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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    That's partially true. Up to half of celiacs seem to have lactose intolerance because their damage intestinal villi can not produce the lactase needed to digest lactose, but that changes for some as the heal over the next few months. A large minority of celiacs are affected by the milk protein, casein which causes inflammation although there is not evidence...
  2. nvsmom
    Welcome to the board. Give yourself a lot of time for symptoms to normalize. It can take many months to recover. My sleep problem was sleepiness. I had a tough time staying awake past 9:00. If I was working out, I was in bed shortly after 8:00! LOL Now I can actually stay awake until 11:00 or so if there is a show I want to see. I can actually...
  3. nvsmom

    ARCHIVED New

    nvsmom replied to williamsb's topic in Coping with Celiac Disease

    Welcome to the board. Chances are that the test done on you was the tissue transglutaminase immunoglobulin A (tTG IgA). It is the most common test out there and can have differing normal ranges (such as 0-4, 0-15, or 0-20). None of the ranges go higher than the 20's though, so if your result was 74, that is a very strong positive. With the tTG IgA test...
  4. nvsmom
    We use Bob's Red mill Mix. It isn't bad but I add extra baking powder, flax meal, eggs, salt and garlic to give it a bit... more flavour and substance. I've done a few crusts from scratch too and they work out fine - just take a bit more time. The kids like tortilla pizzas too, or just sauce and cheese on toast is a quick lunch. I tend to use daiya...
  5. nvsmom
    Welcome to the board, Drys. Corn and soy are probably going to be harder to avoid than gluten. Corn is in most processed foods. As StephanieL said, you`ll probably need to do more cooking and baking now. You will find products and recipes that work for you but it will take a few months to settle into your groove. Luckily fries, homemade pizza and...
  6. nvsmom
    Cristiana made a really good point. Many of us carry snacks with us because eating out is not generally safe. I usually have Lara Bars and nuts with me but for my kids I usually pack granola bars and treats. If you have food with you, it is easier to skip a food. If you know there will be food, if you plan ahead and bring something, it makes it simpler for...
  7. nvsmom
    Yes, the genetic tests just tell you if you are in the higher risk group for getting celiac disease, not if you have it. Plus it is possible, although quite unusual and rare, to get celiac disease without the DQ2 or DQ8 genes.
  8. nvsmom
    Excellent!
  9. nvsmom
    Yeah... as the others said, a lot of bad things will happen if you continue eating gluten, they just haven't happened to you yet. I had undiagnosed celiac disease at your age. By age 19 I developed another autoimmune disease (most likely triggered by untreated celiac disease) that almost caused me to bleed to death. By my 20's my hair started falling...
  10. nvsmom
    The others gave good advice, getting tested for celiac disease, if you can hack the needed 2-3 month gluten challenge, is a good idea. As a celiac, you would need to be 100% gluten-free (checking vitamins, lotions, sauces, spices, not sharing a toaster, etc) and many people aren't that careful unless they know they need to be. Getting tested could be helpful...
  11. nvsmom
    Some celiacs are a bit low in some nutrients so if you are concerned you could have these checked: folate, B12, D, A, ferritin, K, Mg, Ca, Fe, Cu, and zinc. Giving up food with gluten should not affect your nutrient levels unless you are relying on fortified (vitamins added back in) products, like breads or cereals, for your vitamins. Veggies, meats...
  12. nvsmom
    I would just ask. Perhaps take some evidence to back you up, but most doctors if asked, for a good reason, for a specialist referral will do it for you. I'm up in Canada so getting in to see a specialist is often more difficult than in the States, but most up here seem to do it if you ask for one. That test was positive so at the very least the doctor...
  13. nvsmom

    ARCHIVED Time To Lose

    nvsmom replied to nvsmom's topic in Related Issues & Disorders

    I was joking... mostly. Sounds like you are at a pretty good weight.
  14. nvsmom
    Awesome! Congratulations!! I have my skinny jeans too. They're probably out of style now but still, I'm keepin' them.
  15. nvsmom
    Cognitive and anxiety issues are really quite common among celiacs. The problem is that not many people, or doctors, equate forgetfulness, cofusion or panic attacks with a harmless bowl of noodles or an innocent peanut butter and jelly sandwich. Could the doctor who ordered those tests for you refer her to a specialist? It sounds like she isn't keen...
  16. nvsmom
    Welcome to the board. Many, or even most, diseases seem to have symptoms that are on and off again, Gall bladder problems and celiac disease are both that way. It's like our body is trying to make it harder diagnose on purpose. I don't know about very much about gall bladder issues (beyond that celiac disease can cause some of the problems) but...
  17. nvsmom
    Yes, celiac disease tests were not run, just the genetic tests and the IgA (control test). The tTG, DGP, and EMA tests still need to be done, and or the biopsy. Best wishes and welcome to the board.
  18. nvsmom
    The DGP IgA is pretty specific to celiac disease. According to the World Gastroenterology report on celiac disease, the DGP IgA is 93-96% specific to celiac disease, so chances are that she has celiac disease. See page 12 for the info: Open Original Shared Link It is not thought that DGP tests will be positive for non-celiac gluten sensitivity (NCGS) -...
  19. nvsmom
    Some are worse and some aren't - it really varies between people. Good luck with it!
  20. nvsmom
    It could be celiac disease or non-celiac gluten sensitivity (NCGS) as your symptoms do seem to fit. I used to get stomach aches pretty randomly too; I still do compared to most people but nothing like I did before going gluten-free. It looks like all of your testing is done so you could go gluten-free at any time. Even if the biopsy is negative, you...
  21. nvsmom
    As Cyclinglady said, it is a good idea to get your lab reports so you can judge if they enough was done or if they were interpreted correctly. Many celiac screens are just the ttG IgA, and total serum IgA and that's not enough for many celiacs to be found. Best wishes.
  22. nvsmom
    The tTG IgA is just one celiac disease test, and it has a false negative rate as high as 25%, which is not all caused by a low serum IgA. This World Gastroenterology report on celiac disease (pages 10-12) discusses the tests and how sensitive and specific to celiac disease they are: Open Original Shared Link As you can see, results are more reliable if you...
  23. nvsmom

    ARCHIVED Time To Lose

    nvsmom replied to nvsmom's topic in Related Issues & Disorders

    Looks like a really good plan. Thanks for posting the links. That is basically what I am doing with a few tweaks here and there. I really liked the printable shopping list downloads. I am going to print a couple off just to remind myself of how I should eat. Thanks I actually skipped my workout today. My knees and hips were really bad this...
  24. nvsmom
    Scalloping in the intestines is a pretty common thing in celiacs, especially in early cases. It would be described as Marsh 1-2 on the Marsh scale of damage. I think they won't diagnosis celiac disease based on a biopsy until it gets to stage 3. I don't know much about biopsies though, I skipped it, so I don't think I can help you much with that. Try...
  25. nvsmom
    LOL It helps. I actually have a hold on that one at the library. I should have it by February. Good luck with the rheumy! I hope you find answers, but then again I hope you don't. I know when I saw the rheumy I actually broke into tears of frustration when she said my arthritis must be celiac disease related. I was relieved but ridiculously...
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