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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Do you have back problems? I had sciatic pain for years and when my disc herniated it pinched off the sciatic nerve so now I have some numbness (paralysis) down one leg. It starts in my outer hip, runs down my outer thigh, down the front of my shin, onto the top of my foot and big toe. Be careful with nerve damage if you think that is it - it doesn't...
  2. nvsmom
    My kids were fascinated and a little disgusted when they first learned i was putting poop where their vegetable are supposed to grow. LOL We skipped spring and jumped to summer! Last week it snowed. Today it is supposed to hit 27C and break a 100 odd year old daytime high record. We actually have sunburns from this weekend! Sigh, all this warmth...
  3. nvsmom
    We have used Daiya shredded cheese substitutes for months and never had a problem yet... or at least anything that we have noticed. We'll keep using it. My son is dairy free (and has a nut allergy) and it's the only way he can have his pizza or mac n cheese now a days. I like it sprinkled onto an egg bake or in tacos.
  4. nvsmom
    I like Greens too. I tried Dauruma (I can't remember the exact spelling) almost a year ago. It said it was gluten-free so I grabbed it and I realized halfway through the bottle (I'm a slow drinker) that I was being glutened - It was one of those beers started for barley that is "supposedly" gluten-free to 6ppm. I reacted strongly to it. Personally...
  5. nvsmom
    Good luck! When you do eventually go gluten-free, remember that the first few weeks can be really tough, especially if you go through a withdrawal. Just remember it doesn't last.
  6. nvsmom
    Welcome to the board. Your symptoms are the same as mine except substitute anxiety for joint pain. They are pretty common symptoms of both celiac disease and NCGI (non-celiac gluten intolerance), enough so that I think you should probably get tested for celiac disease and possibly for Hashimoto's hypothyroidism. (I had both, undiagnosed, at the same...
  7. nvsmom
    I completely agree that you should go by how you feel. If you feel fine at a 2 something, then you probably are. I felt poorly when my TSH was in the teens and I felt the same when it was considered normal at a 5 - my free T's did not change a bit between those numbers either. I had to argue with my doctor about my care because he declared me normal as soon...
  8. nvsmom
    It could very well be celiac disease or NCGI (non-celiac gluten intolerance). Marcus listed most of the blood tests that test for celiac disease, you could also request the tTG IgG, EMA IgA, and the AGA IgA or IgG (which are older tests). You must be consuming gluten I the weeks prior to testing. If your celiac test come back negative, you could have NCGI...
  9. nvsmom
    I am sorry that you've been feeling so poorly. Those are symptoms of gluten intolerance (or celiac disease - they have pretty much the same symptoms) so hopefully you'll feel better soon. Many people find they go through a withdrawal when they cut gluten out of their diets. I felt extra tired, headachey, and grumpy during the first three weeks. My intestinal...
  10. nvsmom
    I don't think there is any real way to know if you were consuming enough gluten, by eating gluten-light, to have a positive celiac test. People produce autoantibodies at different rates so it would be tough to predict. I would guess that you are probably eating enough, especially since you have been increasing your gluten consumption to at least 2 servings...
  11. nvsmom
    Ooooh, a magnolia tree! Sigh. I can barely grow cedars here! LOL
  12. nvsmom
    Hi Ksee. I was wondering what your medical training is in this area? I'm just a lay person, albeit with a science background, who is self taught about thyroid issues (by reading a good dozen books and some journals on the matter) because I needed to be due to my own multiple health issues. It's always good to know who around here is a medically trained expert...
  13. nvsmom
    Welcome to the board Cookie. Bloating is one of the more common celiac symptoms. I had periods where I was mistaken for being pregnant again (always good for a girl's ego - LOL) and it used to confuse me because it would come and go, with evenings generally being the worst time for me. As Marcus said, it can also be caused by sugars (and the fast breakdown...
  14. nvsmom
    TSH isn't the most reliable. Many thyroid patients (and authors) are of the opinion that many doctors have lost the ability to treat thyroid patients by their symptoms since the almighty TSH was created. I agree with that based on my own experiences. I posted that the TSH should be near a 1, and you are totally right that I did not word that well. I...
  15. nvsmom
    My fatigue hasn't really improved yet, no. I think I have something else causing it though, and my thyroid mess are not ideal yet. Synthroid has helped my constipation, my hair thinning and my skin is a bit less dry.... It is a slow one treat.
  16. nvsmom
    I just buy those expensive tissues with lotion in them, and plaster my nose with polysporin. I hope you feel better!
  17. nvsmom
    I think the IgA is just one aspect of an active immune system, i believe it concerns areas of the body that has mucus like the intestinal tract and lungs. There are other parts too like the IgG, IgE, and IgM. I do not know of any problems of it being high but I am not an expert. A biopsy might be a good idea for you at this point. Damage is often present...
  18. nvsmom
    I blew off my symptoms for my entire life after doctors told me that it was normal for me. They were wrong. Pain and discomfort is NOT normal. Try not to doubt yourself. You have definitely discovered that you have a gluten intolerance, now you just need to get blood tests to determine if it is celiac disease or the more common non-celiac gluten intolerance...
  19. nvsmom
    I honestly haven't used any others, I found this one and stayed. I am a member of other forums for other health issues I have but they are not (unfortunately) as helpful or supportive in their areas as this site is for celiacs. IMHO. I think I'll look at the sites you mentioned though.
  20. nvsmom
    I have a Vitamix that could shred a hockey puck to dust. It's my favourite kitchen "power tool". They are very expensive but they last decades. Great for smoothies, soups, food processing and making flours.
  21. nvsmom
    Two Ron's...LMBO I still just have crocuses...but it rained last night instead of snowed...that's something, right? Right?
  22. nvsmom
    My FT4 an FT3 were at the bottom 20% of my lab's normal range when I was first diagnosed hypo because of a TSH of 14 or so. I am now, 8 months later, on 125 mcg. Synthroid and my TSH at 3 something and my Free T's have moved up to the bottom 30% of my lab's normal reference range. My free T's have always been "normal" as has my TPO Ab. Only my TSH and symptoms...
  23. nvsmom
    Lol I have altered my lab requests too and he hasn't noticed...or at least doesn't mention it. Lol I am just on t4 too right now but I am trying to get my frees up and TSH down,then i'llreassess how I feel, and get some t3.... From another doctor as mine refuses to give it to me.
  24. nvsmom
    Oh no. . I hope you feel better quickly! And no, you are not the only one.... I would be very surprised to meet a celiac who had been gluten-free for a few months and not been gluten end at least once.
  25. nvsmom
    Blood tests are recognized as the most accurate around here. I believe that the medical community does not put much stock in stool or saliva tests. So your son has a diagnosis of gluten intolerance? It is not often a doctor will give that (in writing) so people can get accommodations made for them in places like college. From what I have heard, an "official...
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