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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    My oldest son has mild aspergers, and had some emotional control issues and stomachaches for years. His growth was slowing down a great deal too, dropping from over the 75th percentile to below the 30th. When we stumbled across celiac disease, it rang a bell for me and my life long symptoms, and I tested positive. My son tested negative but we were only...
  2. nvsmom
    Thanks for the update. Are they arranging a dh biopsy for your 10 year old?
  3. nvsmom
    I'm sorry you had a gluten hit. Ugh. How long symptoms last is sometimes a different issue than how long it takes to get well. Symptoms often last between a few days to a few weeks (often 2 or 3) but symptoms may change over that time. I took a hit over Christmas. The stomach lasted a couple of hours, the bloating lasted a few days, but the fatigue...
  4. nvsmom
    Great link Kareng! ....Test Report Summary Report Date: 04/02/2015 The sample tested > 84 parts per million gluten using the sandwich R5 ELISA and cocktail extraction. Please see complete results for details. We have not yet had the sample diluted to determine a more exact part per million level. Individuals with celiac disease should NOT eat...
  5. nvsmom
    Has she been checked for Lyme disease? A woman I know who did the Biocard home test (for tTG IgA) had a positive home test and then was retested by her doctor and came up with a negative result. She then went to a naturopath who discovered that she had Lyme disease, which is surprising because there aren't many ticks around here. She was treated for Lyme...
  6. nvsmom
    Ditto LauraTX. If you were gluten-free for a long while before testing, that will cause false negative results. If you were only gluten-free for a week or two, chances are that it did not affect the results, but there is no way to know for sure except to do the 12 week (or 2 -4 week for endoscopy) and retest. If you don't retest in the near future and...
  7. nvsmom
  8. nvsmom
    Ahhh... understandable. Consider keeping a food and symptom journal to help you document your new diet and the resultant change in symptoms. That can sometimes help with a diagnosis later on. Remember though that symptoms from food sensitivities can appear within minutes to a few days later, which makes things tough to pin point. You may want to...
  9. nvsmom
    If it is a milk substitute then you know it is the coconut beverage. Recipes rarely call for coconut milk from a can unless it is the cream they are after. Either one will work.
  10. nvsmom
    Excellent. Thanks everyone!
  11. nvsmom
    Ditto the others. Unfortunately, two weeks is nothing in a celiac's recovery. Most celiacs will not have even stopped making autoantibodies yet, so recovery isn't even an option at this point. Hang in there and be patient. I'm sure you'll be feeling much better by the autumn. I know... waiting is easier said than done.
  12. nvsmom
    Welcome to the board. The tTG IgG is 95% specific to celiac disease, meaning that 95 out of 100 positive tests are caused by celiac disease. Generally speaking, the 5% of false positives are weak positives, and those are caused by other problems like diabetes. Your son's result was over 10 times the normal upper limit I would interpret that as celiac...
  13. nvsmom
    I don't have RA as far as I know (negative RF) but I have had a lot of arthritis. I am almost 3 years gluten-free and my flare-up arthritis in my shoulders, elbows, and hands is mostly gone now - it slowly became less severe, less frequent, and of shorter duration after the first 9 months gluten-free whic also (sort of) corresponds to when I began a the...
  14. nvsmom
    Welcome to the board. Withdrawal definately could be a factor for you. I experienced it too, and I still remember the extreme fatigue, grumpiness and headaches of those first couple of weeks. Hang in there and it will pass. I remember being quite hungry for the first few months too. I ate a fair bit of gluten-free treats (so I wouldn't feel deprived...
  15. nvsmom
    Interesting....
  16. nvsmom
    Welcome to the board. IgG testing is not actually allergy testing. If it is what I think it is, it's an alternative medicine form of testing for food sensitivities that is completely separate from celiac disease. I know of a celiac, and a suspected celiac, who had normal IgG tests. I know some who had IgG sensitivity tests done and it really helped...
  17. nvsmom
    I too think it would be a good idea to get tested sonner rather than later, but it is mainly to spare you future discomfort. In order to be accurately tested for celiac disease you much be eating gluten (about the equivalent of 1-2 slices of bread per day) in the 8-12 weeks prior to testing. This means that if you have gone gluten-free for a few months...
  18. nvsmom
    Welcome to the board. I'm sorry you are having such pain. It sounds quite extreme. I had stomach aches after eating too but the pain usually did not last for hours unless I had a lot of bloating. If the pain seems too out of the ordinary from what you experienced in the past, you may want to keep contacting your gastro, or even try your GP. For...
  19. nvsmom
    LOL I know! Right?
  20. nvsmom
    I had some sort of reaction to the Synthroid 100mcg dose (I think it was). It would make my lips puffy and my mouth felt wrong. My guess is it was the dye but I have no real proof.
  21. nvsmom
    Thank you. I have all of those flours on hand... might be out of sorghum but I luckily have a whole foods store only a couple of kilometres away that keeps all of these flours in a separate gluten-free, bulk bin area. I'll leave out the xanthan gum for gravy. I can't imagine that would do anything helpful in gravy, right?
  22. nvsmom
    I usually do okay with amounts. Sometimes I add too much flour and then add more water to dilute it... and end up with more gravy than expected but that's a good problem to have.
  23. nvsmom
    Mamaw - I haven't seen that brand but I'll keep my eyes open. I'm up in Canada so some of our brand names are different. Even the gluten-free status of some brands varies from country to country. MycasMommy - Huh, I haven't tried tapioca yet for some reason, and I alwas have it on hand for baking and making chicken nuggets. I may try that for Easter...
  24. nvsmom
    I agree. Your FT4 should be between 1.1 and (close to) 1.3. Yours isn't in a happy place. You have one of those really large "normal ranges" for TSH that is not that accepted any more. My labs are the same, they say normal is up to a 6. 6! Really? Most labs have ranges that top out at 3 or as low as 2. I am hypo around a 2. It might work for others...
  25. nvsmom
    Sorry to hear that you have to go through this. Good luck with the surgery. I took Synthroid for about 9 months and never felt great on it. Part of that problem was that they started me off low and you need to wait 6 weeks between dose changes. By time I got up to a full replacement dose, it had been a long time, and it still didn't feel good. ...
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