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happygirl

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Everything posted by happygirl

  1. happygirl
    Kit, Thanks for sharing this info! What conference was this and when? Thanks sharing about the study.
  2. happygirl
    Jodi, Welcome you to the board. I hope you make yourself at home!
  3. happygirl
    Welcome to the board, Dawn!
  4. happygirl
    Many companies can test for casein intolerance (just like any other food, not just gluten and casein). Some use blood tests, some use stool tests. The validity of each has its pros and cons. "intolerance/sensitivity" tests are usually run via IgG, while "true" allergic reactions are IgE mediated. Quest Diagnostics Open Original Shared Link
  5. happygirl
    From Dr. Peter Green of Columbia University's Celiac Disease Center: Open Original Shared Link "A gluten-free diet should not be started until all diagnostic tests are completed, as the withdrawal of gluten can change test results." This is also re-iterated in his book, Celiac Disease: A Hidden Epidemic From the National Foundation for Celiac Awareness...
  6. happygirl
    Thanks for letting us know about this. I absolutely love her dessert cookbook!
  7. happygirl
    If the purpose of the biopsy is to look for Celiac damage, then you have to continue eating gluten. If the purpose is to go on a gluten-free diet and then see how your damage is healing, then you can eat gluten-free. You need to call your doctor to clarify. If your doctor tells you its ok to go gluten free now but she is checking to see if you have...
  8. happygirl
    The rest of your bloodwork can be fine and your villi can be completely flattened. The other purpose of an endoscopy is to look for other problems that are causing symptoms.
  9. happygirl
    The best advice I can give you is to get a copy of all of your records (including the ones that show you have flattened villi) and find a doctor who knows something about Celiac.
  10. happygirl
    Dextrose is safe. Open Original Shared Link
  11. happygirl
    Susie-----I'm so sorry, but I think you are right......your sweet puppy lived a GREAT life with a great mama!
  12. happygirl
    I agree----it can vary greatly, as tarnalberry noted. The nutritionist at the Univ of MD Celiac Center has said that for some people, changes in the biopsy can be seen within one week of a gluten free diet. Some of the blood tests can correspond to the damage in the intestine.
  13. happygirl
    The tests that you want run are: Open Original Shared Link Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. If you are IgA deficient, they will often run the tTG IgG.
  14. happygirl
    www.celiacdiseasecenter.columbia.edu Its Columbia Unversity, and home of one of the most prestigious Celiac centers Open Original Shared Link Non profit organization dedicated to Celiac issues Open Original Shared Link NIH's Celiac Disease awareness campaign Those are all highly reputable and provide great, reliable information.
  15. happygirl
    The endoscopy won't only be looking for Celiac. It will be looking to rule/in out other diagnoses, as well.
  16. happygirl
    C- AWESOME AWESOME AWESOME NEWS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
  17. happygirl
    Canola oil is gluten free.
  18. happygirl
    Carnitine can be measured through bloodwork. Large lab companies, like Quest Diagnostics, can do it. It is not a prescription drug, so you could get it at a vitamin store, etc.
  19. happygirl
    x
  20. happygirl
    I think that a consultation with a medical professional is necessary.
  21. happygirl
    Grain alcohol doesn't mean that its necessarily a wheat/rye/barley/oats issue....so let's keep our fingers crossed its not! Every Celiac makes mistakes, just have to chalk it up to a lesson learned and keep trying the next day. Happy almost birthday.
  22. happygirl
    Citric acid can be derived from citrus or from corn.
  23. happygirl
    I'm a "random" silly but wanted to pop in to send good wishes to SusieQ and our stinker. xoxo
  24. happygirl
    from www.celiacdiseasecenter.columbia.edu (Dr. Peter Green) 7. Monitor serum antibody levels Patients are advised to have follow-up antibody levels measured at 6 and 12 months. Most patients have normal levels by that time though it may take up to 3 years to normalize in some individuals. It is reasonable to assess antibody levels annually. This will...
  25. happygirl
    You can claim the DIFFERENCE of gluten free food from regular food. For example: Regular product, $3. Similar gluten-free product, $5. So, $2 is deductible. However, in order to do this, you have to meet the "7.5% of income spent on health care" otherwise you can't claim it. For Celiacs, thats can be a hard threshold to meet unless you have other...
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