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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Ahhh, yes. But my mother understands nagging, I think she sees it as a way of expressing her love. Maybe it is our Ukrainian Polish background.... Lol I hear what you are saying though. For my brother, I told him, gave him info to look into and advice on how to get an accurate test and he'll decide whether to test based on that. My mom on the other...
  2. nvsmom
    I feel the same way, Jess! Most people won't understand what a switch this diagnosis is, and to be honest, most people do not want to hear about it! It is wonderful to come here and experience the support that comes from a common experience. Thank you from me too!
  3. nvsmom
    I just started gluten-free last week and withdrawal is hitting me now. Ugh, what a headache! It makes me wonder if some of my past headaches were caused when Iaccidently went gluten-free for a few days(I eat pretty gluten lite). So for now it's the migraine and i'm not sleeping that well. I woke up before 5am ... And it's a holiday today! I don't feel...
  4. nvsmom
    wow... The similarities are pretty...disturbing! My brother was also a huge kid. As I said before, my dad played defensive tackle on a pro football team so we had the genetics in the family to get big. My brother was off the charts for height and weight, shaving around age ten. The works. Poor guy stopped growing in junior high. Luckily he was already...
  5. nvsmom
    Wow, it's amazing what celiac can (or at least really seems to) affect! I remember being so scared when that RA-like pain hit. That summer, when it had subsided a few months later, I climbed a mountain twice a week just because my body could. I remember feeling so thankful that I didn't have it at 19... wow, that was half a lifetime ago. I like the...
  6. nvsmom
    I just came here to write the same thing about my mother. She says she is healthy and just has stomach issues and joint pain and heat rash and fatigue... UGH! I am almost sure she has it but she's talking about how she can eat gluten moderately and she will be fine. I argue with her but... I told her that I'll call to nag her everyday until she gets...
  7. nvsmom
    Great links! Thanks. So it's about 20ppm per day (approx) that we need to stay below. And less is better of course. My biggest newbie challenge right now is trying to remember not to finish off the kids' last bite or wipe down everything my kids' food touched before getting out my own... this is going to force me to be a better housekeeper! LOL
  8. nvsmom
    Perhaps you could try one of the home blood test kits now? I tried the Biocard test and had a faint positive which was confirmed two weeks later by my doctor's tests. it's over 90% specific, meaning if you get a positive then you have over a 9/10 chance it's celiac rather than something else. It's highly unlikely that you could get a false positive although...
  9. nvsmom
    I'm new to this, and was wondering about the 20ppm... Is that per day? Week? Month? Do you know the frequency of the "safe" consumption? Thanks. Nicole
  10. nvsmom
    Thanks for the welcome and supportive words, Pianoland. I'll look into retesting in a few months. That's good advice. I've had celiac symptoms for DECADES... I'm quite bitter about that. Accepting the diet is easier than swallowing the fact that if my childhood doctor had only taken my stomach aches seriously when I was a young girl, I could...
  11. nvsmom
    Cyberprof - Thanks for the advice. My doctor called me celiac so I think it's official. when I went to him with a positive home test, even then he said that I was probably positive and said i would have to decide if I wanted the endoscopy. I don't. We don't have a pediatrician, and my kids go to the same family doctor so I'm guessing it will be no problem...
  12. nvsmom
    Thanks Takala. That's kind of what I thought. Since I had a positive EMA, and an EXTREMELY positive tTg test, I can accept that I am celiac ... without a doubt. But I am dreading that test of will half a year from now when I'm out somewhere, symptom fee, and start wondering "how bad could one little bite be". KWIM? And luckily my doctor is pretty...
  13. nvsmom
    That's great! you're definitely doing it right. Makes me wonder if I'd known about cc as a kid, if I would have actually grown past age 12. LOL
  14. nvsmom
    I have so many things I need to check for gluten! Mostly vitamins and remedies. I took a Hyland's Calme/forte tablet in the middle of the night when my son kept waking me up and I was unable to get back to sleep. Within a few minutes I had a stomach ache that kept me awake... the opposite of what I was hoping for. lol About half of my vitamins are...
  15. nvsmom
    I "think" I went gluten-free yesterday... not sure. This is what I ate: m1 - 2-3 egg bake w/ red pepper, onion, spinach, spices and rice milk, 2 slices chicken bacon m2 - no snack - out of house running a field trip. m3 - 3-4 egg leftover m4 - apple m5 - bratwurst, sauerkraut, peas, cottage cheese, yams m6 - bowl popcorn and spices Today I double...
  16. nvsmom
    Have you been checked out for intestinal bacteria and candida overgrowth? It could be something else entirely. Best wishes to you. That's a tough situation. Nicole S
  17. nvsmom
    I think that positive DGP IgA indicates that you have antibodies to gliadin (and conversely to gluten). That is found in normal people and in celiacs... well normal people who are gluten sensitive. It can possibly indicate that you have not yet developed tTg antibodies, and perhaps you won't. As I understand it, without elevated EMA or tTg, you won't...
  18. nvsmom

    Grrr

    nvsmom posted a blog entry in nvsmom's Blog

    Today I'm just annoyed. I'm mad that I've had this for 30+ years and didn't figure it out... and that my doctor had no clue even when I went to see him about it as a child. Grrrr. Apparently pain is NOT normal for most people! Most people don't have pain moving or eating... I feel quite ripped off! Grr.
  19. nvsmom
    Thanks Shannon and Marilyn. It is a "bitter sweet thing" isn't it? I'm one of the lucky unlucky ones who was easily diagnosed with blood tests. It's a shame I have it, and have had it for well over 30 years (grrrrr) but at least it's a disease that's treatable with just food! Last time I had an autoimmune disorder I was on steroids and had my spleen removed...
  20. nvsmom
    Someone was asking about the reliability of the Biocard home test but I can't remember who... I took the test after eating more gluten for about 2 weeks (I usually ate "gluten lite"). I only got about 75% of the blood needed for the test but it gave me a very faint positive. So faint that if you were in very dim lighting you could barely see it. It...
  21. nvsmom
    Bummer. I went for my lab results appointment today and I was half expecting the doctor to say I was fine and then I'd have to decide to go gluten-free on my own... but with the back-up plan that I could probably abandon it some day as long as celiac didn't develop like it did in my cousin... Nope. I definitely, without a doubt, have celiac. ...
  22. nvsmom
    Bummer. I went for my appointment today and I was half expecting the doctor to say I was fine and then I'd have to decide to go gluten-free on my own... but with the back-up plan that I could probably abandon it some day... Nope. I definitely, without a doubt, have celiac. The home test I did, with not quite enough blood, gave me a very faint...
  23. nvsmom
    I am in the process of being tested, and very new to this myself so I'm not nearly as knowledgable as many here, but it sounds like celiac and your doctors couldn't get it together enough to actually say that. From what I know, it's really tough to get a clear diagnosis of celiac; I've only seen a few cases like that on the forum. Most people seem to experience...
  24. nvsmom
    I called my Dr's office today because I was starting to strongly suspect that my results were in but they were normal (or very close to normal) so my doctor didn't call me... he's done that before. In fact, that seems to be pretty standard practice for drs around here. Anyway, I was right and the results were in but they won't release results over the...
  25. nvsmom
    I want the testing done so it will be easier for me to stick to a diet change (I'm not very good at that) and to rule out other health problems. I also want to be sure because this could affect my children and my mother (who has had (supposed) heat rashes and stomach issues for years. I don't have my results back yet. I've done a home tTg test, which...
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