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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    Those with T1 diabetes, or with celiac disease in the family, are considered to be at high risk of developing celiac disease and are now being advised to get tested (every few years) even if they have no symptoms. Since you have symptoms, I think it is a good idea to get tested. There was an article posted about this recently: Open Original Shared Link...
  2. nvsmom
    If I wash something with a lot of gluten on it, I will wash it last and then put the dishcloth into the wash. It's worked for me, but I also don't have gluten in my kitchen very often.
  3. nvsmom
    But get your husband to have some too or he won't come near you... Of course, that could be a blessing depending on how you are feeling that day.
  4. nvsmom
    LOL That's pretty impressive! Maybe you are growing a little healthy eater in there. I hope it stays like this for you - that's just awesome. I lived on ice tea mixes in the first few months of my pregnancies. Food didn't stay in even if I could get it in. Heck, I couldn't even stand the smell of my upper lip - I think I washed 10 times a day...
  5. nvsmom
    I hear you! This bunch is great. It's why I keep coming back after 3 years.
  6. nvsmom
    Welcome to the board. GERD types of symptoms, along with nausea, anxiety, brain fog, loose BM's, and fatigue, are pretty common symptoms of celiac disease. Like most diseases, the symptoms of celiac disease do not stay the same even if your intake of gluten does. Some days, weeks, or months are better than others. Plus a food sensitivity reaction can...
  7. nvsmom
    I have in the past but not consistently - I've had back injury and arthritis get in my way. I wouldn't mind doing some but I've developed dome hip arthritis in the past couple of years that would make it difficult... doesn't excuse using my arms though does it? I do need to build me some muscle soon - my youth is never coming back so I actually have...
  8. nvsmom
    LOL Seems like a funny reward to healing, doesn't it. Stay strictly gluten-free for years and be rewarded with higher cholesterol... LOL The weight gain is REALLY getting annoying though... could have done without that reward.
  9. nvsmom
    Oops, I forgot to add that I also chose to skip the endoscopy because they can miss celiacs (up to 20% of celiacs) and I didn't want a false negative biopsy to muddy up my determination to eat gluten-free. I didn't want to risk the false negative result.
  10. nvsmom
    I'm in Alberta too, and I chose Scenario 4. My tTG IgA and EMA IgA were both quite high, I had many symptoms for years, had celiac disease in the family on both sides, and had just bee diagnosed with thyroiditis. I knew that the wait to see the Gastro was about a year (this was 3 years ago) so I skipped it. My thinking was that I was 99% sure I had celiac...
  11. nvsmom
    Yep, that EMA is the most specific test for celiac disease there is. The World Gastroenterology Organization reports that a positive EMA IgA is specific to celiac disease 98-100%, which means you have less than a 2% chance of your result not being caused by celiac disease....Open Original Shared Link It's probably celiac disease, but it is very unusual...
  12. nvsmom
    I have not heard much about other autoimmune diseases causing raised anti-gliadin antibodies. I'm sure it must happen because the AGA tests are 80-95% specific to celiac disease, so 5-15% of positives are caused by something else, but why would it react to gliadin/gluten? Hmm. I know the tTG tests can show other AI diseases, but it is even more rare...
  13. nvsmom
    If you can, find out what tests were in that celiac panel. In my city, the "celiac panel" consists of only the tTG IgA, total serum IgA (control test) and the EMA IgA only if the tTG IgA was high... They would have missed Cyclinglady too.
  14. nvsmom
    LOL Now remember, this IS Canada we're talking about, so my emergency endocrinology appointment is in late July.
  15. nvsmom
    I saw my doctor who prescribed the NDT and he said this was pretty normal... My family doctor on the other hand booked me and emergency endocrinology appointment. LOL
  16. nvsmom
    LOL I've seen that one - a good one!
  17. nvsmom
    I agree. Keep eating a normal diet if you are planning on doing the biopsy. The only reason I would say to go gluten-free is if the biopsy is going to be many months down the road, you only need to be eating gluten for about a month before the biopsy is done, or two weeks at the very least. Generally speaking, a positive is a positive when it comes...
  18. nvsmom
    I'm afraid there is nothing that you can purchase to help diagnose yourself with celiac disease... other than gluten-free food!
  19. nvsmom
    Ah, the mockers.... They usually shut up about it after they see you staying committed, and as your health improves. Hang in there. Welcome to the board, sbell91.
  20. nvsmom
    Many problems can come from the inflammation it causes as well. I don't completely believe that the damaged intestines is the sole cause of vitamin deficiencies and malabsorption. I am certain that I had celiac disease my entire life, yet I had no vitamin or malabsoption issues even though I am sure I had extensive gut damage. I guess the damaged intestines...
  21. nvsmom
    An IgA deficiency will only cause false negatives in the IgA based tests such as tTG IgA, DGP IgA, EMA IgA, and AGA IgA. The ones listed earlier are IgG based and are the tests used for people who are IgA deficient (as 5% of celiacs are). The IgG based tests (like tTG IgG) should be accurate.
  22. nvsmom
    So true...
  23. nvsmom
    You can get the blood tests ordered from any GP - even a walk-in clinic. The blood tests may take a week to get done, but it's a good idea to do it now before your blood autoantibodies normalize. If you want to test after going gluten-free, you'll need to resume eating gluten for 2-3 months. Ask for these tests (they'll work with IgA deficiency): tTG...
  24. nvsmom
    You may want to discuss a diagnosis of "possible celiac" or non-celiac gluten sensitivity (NCGS) with your doctor just in case you need food accommodations in the future, like for a hospital stay - hospital food is usually not safe for us. Food accommodations is probably the only reason where you could need a diagnosis. Some people find a diagnosis...
  25. nvsmom
    You probably don't need to bring your own pans unless they are teflon coated pans that have scratches that could be contaminated. Most pans will scrub clean enough. The things you have to watch out for (I think) is not using her toaster (or wrap the bread in aluminum foil), contaminated sugar (from a flour coated measuring cup), and other baking supplies...
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