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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Awesome! ...but I don't know if I would be as excited about getting spinach back. LOL JK
  2. nvsmom
    Welcome to the board. Was it just an endoscopy that you had done or did you have blood tests as well? If you have a bunch of tests done, including endoscopy, it can sometimes make the results a little bit more clear. That being said, I would say the majority of the people on this forum joined because of testing confusion - it is very very common....
  3. nvsmom

    ARCHIVED Time To Lose

    nvsmom replied to nvsmom's topic in Related Issues & Disorders

    Thanks all. It really is a blessing in disguise to lose your appetite when trying to cut back! LOL Plus I can't smell anything so most treat foods would be pretty flavourless for now. I almost want this to last a couple of more days while I get into the swing of things. For those of you who are soy and corn free, I'm beginning to feel your frustration...
  4. nvsmom

    ARCHIVED Time To Lose

    nvsmom replied to nvsmom's topic in Related Issues & Disorders

    Don't you wish a food reaction was immediate and obvious? The guess work and detective work gets old fast. LOL I've come down with a cold or flu so that is helping disguise my withdrawal, plus the lack of appetite keeps me out of the food. There's a bright side to feeling crappy, I know there is. LOL No dairy, soy, sugar, peanuts, corn or eggs...
  5. nvsmom
    The immunoglobulin tests (IgA and IgG) are often run by doctors but they are not celiac disease tests. The gluten allergen IgG is probably just a poorly worded test. An allergy would be an IgE response. An IgG response to a food is a sensitivity - no histamines are involved. Some alternative docs will run IgG based food sensitivity tests. Most GP's would...
  6. nvsmom
    She may just be one of the unlucky ones who takes a (long) while to get back to normal. In some in can take well over a year. As long as you are sure she is gluten-free, and her numbers keep moving down, then I would just keep doing what you are doing. Hang in there.
  7. nvsmom
    Good luck!
  8. nvsmom
    The biopsy requires a shorter gluten challenge of about 2-4 weeks, so if your appointment is a ways off into the future, you might be able to eat gluten-free for a while and then go back to gluten as the endoscopy approaches.
  9. nvsmom
    I didn't mean to imply you aren't managing your thyroid well. I apologize if I offended you. This report has more info on celiac disease that you might find helpful: Open Original Shared Link
  10. nvsmom
    Welcome back. That is very odd that his tTG IgG went up after being gluten-free. I would assume he is still getting gluten somewhere or something else is elevating it still.... To be honest, I've never seen a test result double after going gluten-free - I'm at a bit of a loss. The tTG IgA can get a false negative if the patient had thyroiditis...
  11. nvsmom
    I'm afraid none of those tests appear to be tests for celiac disease. You were tested for gluten allergen IgG, which sounds like a celiac disease test but celiac disease is not an allergy. Actually, I don't believe there is an allergy to gluten although there are allergies to wheat. celiac disease is an autoimmune attack which is kicked off by a gluten...
  12. nvsmom

    ARCHIVED Time To Lose

    nvsmom replied to nvsmom's topic in Related Issues & Disorders

    I'm hoping some of this is inflammation too and it goes fairly quickly. The rest, well, it will take some work. Its just this starting out and getting into a groove thing. Once I'm into it I'll be okay. Its that first few weeks which are tricky. I think I'll get there though... I have too - I can't stand feeling my back jiggle when I run! YUck! LOL...
  13. nvsmom

    ARCHIVED Time To Lose

    nvsmom replied to nvsmom's topic in Related Issues & Disorders

    Shopping is no fun. I'm in "fat clothes" right now, and I had to shop for more because I got rid of them a couple of years ago. I couldn't bring myself to spend money on fat clothes so I went to the thrift stores... it was almost fun shopping because I didn't need to spend much. LOL
  14. nvsmom

    ARCHIVED Time To Lose

    nvsmom replied to nvsmom's topic in Related Issues & Disorders

    Congrats SMRI. You've done well. I actually lost about 15-20lbs when I went gluten-free without doing anything. That was lovely.... It didn't last on me though. Darn it. I'm looking into the "Virgin Diet". She encourages people to get rid of the major food sensitivities and that includes sugar. So, I though I'd go all out for 21 days and see...
  15. nvsmom
    I've sen that one before but I love it!
  16. nvsmom
    I'm glad nothing is too high for you, but that almost works against you because nothing is as clear cut. I hope that MRI goes well and there is no sign of a pituitary adenoma. Let me know how the OGTT GH suppression test and the MRI goes. I hope they clear you of any problems and your abnormal labs were just an unexplained blip like mine.
  17. nvsmom
    I'm a sweater. Some months and weeks are worse than others. Exercise and stress (rushing) make me sweat a great deal.... Just the process of waking up does actually. LOL I'm afraid I did not notice any difference between when I was undiagnosed and now that I am gluten-free. Sugar makes me sweat more - darn it. Switch to antiperspirant, it helps keep...
  18. nvsmom
    Welcome to the board. The first few weeks after the diagnosis are the hardest. You need to change your way of eating, we don't feel better yet (recovery can take weeks to months to years), and about a third experience withdrawal so they actually feel worse for a couple of weeks before they get better. You may need to give 100%gluten-free some more...
  19. nvsmom
    Yep, It is the celiac's responsibility to safely feed themselves. Even if someone was to try to feed us, in most instances they wouldn't know how to safely prepare my food and I would trn it down anyways. Some gluten-free alternatives the church could provide are fruit and veggies - safe and healthy.
  20. nvsmom
    This article discusses how hypothyroidism can cause lower IGF-1 so I assume it would go up if one was hyper (which I was when I first started natural desiccated thyroid hormones). http://www.clinchem.org/content/50/1/228.full And another: http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2265.1987.tb00842.x/abstract?deniedAccessCustomisedMessage=&userIsAuthenticated...
  21. nvsmom
    I too think you need to plan ahead. Have those gluten-free substitutes with you at all times so there is no way to rationalize cheating. Go everywhere with food and don't go anywhere hungry.
  22. nvsmom
    My 7 year old cut his in half and added jam - he said it was peanut butter and jam muffin-wich. LOL
  23. nvsmom
    Its hard to be left with no direction, and particularly annoying when doctors tell us not to google stuff. That tTG IgG looks positive so there is a good chance that it is celiac disease. The following report discusses the specificity of the tTG IgG - specificity is the percentage of positive tests caused by celiac disease - and it states the SP of...
  24. nvsmom
    Welcome to the board. If you suspect celiac disease, and since you already have a thyroid problem (Hashimoto's is closely linked to celiac disease), I would really push for celiac disease tests. Any GP can run celiac disease tests but some feel more comfortable referring you to a GI first. Allergists are concerned with a whole separate part of the...
  25. nvsmom
    The immunoglobulin A (IgA) is considered to be a control test for celiacs. It is a measure of the immune function in the mucosal linings of the body like the intestines and mouth. For some reason, celiacs have a much higher tendency to be deficient in IgA - about 5% are IgA deficient whereas in the regular population it is more like 1 in 700. IgA deficiency...
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