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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    Theralac. www.theralac.com
  2. happygirl
    Tell the pharmacist to call the company and find out if it is gluten free.
  3. happygirl
    Less than 1% (1 in 133) have Celiac, and 97% of that percentage don't know they have it. And this only counts "traditional" Celiac.
  4. happygirl
    Question: Do you have any gluten-free products? Answer: At this time, we do not offer products suitable for consumers on a gluten-free diet except as follows: Kellogg's
  5. happygirl
    No. There are bacteriostatic and bactericidal antibiotics. Some suppress/prevent replication, some kill, some have both properties.
  6. happygirl
    There actually already is a coalition working to improve things for Celiacs. They are one of the main reasons that the Food Allergen Labeling Law was passed. Open Original Shared Link They have a huge advocacy presence, with many different groups represented. The problem with labeling something gluten free is that we don't currently have standards for...
  7. happygirl
    The problem with non-Celiac gluten intolerance is that it not as easily identified as Celiac is. Celiac is well-defined (while it may be restrictive, we do have a definition of it) but gluten intolerance isn't. Does that include a gluten allergy? Or an intolerance of IgG or IgA? Or what if you are negative on all tests but you react to gluten and don't...
  8. happygirl
    You can take probiotics while you are on antibiotics. You just can't take them at the same time (i.e., don't pop the antibiotic and the probiotic at the same time). Leave time in between and you will be fine.
  9. happygirl
    The latest and most accurate results came out a few year ago from Dr. Alessio Fasano's Celiac Disease Center at the University of Maryland. They reported that 1 in 133 Americans have Celiac. According to their webpage: Spearheaded the largest epidemiology study ever performed in the US, resulting in more accurate prevalence data: instead of only 1 out...
  10. happygirl
    Shrimp or fish? (tilapia, salmon, etc.) Cooked with olive oil, spices, old bay, lemon? Shrimp could be served hot or cold.
  11. happygirl
    This is not necessarily a true statement. His research has not been published, and other studies have not found strong correlations between traditional testing and stool testing. This is not to say that his testing doesn't have merit in its own right. I think there is a lot we don't know at this point, and all of the testing methods can be in our potential...
  12. happygirl
    There are different tests in the Celiac blood panel and none of them, individually, are 100% sensitive and 100% specific to Celiac. That is why they recommend the full panel. While the severity of the damage is often correlated to parts of the Celiac panel (I forget if it is EMA or tTG), you can still have a negative blood test and be positive on biopsy...
  13. happygirl
    Not sure how much good information I was actually able to give you, but it sure was a good excuse to chat with you!!!!! I sure hope this new med helps you.
  14. happygirl
    The best advice I can give you is to stick with it. It'll take weeks or months to start feeling better. There is no one answer. Your body has to stop reacting to gluten, heal itself, and then make up for all the time that you haven't been absorbing well. Some see minor changes in the first week, others don't see changes for weeks...its hard to tell. ...
  15. happygirl
    However, if your doctor takes multiple biopsies from multiple places, it increases the possibility of an accurate biopsy reading. I would recommend that before/at the time of the biopsy (since you are eating gluten again), to have the full Celiac blood panel run. It involves five tests: AGA IgA AGA IgG EMA IgA tTG IgA Total IgA. This way you'll...
  16. happygirl
    Bully, you may want to PM JudyinPhilly. Believe she has had it done. FYI: NIH and the other leading cancer organizations do not support the above view of bc and clothing.
  17. happygirl
    Depending on the type of symptoms you have, Immodium might do the trick.
  18. happygirl
    I would strongly encourage you to get the endoscopy. Too often, we have other things going on that we "blame" on gluten. Its best to know if you have any other issues. I think its great that you have a doctor that is willing to look for multiple issues. Before your procedure, speak to your doctor and request that he take multiple biopsies in multiple...
  19. happygirl
    Are you under a doctor's care? I would guess that you are having "beyond gluten" problems based on what you are describing.
  20. happygirl
    Another point to bring up here: not all labs are created equal. What lab was this done by?
  21. happygirl
    Judy: I'll PM you about this.
  22. happygirl
    I would do the biopsy. Its easy to blame everything on Celiac/gluten, when she could have something else entirely, or could have a gluten + something else problem. I'd do it now and get all your bases covered. She doesn't have to have a Celiac diagnosis. A true Celiac diagnosis is positive biopsy. But she can go gluten free without the consent of any...
  23. happygirl
    Something else to consider: A good portion of healthy, non gluten problem people make AGA antibodies.
  24. happygirl
    From Dr. Green Open Original Shared Link "7. Monitor serum antibody levels Patients are advised to have follow-up antibody levels measured at 6 and 12 months. Most patients have normal levels by that time though it may take up to 3 years to normalize in some individuals. It is reasonable to assess antibody levels annually. This will serve to monitor...
  25. happygirl
    Take this to him and tell him its from the Columbia University Celiac Center: Open Original Shared Link If you want the testing done to see if you are making antibodies to gluten, there are five tests: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total...
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