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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Good luck with the gluten challenge. I hope you don't feel too poorly.
  2. nvsmom
    The gastro is the one who would do the endoscopy in all cases. Most are referred to the gastro by their GP; having an endo in a celiac diagnosis is a bit unusual. It is a good idea to get check for celiac disease if you have Hashi's. I think I read that up to 3-6% of Hashi's patients have celiac disease, and 10% of celiacs have hashi's. Most people...
  3. nvsmom

    ARCHIVED Time To Lose

    nvsmom posted a topic in Related Issues & Disorders

    I'm making myself a weight loss thread. I need to keep myself accountable and doing it in public may help. LOL When I first went gluten-free in June of 2012, I lost some weight. I was mildly overweight but I carried it pretty well on my 5'8" frame. I think I was around 175-180lbs when I was diagnosed. In the first few months lost a good 15 lbs without...
  4. nvsmom
    Unless your nutritionist is knowledgeable on celiac disease or the gluten-free diet, they may not be a lot of help. I've heard very mixed reviews on seeing a nutritionist. Basically, for me it boiled down to the fact that it is healthier to limit your gluten-free substitute foods as they tend to be less healthy than wheat flour foods. For example, prepackaged...
  5. nvsmom
    There is definitely a link between dairy and celiac disease. I've read that roughly half off all celiacs are lactose intolerant at diagnosis, before going gluten-free. It is believed that is caused by the intestinal villi blunting that celiacs experience. Lactase, the enzyme that digets the milk sugar, lactose, is made by the intestinal villi. When...
  6. nvsmom
    Welcome to the board. I changed my diet as soon as possible. I did not finish off any gluten products but gave them away instead. It took me about a week to be sure that my home was gluten-free.
  7. nvsmom
    Since your total IgA appears so low (hard to say without the range - I swear the labs use different ranges just to confuse us) then all of your celiac tests that use IgA (tTG IGA, DGP IgA, EMA IgA, and the old AGA IgA) will be negative - falsely or correctly so. You would need the IgA based celiac tests (like tTG IgG) and possibly a biopsy to rule out celiac...
  8. nvsmom
    This thread is a bit old so you may not get a response, but I'll jump in. Make sure you read the labels of your protein powders beyond the gluten-free labels. Some in the gluten-free Ingredients and Food Labelling forum recently was glutened by a protein powder! that was labelled gluten-free but it had sprouted barley in it! I think it was called Greens...
  9. nvsmom
    I'm hypothyroid, 40 years old, and I am starting to get flashes of heat.I'll wake up in the morning with a greasy head and a moist t-shirt in the front. I also get sweatier than I should when I do other activities or I'm late and flustered. Its just enough to be slightly annoying and make me wonder if I'm hitting perimenopause. I thought about it being...
  10. nvsmom
    I have what appears to be Hashi's too, and going gluten-free did not do much to my TPO Ab levels either. My TPO Ab is pretty low for Hashis (like yours) but that doesn't change the fact that I am almost on a full replacement dose of meds. Going gluten-free did not seem to alter my medication dosage either. Is it possible for you to get a copy of...
  11. nvsmom
    I'm happy to try to help. Good luck with the GI. I hope he's a good one and knowledgeable in celiac disease. Let us know how it goes.
  12. nvsmom
    That is really great! Congrats to you. You are definitely doing the right things.
  13. nvsmom
    IBS is often the diagnosis they give to celiacs or those with non-celiac gluten sensitivity (NCGS) before they have figured out the cause of the pain. Someone around here used to joke that IBS is a doctor's acronym for "I Be Stumped". Do you know the ranges for those celiac tests you had run? The tTG IgG, DGP IgA, and DGP IgG tests look negative but...
  14. nvsmom
    Two weeks is usually long enough of a gluten challenge for and endoscopic biopsy. 2-4 weeks is usually the recommended time. Because you are just doing 2 weeks, don't eat gluten lite. Make sure you eat the equivalent of 1-2 slices of bread per day. Try to make sure that they take 6 or more biopsy samples - the intestines has the surface area of a tennis...
  15. nvsmom
    The AGA (anti-gliadin antibodies) tests are both about 80-95% specific to celiac disease. A positive result means that there is a 80-95% chance that it is caused by celiac disease. Look at page 12 of this report for the numbers: Open Original Shared Link Some doctors also believe that the AGA tests can indicate non-celiac gluten sensitivity (NCGS) which...
  16. nvsmom
    Welcome to the board. The tests for celiac disease almost always indicate celiac disease. The rate of false positives is very low, generally below 5%, and those weak positives (often the tTG IgA) are caused by something else like a serious infection, thyroiditis, diabetes, crohns, colitis, and chronic liver disease. With a family history of celiac disease...
  17. nvsmom
    There are very basic restaurant cards available for free on the web. Here is the French version: Open Original Shared Link Japanese: Open Original Shared Link Japanese including soy sauce explanation: Open Original Shared Link My reactions to gluten tend to grow when I am repeatedly exposed. I feel worse as time goes on and it can take many weeks...
  18. nvsmom
    I'm glad things are going so well for you! Its always great to hear a success story.
  19. nvsmom
    A multivitamin can help with some nutritional deficiencies but it is not always effective (can't be absorbed by a celiac's damaged intestinal villi). If you suspect celiac disease, I strongly recommend getting tested. It is not possible to get an accurate celiac disease test after going gluten-free so it is best to test before any dietary changes are...
  20. nvsmom
    Thanks girls. It's a shame how just a couple of crazies can make such a mess of things. I don't understand how those nut jobs could think murder is a good idea... Its beyond me.
  21. nvsmom
    My numbers are low or on the low end of normal too. It is not that uncommon for a celiac to have low cholesterol.
  22. nvsmom
    Frustrating. I think it could be one of two things: 1. You have celiac disease but he didn't do enough tests to catch it or you gluten challenge was not long enough. 1-2 slice of bread for 8-12 weeks if usually required for accurate blood tests. The blood tests you want done are tTG IgA, tTG IgG, DGP IgA, DGP IgG, EMA IgA, and total serum IgA. Those...
  23. nvsmom
    If they aren't going to test you further, you may just need to go back on the gluten-free diet (not gluten-light) without a GI doctor's blessing. Treatment is the same for celiac disease and non-celiac gluten sensitivity (NCGS) - the gluten-free diet. Be strict with it. If you are a celiac you can't have any gluten or you'll hurt yourself, and if you have...
  24. nvsmom
    Good luck! I hope you get very clear cut answers. Let us know!
  25. nvsmom
    It is a shame if he did not run the celiac tests at the same time as the genetic tests. Those genetic tests only tell you if you are in the 30% of the population that is more likely to get celiac disease - since you already have RA, you are already at increased risk of celiac disease. The celiac blood tests are tTG IgA, tTG IgG, DGP IgA, DGP IgG, and EMA...
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