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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Welcome to the board. I think the diet depends on the person. Some of these diets work better for certain individuals because of their various needs. I personally was not handling lactose well so I gave up lactose containing products. I was having issues with acne so I tried giving up milk completely...and it did improve a bit. I can eat some grains...
  2. nvsmom
    Not all celiacs can tolerate oats. It is often recommended that you abstain from them for quite some time until healing has occurred, and even then they could present a problem. I have been gluten-free for ten months and I still haven't touched them... I have actually become used to not having them and no longer miss them. As for the sugar, I have problems...
  3. nvsmom
    A double 'doh'..... Does that make you a "dodo" then? Lol
  4. nvsmom
    Me too!!!! I could not figure out what people meant by brain fog (maybe i was too foggy?) and i figured it didn't apply to me. These past few month i've realized how often I mess up words or forget why I've gone upstairs or didn't buy the main item I went shopping for. It really is a bit disturbing. I used to be pretty sharp with a great memory - I could...
  5. nvsmom
    Adalaide - Ouch! Darn doors.... After dinner today I was telling my 5 year old to "Put on your socks!" as he was heading out the door to find a toy he left on the snowy and wet law. He is holding up his foot and showing me his stocking foot and I'm yelling to "Put on your socks!" Finally my hubby started yelling down the stars: "Shoes! She means shoes...
  6. nvsmom
    I think the time required to get a negative test result can really vary. I've heard just a few weeks to up to a few years for the autoantibodies to stop production.... Thats not helpful is it. LOL Hopefully someone else can give you more advice. Could you repeat the blood tests in 6 weeks when the endoscopy is done? 6 weeks of gluten would most likely...
  7. nvsmom
    I personally do not know much about genetic testing. As I understand it, a positive gene test only means that you have some of the genes often seen in celiacs but it is no garuntee that you will develop celiac disease, or if you or your children will. As you know, to find out if you have celiac disease you need to have the blood tests and/or the endoscopy...
  8. nvsmom
    People don't realize they are being insensitive. They probably (honestly) don't like our alternative flours but aren't tactful enough to shut their 'cake holes' about it. To be honest, I know that brown rices and the like often take some getting used to. When I do gluten-free baking that I need to share, I use mostly starches as that seems a bit closer to...
  9. nvsmom
    Sadly many celiacs are asymptomatic, we often don't feel the damage going on. Also, i think many of us have a quite high pain/discomfort threshold so we tend to brush off symptoms that might flatten lesser mortals other people. I have had celiac my entire life (or coincidental symptoms since early childhood) and I went through periods where it felt like...
  10. nvsmom
    Low triglycerides and cholesterol is fairly common amoungst celiacs. Mine are below, or just at the bottom end, of the normal reference ranges. Sometimes I wonder if it would be lower if not for my Hashimoto's which tends to cause high cholesterol and triglycerides. I did a bit of reading on it, and low numbers appear not to be a large problem; I got the...
  11. nvsmom
    ... REDRUM!! I'm slow today, that took me a moment! LOL Good laugh though, thank you. Yeah, our ground's still frozen except in the warmest corners of the yard. Our last frost free day is usualy a week or so after mothers day but still, the snow's getting to be a bit much. We had a total whitout for about half an hour today. Ick.
  12. nvsmom
    When you get your thyroid tests done, make sure you get copies of your labs and don't take your doctor's declaration of "normal results" to stop you from getting care you need. My doctor keeps saying I am normal - he's been saying that as soon as my TSH dropped below a 6. I just tell him I'm upping my doses now and check in every 8 weeks for test results...
  13. nvsmom
    LOL Oh yeah! I can relate. Just today I washed my hair an extra time because I couldn't remember doing it, put my coffee into the fridge to warm it up rather than the microwave, and returned one of our videos to the library...Oh and I keep calling chihuahuas 'chinchillas' lately.... scary considering I homeschool my kids !! LOL
  14. nvsmom
    Yep... the "I told you so dance". Did you notice Irishheart even has it in her signature? LOL
  15. nvsmom
    You definietly have some sort of gluten intolerance... it's nice when those migraines slip away isn't it? Since you were only gluten-free for 12 days, you could probably accurately test within a couple of weeks. I would guess that somewhere around mid to late May would give you accurate test results; sooner might be fine but there's no way to tell....
  16. nvsmom
    Yes, I would definitely go back onto gluten if you are able. Some people stop making autoantibodies almost immediately, and if you are one of those, being gluten-free for two weeks could cause a false negative. resume eating gluten so you are making autoantibodies that can be detected by the blood tests. Better yet, delay your test for a week or two so...
  17. nvsmom
    Not usually.
  18. nvsmom
    Often when parts of you thyroid are missing a person will not produce enough hormones and will be hypothyroid. There are very very few people with hashi's who have it resolve.
  19. nvsmom
    The EMA IgA is just one test, and while it is fairly sensitive and specific to celiac disease, it is more for detection of fairly advanced celiac disease - it only appears positive in response to fairly extensive damage already being present in the villi. As I understand it, it is an autoimmune response/attack to villi damage. It is not a great early detector...
  20. nvsmom
    1. I think eating gluten-free can be less healthy if you replace every "glutenous" fortified food with unfortified gluten-free food, bread slice for bread slice, without switching to whole foods. If you up you veggies and proteins, I don't see how it could be less healthy.... But not all celiacs do that. 2. I have read in a few places that the nutritional...
  21. nvsmom
    I had the same experience.... Almost exactly. I did not get enough blood but ended up with a very faint positive line-I almost couldn't see it at first in dim light. Two weeks later I was tested by my doctor's lab (I brought the test to show him too) and had very positive test results. The Biocard test tests ttg IgA, and total serum IgA. On my lab blood wok...
  22. nvsmom
    Hashimoto's (hypothyroidism) has very similar symptoms as celic disease, and it is commonly triggered by hormones. Hashi's is also linked to celiac disease. I have both myself. Good luck with the appointment.
  23. nvsmom
    Migraines... I used to have those close to two weeks out of every month... I had no idea they were gluten related before my diagnosis. I hope yours go too. Gluten intolerantsexperience basically every symptom as a celiac except villi damage. They can have ataxia, nueropathies, gastro issues, nutritional deficiencies, and pain - all that inflammation can...
  24. nvsmom
    Welcome to the board. It could be a gluten withdrawal or it could be a stomach bug. After only three days, it could also still be the results of your last "glutenous" meal. My guess is it's probably withdrawal. There are many who go through a period of feeling worse for a few weeks before we feel better. I think you'll just have to be patient and wait...
  25. nvsmom
    Yes, as Lisa said there is a lot of variation. Some symptoms are gone almost immediately and others take a few years to completely heal... the majority of symptoms disappearing somewhere in between. Personally, I had some symptoms (mostly gastro) disappear within days, and then my joint pain took over 6 months to go. I'm still waiting to see if anything...
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