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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    It is a good idea to get the total serum IgA tested. About 5% of celiacs are low in IgA, which will affect the IgA based celiac disease tests. Only about 1% of the regular population is low in IgA.. Getting more tests is a good idea, if you can do it. I know it can't always be done. My doctor would only order the tTG IgA, and then the EMA IgA if the...
  2. nvsmom
    Welcome to the board. Two positive test results most likely means celiac disease. No, they aren't super high like some celiacs get, but some celiacs are seronegative - your results aren't out of the ordinary for a celiac. Plus you had been gluten-free for a short while before testing and that may have brought your results down. It is quite common...
  3. nvsmom
    Most are gluten-free. I can't remember the last time I put a lotion back on the shelf because of gluten. I avoid Aveano (sp?)because of the oats.
  4. nvsmom
    If you have the endoscopic biopsy done, she will need to be consuming gluten (between 1/2 to 2 slices of bread per day) in the 2-4 weeks before the procedure. Make sure at least 6 samples are taken; then endoscopy can miss up to 20% of celiacs but upping the number of samples taken can help reduce that. Many GI's (pediatric or not) will bump ahead...
  5. nvsmom
    It seems most autoimmune diseases end up with mouth ulcers. I used to get them more often before going gluten-free, but I still get them now which I attribute to other health issues. There are over 300 symptoms of celiac disease, many of which will cross over into other health problems making it harder to figure out what is what. This is the complete...
  6. nvsmom
    I find it helpful to remind people that I'm at the party for the people and the fun, and not the food. People usually can appreciate that. I too usually bring extra food, and more than what most would bring. My youngest son did a play last week and they had a potluck after. He's 7 and doesn't like to feel left out. Most people brought one dish but...
  7. nvsmom

    ARCHIVED Sharing Food

    nvsmom replied to Steph1's topic in Coping with Celiac Disease

    Yep, be afraid. LOL I agree that you should have some of your own food. Shared food is really only safe if you take your portion before anybody touches it; once others are into it, it could b=get contaminated. Be extra careful with condiments and spreads, and try to serve your self first from shared dishes like spaghetti sauce or eggs. Veggies and fruits...
  8. nvsmom
    This report (pages 8-12) has good information on testing: Open Original Shared Link It's a good one to take to the doctor.
  9. nvsmom
    You don't need an allergist to test for celiac disease. Celiac is not an allergy but an autoimmune disease. Any GP should be able to run the tests for you on Monday so you can start a gluten-free trial soon (once testing is done). These are all of the celiac disease tests available: tTG IGA and tTG IgG (tissue transglutaminase) - the most common tests...
  10. nvsmom
    LOL That is exactly how I felt about it too. Cider is just not beer! We have Green's up here, and it isn't bad, but it tastes like a home brew... there's only so much of that I can drink.
  11. nvsmom
    Doctors need to read this article: rates of celiac disease among obese children is the SAME as in the regular population.
  12. nvsmom
    Weird article. I can't figure out why they said it might help celiacs when they also said that cooking the pasta did not change the gluten proteins at all... That won't help celiacs at all. Dumb research idea. But I guess it will help all those people with allergens (not gluten sensitivities) who normally eat their pasta uncooked?! ooookay.
  13. nvsmom
    I had some positive results for my knees but I got out of taking it about a year ago. I was just sick of taking extra vitamins and had a little tantrum about it then stuck my head in the sand. LOL I should probably start it up again. Glad you are feeling better!
  14. nvsmom
    Did they run any IgG based tests, like DGP IgG and tTG IgG? I was wondering because her Immunoglobulin A (total serum IgA) is at the bottom of normal, 4 points away from being considered deficient, and low IgA can affect IgA based tests (DGP igA and tTG IGA). Getting the IgG based tests would be a good idea. Finding out what the actual test results...
  15. nvsmom
    Sleep eating ... LOL I don't have gluten dreams but I do have day dreams and the occasional pity party, and that is after being gluten-free almost 3 years. Lately I have been craving a big juicy burger, and ordering a dessert (cheesecake mmmmm) that isn't ice cream. And travel... I have three gluten-free kids who are picky eaters so whenever we travel...
  16. nvsmom
    YES! I first developed arthritis that would come and go in my twenties but it slowly got worse until I was finally diagnosed in my late thirties. When I went gluten-free, I experienced withdrawal but my joints were okay at the time. After 2 months gluten-free I had a really severe arthritis flare-up that lasted a few months. For me, things did get worse...
  17. nvsmom
    Before going gluten-free, you should know that if you want to get tested in the future, you will need to resume eating gluten (approximately 1-2 slices of bread per day) for the 2-3 months prior to testing. It can be very difficult to make yourself sick for that long for the sake of testing, so if testing is at all a possibility, you may want to consider...
  18. nvsmom
    Aw, thanks.
  19. nvsmom
    My symptoms did come in waves. I had good days, weeks, months and even years... On the flip side I had bad days, months, and years too. Not every meal made me sick, but as the decades went by I started feeling sick more often than well. If she has a gluten sensitivity (whether celiac disease or NCGS) by catching this now you will be making a huge positive...
  20. nvsmom
    Congratulations! When you introduce gluten will not affect whether she develops celiac disease but if she does develop celiac disease at a very young age, her babyhood could be sickly because celiac disease is harder to diagnose in the very young. The blood tests don't always pick up on early celiac disease, and it is known that it is more difficult...
  21. nvsmom
    I'm not sure. I know it causes inflammation which can cause deficiencies and that can affect growth, but I'm afraid I don't know much on that. I'll try to look into it but I think it will be tough to find since so little is known about NCGS.
  22. nvsmom
    You know your stuff there, Mom. That's good that you are getting her tested. Like Cyclinglady said, get all of the tests done. Celiac in toddlers is easier to miss, and theses tests can miss as many as 1 in 4 celiacs, so make sure all tests are done. The deaminated gliadin peptides tests (DGP tests) are often the best at detecting celiac disease...
  23. nvsmom
    If you can push back your blood test by a week or two, you can be more sure of an accurate test. Chances are the it will be fine, but in some people, and in some of the tests, auto-antibodies return to normal quickly (mainly the deaminated gliadin tests). Good luck.
  24. nvsmom
    (hugs) Cholesterol can go up after going gluten-free. Mine did a bit, but mine was too low to begin with. From what I have recently read, it is usually the sugars that raise cholesterol and not animal products and eggs as it used to be believed. Foods like baked goods and any added sugars can raise cholesterol. I've also read that cholesterol...
  25. nvsmom
    The laxative should have no effect on your test results. You can keep taking it if it is needed. The only things that could affect your results, and cause a false negative, is a gluten-free diet or steroids. Make sure you are eating about one slice of bread per day in the 2-3 months before the blood tests. Good luck and welcome to the board.
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