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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    I agree.
  2. nvsmom
    Interesting... I never thought to compare a gluten-free menu to having wheel chair ramps in terms of accessibility...they wouldn't charge the handicapped extra to cover the cost of the ramp construction but they charge extra for the extra care needed for making gluten-free food. I don't really agree with the law suit, or calling celiac disease a disability...
  3. nvsmom
    What is that dog on? Lol
  4. nvsmom
    The tests that doctors trust for diagnosing celiac disease are tTG IgA, tTG IgG, DGP IgA, DGP IgG, andEMA IgA. If one of these blood tests are positive, it most likely means you have celiac disease with 95% accuracy. Some doctors think the AGA IgA and AGA IgG may indicate celiac disease or non-celiac gluten sensitivity (NCGS) but that it diagnoses NCGS...
  5. nvsmom
    Celiac symptoms can be quite severe in some - there are many adults around here who missed work because of it. Getting him tested sounds like a good idea. Best wishes.
  6. nvsmom
    I agree, first degree relatives should be tested every two years (for life) or as soon as symptoms are presented. Babies and toddlers often don't test as reliably accurate as adults so make sure all the tests are run, especially the deaminated gliadin peptides (DGP IgA and DGP IgG). If symptoms are present, but the kids test negative, it is possible...
  7. nvsmom
    I don't know much about salivary tests either. I don't think they are wisely accepted so you may want to do the blood tests. Do as many as possible (before going gluten-free) as these tests can miss some celiacs: tTG IgA and tTG IgG (tissue transglutamnase) - most common tests DGP IgA and DGP IgG (deaminated gliadin pepides) - newer tests that are often...
  8. nvsmom
    Nice!
  9. nvsmom
    Isn't that tTG IgA a weak positive? The normal range is less than 4 (<4) and he was a 4.
  10. nvsmom
    I doubt there was any gluten in what you ate. I think your system is just trying to settle down. Many celiacs experience withdrawal in the first few weeks; some symptoms get worse and many end up feeling worse before they get better. Also remember that most celiacs will continue making autoantibodies for weeks or months after going gluten-free....
  11. nvsmom
    LOL When I first clicked on this I was half expecting a breast milk story. LOL Congrats on the milk! chuckle chuckle
  12. nvsmom
    I too had to doctor shop to find someone who would prescribe NDT to me. My GP told me his "scientic mind" would not allow him to prescribe NDT. LOL I can laugh now but at the time I was so frustrated with him that I was in tears. Getting the thyroid right is hard. Hang in there.
  13. nvsmom
    Welcome to the board. It looks like your have even more food issues to deal with than most of us. There are a fair number around here with corn, soy and dairy issues too - you're in good company. Just a reminder to keep an eye open for celiac in your kids too. They'll have a 1 in 10, to 1 in 25, chance of developing celiac disease too. I they...
  14. nvsmom
    I think most people notice some improvements in some symptoms within the first few weeks, probably the first to get better are some stomachaches and bloating. As a general rule, people usually feel quite a bit better after 6 months, and some continue to improve over the first few years. Keep in mind that about a third of all celiacs will experience withdrawal...
  15. nvsmom
    I agree. It could be those crumbs that are keeping you feeling poorly. A year ago, I accidentally bought my kids some frozen french fries that had some wheat flour on them (in the spices I assume). I was clueless and ate a few (2-4) every few days when we had them. I slowly started to feel not right, not horrible like I would if I drank a beer or ate...
  16. nvsmom
    Cattle lots can be gross. We get our meat from the family farm and even that can be gross... poop up to the ankles anyways. LOL
  17. nvsmom
    Good luck with the diet!
  18. nvsmom
    I'm in Canada so what I take, even if the same name brand, may be different than what is available in the USA. I used to take about 150mcg of Levothyroxine as Synthroid. It wasn't doing it for me so I switched to a natural desiccated thyroid product called Erfa's Thyroid. I take about the same amount (150) as when I was on Synthroid. I personally like...
  19. nvsmom
    I was probably the one who said the TSH should be near a 1. That is generally true for those with a hypothyroid problem (meaning those with low Free T3 and free T4). People without low hormones (euthroid) seem to often be okay with a higher TSH than those with problems... Keep in mind I'm not a doctor and this is just info I've researched and interpreted...
  20. nvsmom
    Welcome to the board. It is pretty unusual to not see damage during the endoscopy. Some have redness or irritation but most have to wait for the biopsy results - you are one of the majority here so try not to worry. Chances are that your intestines have not healed in two weeks of being gluten-free. Most people take weeks or months for their...
  21. nvsmom
    That's probably a match then. Welcome to the club. Are they planning on doing the endoscopic biopsy to confirm the diagnosis? If so, you'll need to be eating gluten in the 2-4 weeks prior to the procedure so you may not want to go gluten-free yet if you are having it done. Many celiacs find it really tough to go back on gluten after starting to...
  22. nvsmom
    Yes. The reticulin tests were not that reliable and missed too many celiacs. Not many labs still use them. The tTG IgA is the most common tests with a specificity to celiac disease of 95%. Most likely you have celiac disease. How do you feel about that diagnosis? Does it seem to fit? Welcome to the board.
  23. nvsmom
    Happy to help. Thinking about having celiac disease is scary and overwhelming but in some ways it is one of the better health problems to have - at least we can be treated without drugs or invasive procedures. Starting gluten-free diet is a tough time though. I'm sure if you look around the boards, especially in the prediagnosis forum, you'll find...
  24. nvsmom
    Welcome to the board. It looks like the normal reference range for that tTG IGA test is 0-5 and your result was less than 1 (<1). It looks like that result was negative for celiac disease. If you are concerned that you have celiac disease though, you should probably get more testing done. The tTG IgA has a sensitivity that can be as low as...
  25. nvsmom
    Welcome to the board. Laura gave you great advice so I have nothing more to add to that. I agree it might be nice to see if you can move things up so you can just stay on gluten, especially if they are planning on doing more blood tests. Some celiacs find the 2-4 week gluten challenge needed for the biopsy to be more doable than the 3 months needed...
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