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happygirl

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Everything posted by happygirl

  1. happygirl
    The best explanation I have read about AT-1001 is Open Original Shared Link
  2. happygirl
    Maltodextrin is a term that is often confused by Celiacs. It is gluten free (from corn, and has nothing to do with malt). If it did have wheat, it would say Maltodextrin-wheat. Modified corn starch is safe. MSG is safe for Celiacs. It does not contain gluten. If it was derived from wheat, it would be required to say "MSG-wheat." We use Ken's...
  3. happygirl
    Open Original Shared Link Open Original Shared Link
  4. happygirl
    There is no "rule" or "law" determining what gluten free means. It is being worked on in the FDA now. But "no" possibility is virtually impossible. lots of things aren't produced in a gluten-free facility that don't mark it. Some are marked. Doesn't mean that they don't take every precaution, and it doesn't mean that wheat is prepared right next to...
  5. happygirl
    It depends on if you went gluten free or not, and what the purpose is of testing.
  6. happygirl
    Austin Grill is our absolute favorite restaurant...luckily there are 8 of them in the DC metro area. They are absolutely awesome, and I'm an extremely sensitive Celiac. Legal Seafoods is great, also! M&S is pretty $$, but I've never heard of Great Sage, so I'll look into it. Thanks for the info-I appreciate it.
  7. happygirl
    Gina, Can you share what restaurants are safe in B-more? Thanks.
  8. happygirl
    Welcome to the board! There is a support group in your area. You may want to contact them for recommendations for doctors, nutritionists/dieticians (if there are any that are knowledgable, sure, go.........but many don't understand Celiac) Chesapeake Tidewater Celiacs Trish Cyrs (757) 495-9622
  9. happygirl
    Add some homemade butter cream icing to the top and some ice cream on the side, and that's close to heaven.
  10. happygirl
    Susie, poor thiiiiiiiing! I hope you feel better!!!!!!! There is nothing worse then that. Hope it vanishes. Did you really say that with a straight face and believe it? TB is my worst nightmare, gluten-wise. I think I get glutened driving by that place.
  11. happygirl
    Here is some good info: Open Original Shared Link How is celiac disease diagnosed? Recognizing celiac disease can be difficult because some of its symptoms are similar to those of other diseases. In fact, sometimes celiac disease is confused with irritable bowel syndrome, iron-deficiency anemia caused by menstrual blood loss, Crohn
  12. happygirl
    There are various opinions on this....I can't answer that. I would be concerned that your doctor isn't up to date on Celiac, though, since he didn't run the "best" tests, nor did he suggest a biopsy. If you were tTG or EMA positive, I'd say that you probably are a Celiac. The AGA IgA and IgG are not the most specific/sensitive tests. They may also...
  13. happygirl
    Research seems to indicate that you need to be eating gluten for longer than a week. If you are going to still do the procedure, I'd eat a whole heck of a lot of gluten (more than four slices of bread per day!) I know it may make you miserable, but there isn't a point to the procedure unless its done correctly. You will have a higher risk of false negatives...
  14. happygirl
    The EMA is a good one, but if he didn't have the total serum IgA run, you won't know if it could be an false negative. If you don't make enough Iga, you can't test positive via all the other IgA tests. So, someone who is IgA deficient could be a raging Celiac, but they won't test positive on IgA tests. (In that case, they often run the tTG IgG). IgA...
  15. happygirl
    Gaye, I'd go back and have your tTG IgA and EMA IgA done. Make sure that your doctor writes the correct prescription for the bloodwork, and then make sure the lab has a clue Good luck! (This is not an uncommon experience. Even the the tTG and EMA are the "best" tests, they are 'newer' ... i.e., not 50 years old!, and many doctors don't keep up...
  16. happygirl
    Your total serum IgA shouldn't be "positive" or "negative" ..... if its very low, it indicates you are IgA deficient, which will affect testing on the rest of the bloodwork. It actuallly sounds like it might be good to start with a new doctor who knows what tests to run and knows how to interpret them? Which Anti Gliadin (AGA) test was postive---...
  17. happygirl
    Every Celiac starts off as a newbie and asks these same questions Soon you'll have figured it out and you'll be helping others----I have no doubt!
  18. happygirl
    Many people do fine with soy lechithin, even if they have soy problems. It seems to vary from person to person. See this about whey: Open Original Shared Link You may want to talk to a nutritionist, as well.
  19. happygirl
    With the symptoms and family history, yes, I would have her tested. However, testing is not as accurate in younger children. Even if the tests are negative, she could still have it. The blood tests you want are the FULL Celiac panel. It involves five tests. Make sure that your dr orders them all. Anti-gliadin antibodies (AGA) both IgA and IgG...
  20. happygirl
    Thanks for sharing the link! AT-1001 has been in various phases of clinical trials for the past few years, and has moved along very quickly, with all positive reports. Zonulin was identified by Dr. Alessio Fasano, a leading Celiac researcher/pediatric GI at the Univ oF MD-Baltimore (www.celiaccenter.org). More info can be found at: Open Original Shared...
  21. happygirl
    If you haven't already talked to them, you probably need to do so BEFORE you go tomorrow night. V-Day is super busy for all restaurants....getting information from them tomorrow night might be difficult, even for a "one allergy" person, let alone someone with more than one allergy. I would talk to them today, explain you are coming tomorrow night, and ask...
  22. happygirl
    In America, 1 in 133 Americans has Celiac (slightly less than 1%). However, 30-40% of the American population has either HLA DQ2 or HLA DQ8. So, just having the gene doesn't necessarily mean that you will get Celiac. The vast majority don't. However, if you are having symptoms, and have had other tests run to determine if you have any other conditions...
  23. happygirl
    Ok, I'm late to the party, but can someone provide insight to me on the Em's famous dad?!
  24. happygirl
    Open Original Shared Link
  25. happygirl
    Rachel, so happy to hear you are doing so well
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