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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    You're not crazy, it could be celiac disease so it is a good idea to get it checked... Just in case. Celiac disease is not an allergy though so seeing an allergist for a diagnosis may not be helpful - it depends entirely on if the allergist has chosen to educate himself in this non-allergy field. Celiac is an autoimmune disease, like lupus, diabetes,...
  2. nvsmom
    I hear you! If I drink wine I turn into Rudolf within minutes!
  3. nvsmom
    My SIL is gluten-free and they have learned how to be careful for me, so I consider myself very lucky that they invited us over for Xmas dinner again. On Xmas Eve we are again heading up into the mountains for a sleigh ride and hot dog roast. It has been unseasonably warm this December so I am keeping my fingers crossed that they'll have enough snow...
  4. nvsmom
    Welcome to the board. Once you find a few gluten-free items that you like, you won't need more variety. Most of us just used wheat flour before we were dagnosed, and that's just one thing, right? I tend to keep coconut flour and Bob's Red Mill All purpose gluten-free flour in my cupboard. I also use ground flax meal, hemp and ground chia seeds in...
  5. nvsmom
    Those are symptoms of celiac disease, but they can also be symptoms of non-celiac gluten sensitivity (NCGS)... I'm not helpful, am I? I'm glad you've got it narrowed down to one of two problems, and the treatment for both is the same so you know how you'll be moving forward in the long run. When you see the GI, make sure he'll run all of the tests...
  6. nvsmom
    Hang in there. Celiac limbo really is a world to develop patience in... darn it.
  7. nvsmom
    LOL
  8. nvsmom
    I made that same mistake a year ago too. I hope you feel better.
  9. nvsmom
    Ditto Cyclinglady, that is all great information. Keep eating gluten, and see if you can get those other tests done before going gluten-free. Good luck!
  10. nvsmom
    It really is up to you. Many parents find it helpful to have a diagnosis to keep the child gluten-free. Apparently schools often respond better to a diagnosis rather than just a parent's word about the matter. I haven't had that experience but I am in Canada so perhaps it is different (my kids are gluten-free without a diagnosis). There are some around...
  11. nvsmom
    Keep in mind that the biopsy can miss up to 20% of all celiacs.
  12. nvsmom
    That's probably enough, but there is no way to be sure. It sounds like he is close to a slice of bread per day. Perhaps up his intake just a bit, it's not hard with Xmas baking around, and make sure it is daily (if possible).
  13. nvsmom
    My symptom as a child was stomach aches after every meal. I remember seeing a doctor about it while stll in elementary school and being told that I was "one of those people who gets a stomach ache every time they eat". Helpful. He told me to drink more milk but that made it worse. My oldest had a lot of stomach aches too but he tested negative...
  14. nvsmom
    Welcome to the board! It is pretty bittersweet when you find out that gluten is behind your health problems from a very young age. On one hand it is exciting to start feeling better and to know there is a treatment, but on the other hand it is frustrating that no one solved the problem a few decades earlier. There are many of us here who feel that way...
  15. nvsmom
    Nothing. Your results were sky high, you have celiac disease in the family, and you have symptoms - that's celiac disease. You appear to have a doctor who wants to cross all of their t's and dot all of their i's before they'll sign off on a diagnosis. About 5% of all positive tTG IgA results are caused by diabetes, crohn's, colitis, thyroiditis, chronic...
  16. nvsmom
    That's not a bad looking report except for the the part that says these groups of test results would be inconclusive for celiac disease: tTg IgA=Negative Total IgA=Low tTG IgG=Positive EMA=Negative A positive test is a positive test for celiac disease in over 95% of all cases... I don't know how they could say a positive tTG IgG is inconclusive. Odd.....
  17. nvsmom
    I often see 8 weeks as the minimum and as long as 12+weeks with 1-2 slices of bread per day (I would round down for a child) as the suggested gluten challenge. The DGP tests tend to change (ei. become negative on a gluten-free diet) faster than the tTG tests do so I would make sure gluten is eaten every day if you can - better safe than sorry. Make sure...
  18. nvsmom
    That sounds like constipation was for me. I'm afraid it took me quite a few months to go away and I still deal with it off and on now if I'm not eating well.
  19. nvsmom
    My only fear would be that ingredients that should be listed as gluten-free (like a steak and baked potato) may be listed as containing gluten to cover their butts because of the possibility of cross contamination. As long as restaurants aren't over reacting and trying to cover their butts legally, that law would be a real benefit, as Gemini pointed out....
  20. nvsmom
    Yes, there is usually a normal range like 0-4 or 0-20; a celiac's results would usually be elevated above the top of the normal reference range given. We can't comment because labs (and cities) have different tests and normal ranges. Best wishes.
  21. nvsmom
    Yes... A few years ago a neighbor offered my boys Rice Krispie squares and I declined because they have gluten. She argued with me that they don't and that she made them for her DIL (or was it grandchild) so she knew it was safe... Um, no. This was before the gluten-free Brown Rice Krispies had shown up in Canada.
  22. nvsmom
    I have to admit, the first thing I thought of was pregnancy too. I had only thrown up a few times in my life but while pregnant I was sick over everything to the point where I had to wash my face many time a day because the smell of my upper lip made me sick. LOL I can laugh now but at the time I was miserable. I hope you feel well soon. I agree with...
  23. nvsmom
    All really good ideas, guys! Thank you! I'm going to get my kids to look at this with me tomorrow morning and we'll pick out a few to make. Mmmm, I'm getting hungry reading these recipes.
  24. nvsmom
    LOL snort.
  25. nvsmom
    What!? No... Well, yes, I doubt round-up is good for you BUT it doesn't cause celiac disease. celiac disease didn't just appear in the last couple of generations along with Round-up. I really dislike articles like this.
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