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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I keep playing around with different flours and starches to try and find the best one for gravy. In the last three years, I have failed to make the perfect gravy.... Help! I need a flour or starch that is gluten-free and that is nut-free, so mixes like Bob's Red Mill is out. I like the flavour of corn starch gravy but the next day gravy jello isn...
  2. nvsmom
    Are you sure it actually is constipation? I had chronic constipation my entire life as an untreated and undiagnosed celiac, but I didn't realize it because that was normal or me. Well, some days I sure did realize it, but for the most part I was clueless. Then when my BM's switched to normal, I thought I had diahrrea but it was actually normal Bm's...
  3. nvsmom
    This is what happens when I post BEFORE coffee.
  4. nvsmom
    ... Just don't eat it if you don't like it (and you are not a celiac or have NCGS)!
  5. nvsmom
    And WHY do we need the perfect way to MAKE FUN of gluten-free food?
  6. nvsmom
    Yeah...No. Not perfect. Why the heck do they need to poke fun in the first place? Yes some people are stupid about strictness and expect the world to cater to their whims, but why not make fun of egocentric narcissists? Those people are the problem, and not the gluten-free food. I dunno. Go make fun of how school lunches need to be peanut free instead...
  7. nvsmom
    Huh, I didn't know that either. I've been spoiled my entire life with beef that we butchered at an uncle's farm. It was all quite red, cut up, packaged, frozen and stayed bright red.... I don't know... when we cut the meat it is pretty red, but it has been hanging for a week in a cooler. And when my husband butchers deer and elk it is quite red.... ...
  8. nvsmom
    LOL I like their precise wordings to rank the beers, such as "Meh". I like Greens, but the darker beers instead of lagers... still tastes like a home brew though.
  9. nvsmom
    Welcome to the board. Ditto the others. The EMA IgA (endomysial antibodies) alone has a specificity for celiac disease at 98-100% (meaning out of 100 cases, 0-2 positives could be caused by something other than celiac disease) which is as good as it gets. If you consider that she had three other positive tests, which is quite unusual because many celiacs...
  10. nvsmom
    Welcome to the board. I disagree with Mamaw somewhat. I don't think it could be anything with a tTG IgA that is 4 times above the upper limit of normal. Generally, a false positive tTG IgA (which does occur in about 5% of positive tTG IgA results) is caused by thyroiditis, type 1 diabetes, crohn's, colitis, chronic liver disease, or a serious infection...
  11. nvsmom
    As Cyclinglady said, it is a good idea to run more than one celiac test (tTG IgA) in case of false negatives. The tests can miss up to 25% of celiacs, so while a negative means she has a good chance (75%) of not having celiac disease, there is still a chance. The DGP tests are good at detecting celiac disease in the young, and in early cases of the disease...
  12. nvsmom
    The deaminated gliadin peptide igG is the DGP IgG test, but AGA IgG stands for anti-gliadian antibody IgG .... at least in North America. If they said it was the deaminated gliadin peptide test then I would assume it was what we call the DGP test. I have no idea why they called it the AGA though.... Perhaps try asking if it is the newer test (came out...
  13. nvsmom
    Getting as many celiac tests done as possible is always a good idea because the tests can miss a minority of celiacs, up to 25%. You are missing quite a few of the tests. If you still suspect celiac disease could be a problem for you, you may want to request more tests. This is all of them: tTG IgA and tTG IgG (tissue transglutaminase) DGP IgA and...
  14. nvsmom
    I hope he continues to improve with the dietary changes. Thanks for the update.
  15. nvsmom
    As far as I know, low IgA only applies to celiacs. Some latent celiacs are called NCGS initially so I suppose it could sort of apply. I never thought about low IgA and the biopsy... that makes some sense. IgA is part of the immune system based in the mucosal linings, like mouths and our intestines, whereas IgG is a system wide part of our immune system...
  16. nvsmom
    Good idea. They do sometimes move people up (from what I've heard) if they are having a hard time.
  17. nvsmom
    Those tests all sounded like a different language when I first starting learning. LOL
  18. nvsmom
    Ditto Gemini. The tTG can be elevated from hashimoto's, diabetes (Type 1), liver disease, crohn's, colitis, or a serious infection. Get that DGP done too. Good luck.
  19. nvsmom
    Six weeks is a long gluten challenge for a endoscopy. Most doctors just require 2-4 weeks. Because yours is so long, you probably do not need to go overboard on the amount of gluten - one slice of bread per day is probably enough. I am sure you could go as low as half a slic or up to two slices, but don't do more than that. Many people with a longer than...
  20. nvsmom
    Welcome to the board. I'm afraid that it is probably celiac disease. The tTG (tissue transglutaminase) tests indicate an attack on the endomysial linings of the intestines, and the AGA (antigliadin antibodies) shows gluten intolerance... That probably means celiac disease. These reports have some info on the specifity of the tests (what percentage...
  21. nvsmom
    The only medically accepted tests for diagnosing celiac disease (at this time) are: tTG IgA and tTG IgG (tissue transglutaminase) - most common tests DGP IgA and DGP IgG (deaminated gliadin peptides) - good for diagnosing children EMA IgA (endomysila antibodies) total serum IgA - a control test AGA IgA and AGA IgG (anti-gliadin antibodies) - older, less...
  22. nvsmom
    I would tend to go safe rather than sorry, and trust the inmmunologist. Low Iga is found in about 1 in 20 celiacs. Low IgA in the regular population is about 1 in 700, so just having low IgA is sort of pointing to celiac disease. Don't look at growth as a clue. I was 95th percentile or higher my entire childhood and I am sure I had celiac disease...
  23. nvsmom
    LOL
  24. nvsmom
    I usually have Namaste on hand - it's nut-free too which is crucial for my son. Normally I just mix my own or stick to coconut flour with flax, chia, and hemp - heavy but good.
  25. nvsmom
    It is possible, though unlikely, that you could still have celiac disease. The tTG tests are good to have, and are reliable most of the time, but it is possible that they missed you (though as I said - unlikely). The Gliadin Ab are the AGA tests, and they are quite unreliable. The AGA IgG can miss as much as 80% of celiacs. These tests have largely...
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