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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Non-celiac gluten sensitivity (NCGS) can result in vitamin deficiencies, and those with NCGS have no intestinal damage. Actually, most autoimmune diseases can result in vitamin deficiencies; I think it is from the inflammation rather than the damaged intestines. I don't know about the fat malabsorption... I'm a celiac who never had a problem with that...
  2. nvsmom
    I'm afraid that I agree with Stephanie, it is his house. If you were actually living there, then yes, it would be nice if he would go gluten-free, but many celiacs live (safely) in homes that are not gluten-free. It would be nice if he was gluten free, but you are now only a visitor and I think it is too much to expect him to go gluten-free for a frequent...
  3. nvsmom
    That's true, but I think Laura uses the hand sanitizer in lieu of soap and water after using the toilet, which is good unless you get gluten on your hands from the toilet paper..... Which just seems like such a bizarre possibility. LOL. I hope the gluten-free watch dog looks into that too!
  4. nvsmom
    As far as I understand that article, the MIA version of the tTG IgG is less sensitive than the usual ELISA version of the tTG IgG, and a positive tTG IGG in the MIA tests means you have celiac disease with 100% certainty.
  5. nvsmom
    Huh... I gotta admit, the idea of wiping with wheat gives me the hee bee gee bees.
  6. nvsmom
    The tTG IgA is specific to celiac disease 95% of the time. 5% of the positive results are false positives, and they are (usually) weak positives caused by crohn's, colitis, diabetes, thyroiditis, liver disease, or a serious infection. It is confusing because the severity of the disease is NOT reflected in the serologic values like it is in other autoimmune...
  7. nvsmom
    Hard to say. A positive tTG IgA is usually (95% of the time) caused by celiac disease. The rare time a positive is not caused by celiac disease, it is usually a weak positive, and is caused by thyroidiitis, crohn's, colitis, diabetes, liver disease or a serious infection. If any of those could apply, then that positive may not be caused by celiac disease...
  8. nvsmom
    No worries. I would guess that at LEAST a third of the people around here were told it was in our heads or that it was "normal" for us. Uh-huh. I too tend to gain weight when not feeling well. I'm not the typical celiac either.
  9. nvsmom
    Welcome to the board. Ditto everything Cyclinglady said. Make sure you do NOT go gluten-free before all testing is done or it could affect your results and cause false negative results. Celiac disease tends to run in families with autoimmune diseases like hypothyroidism (look for thinned hair, overweight, dry skinned), type 1 diabetes, rheumatoid...
  10. nvsmom
    Happy to help if I can. The anti-EMA is the EMA IgA (endomysial antibodies). that is a great test that is very specific to celiac disease, and fairly sensitive, but it is very similar to the tTG IgA test - it just indicates that the disease is a bit more advanced. It is really unusual to get a positive EMA IgA when the tTG IgA is negative, but a negative...
  11. nvsmom
    Welcome to the board. It looks like your reference ranges are: <20 (less than 20) Negative 20-30 Weak Positive >30 (greater than 30) Positive If that is correct, your tTG IgA and tTG IgG are both negative at 6.0 and 2.0. If you strongly suspect celiac disease, you could request further testing with the deaminated gliadin peptides tests...
  12. nvsmom
    I don't know much about those tests, besides what RMJ said and what I could google.
  13. nvsmom
    It's possible that she had celiac disease or some other autoimmune disease. Doctors miss many many people now a days never mind 60 years ago. A celiac who continues to eat gluten will live with constant inflammation which will cause worsening symptoms and trigger other diseases (autoimmune, cancer or heart). Some lucky ones do not get other problems...
  14. nvsmom
    Yeah! Congratulations! I hope this is an easy pregnancy for you!
  15. nvsmom
    You may just need more patience. Unfortunately, one month gluten-free isn't very long. Is she dairy free? From personal experience I can confidently say that milk can really hurt a stomach. Lactose intolerance is extremely common among celiacs at diagnosis. Many celiacs can eat dairy again after 6 or more months gluten-free. Best wishes.
  16. nvsmom
    Ditto Cyclinglady. They check DGP for dietary compliance. The DGP tests tend to change more quickly with changes of diet compared to the tTG tests. A tTG can stay elevated for many months after going gluten-free, up to a few years. Mine was still elevated at 9 months gluten-free, although it had gone done. The DGP test results will fall back to normal...
  17. nvsmom
    Those do look negative. There are a few things to consider though: She was given the older gliadin Ab tests (AGA IgA and AGA IGG) which are not very reliable tests; the AGA IgG can miss as many as 83% of all celiacs! See page 12 of this report for the AGA test sensitivities: Open Original Shared Link Those aren't great tests. The deaminated glaidin antibodies...
  18. nvsmom

    ARCHIVED Thyroid

    nvsmom replied to AmandaD's topic in Related Issues & Disorders

    I'm another Hashi's person. It's not a real bad one. Being hypo can cause some celiac like symptoms (tired, slow metabolism, constipation, dry skin, etc) but it is not that hard to manage. I would say tweaking the drugs ends up requiring more patience than celiac disease, but it is not that hard. I agree with the others: a TSH near a 1, free T4 and...
  19. nvsmom
    You can post pictures using a photo sharing site like photobucket, or just type in her results with the normal range beside it (in parenthesis). If you post her results we may be able to comment. You might want to consider getting a biopsy report. A negative result, without any increased intraepithelial lymphocytes in 6 or more samples, is quite a different...
  20. nvsmom
    Ditto. Most recommend somewhere between 1/2 to 4 slices of bread per day for 8 to 12 weeks.
  21. nvsmom
    LOL
  22. nvsmom
    To be honest, I think it is even easier up in Canada. All labels must state if the food MAY contain gluten and wheat, not just if it is added but "may" have it. The hardest part is remembering to read the label. LOL
  23. nvsmom
    This is the perfect place to vent. Those first few months figuring it out are very hard. It usually takes two or three months to get comfortable with the diet, and to find new brands and recipes that work. You'll get there eventually. By the time the fall rolls around you will be a pro. Celiacs heal at different rates. Some lucky ones feel better...
  24. nvsmom
    Yes I know, 100%, that there are no peanut allergies at this school unless the parents did not tell the school about it. I volunteered to run the lunch room and the administration disclosed that there were no peanut allergies this year. It's a board policy to have no peanuts, and may well be a way to entice parents to join. It's more that I make fun...
  25. nvsmom
    Welcome to the board. Your life will be much much simpler and safer if you can make the majority of your food gluten-free. All it takes is a crumb and you could be down and out for days. If they are willing to help you out with your new gluten-free diet at all, I would take them up on it... Gluten, well - any grains really - are not essential nutrients...
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