain mods do have other powers, would someone clue me in
  5. No one moderator has more 'rights' than any other moderator here.
  6. go to pubmed.gov and search 'celiac epilepsy' These are just a few. Pract Neurol. 2008 Apr;8(2):77-89. Links Neurological complications of coeliac disease: what is the evidence?Grossman G. Clinical Trials Unit, Neurological Institute, Lakeside 3200, University Hospitals Case Medical Center, 11100 Euclid Avenue, Cleveland, Ohio 44106, USA. gerald.grossman...
  7. She is a great and reliable source for information.
  8. Apparently it is pretty common. "Q: I feel hungry all the time. Is that normal? Yes, it is very common. Your body is making up for the time it wasn't fully absorbing foods. Hunger levels tend to normalize within the first months after eliminating gluten and beginning a well balanced diet of gluten-free foods." From: Open Original Shared Link
  9. It worked --- can you see it Patti?
  10. Patti, you'll need to either crop it or re-size it. Send it over - I'll help.
  11. Not a recipe, but our favorite is Gluten Free Pantry Coffee Cake Mix. Absolutely delicious. Open Original Shared Link
  12. See this article for why the biopsy is NOT as accurate as doctors hope they are. Take this and discuss this with your doctor. Open Original Shared Link "Ninety-two percent had visible damage detected by capsule endoscopy while upper endoscopy only detected visible damage in 55% of the patients." (Capsule endoscopy is not what you had.) Study...
  13. https://www.celiac.com/articles/21484/1/Stu...Diet/Page1.html
  14. Stool testing cannot diagnose Celiac Disease. Celiac Disease is currently diagnosed by bloodwork/biopsy. Stool testing can indicate gluten sensitivity. So can a diet challenge like the one you have done, that has provided you with answers on how your daughter responds to the diet (positively!)
  15. Are you looking to order it yourself or order it through your doctor?
  16. With positive bloodwork and a positive biopsy - that is the gold standard for a Celiac diagnosis. Try finding a local Celiac support group - they can put you in touch with other local families with Celiac. Hang in there! Good resources: www.celiacdiseasecenter.columbia.edu www.celiaccentral.org www.celiac.org www.celiacdisease.net
  17. My sweetie proposed to me in N.H. ....
  18. i certainly have no idea who those sillies could be?!
  19. Open Original Shared Link info about testing that you can take with you to your doctor for genetic testing.
  20. You can have genetic testing for Celiac, ordered by your doctor, through an in-network lab for your insurance, so that you don't have to pay out of pocket.
  21. What blood tests did your doctor run for Celiac?
  22. Neocate is gluten free. Has your doctor talked about eosinophillic disorders? Open Original Shared Link, Open Original Shared Link, and www.apfed.org
  23. While I can't respond to your exact question, here is a website that may help you in the future re: gluten free status of drugs. Open Original Shared Link Welcome to the board!
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