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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    Huh. I would go along with the ped to rule out crohn's but get your GP to run the full celiac disease panel in the meantime. Cover all you bases so you can be more sure. Hang in there.
  2. nvsmom
    Ahhh. Why didn't I think of that? I guess because I'm not really thinking before my first cup. LOL Just think, 150 years ago they would have been applying leeches to drain the bad humours in your body. The blood draw has got to be less... maybe. Just in case, bring a cookie (or three) with you so you don't feel faint. I just went...
  3. nvsmom
    Welcome to the board. Roughly 97% of celiacs have at least one of the DQ2 or DQ8 genes, but that means that about 3% of celiacs do not. It is very unusual to have celiac disease without one of the DQ 2 or DQ8 genes but it does happen, and I think we have two board members who have confirmed celiac disease even though their genetic test was negative...
  4. nvsmom
    Snort. That's why I can't watch more than 5 minutes of racing - not my thing. NASCAR actually isn't very big up here. Car racing in general really.... Probably because there is snow on the tracks for 8 months of the year.
  5. nvsmom
    The symptoms of crohn's can be similar to celiac disease but it is less common that celiac disease. Crohn's tends to affect the large intestine and the end of the small intestine - issues that can be seen in the colonoscopy. With such a young guy, chances are it is not crohn's. Your doctor probably just wants to check everything.
  6. nvsmom
    You know, my lifelong C finally cleared up when I started Erfa's Thyroid (Canadian made NDT, very similar to Armour, which I take). Perhaps if I had not been staring from C, I would have ended up with D too. To be honest, I still flip back and forth between a small bit of C, normal and D, a few times a week basedon what I've eaten - D shows up more now...
  7. nvsmom
    LOL
  8. nvsmom
    Corn and rice are in almost every cracker. I would keep a journal like Ravenwoodglass suggested and keep a close eye on how you feel 30 minutes to 3 days after eating corn and rice . Don't forget that symptoms can take a few days to show up. Best wishes.
  9. nvsmom
    Chances are, after only two weeks, that celiac disease tests would not be greatly affected BUT in some people that is enough time. to bring the numbers down. A six week gluten challenge should be more than enough time to get as accurate tests as possible. The celiac disease tests do miss people so make sure you get as many tests done as possible to increase...
  10. nvsmom
    Oops. You're right. This is the link I often refer to when the tTG IgG is discussed. It shows the specificity is about the same as the tTG IGA (if a tiny tiny bit better) but the sensitivity is much lower - it can miss more celiacs than it catches... Open Original Shared Link Good luck on the 6th. What will they be looking for there. Are they...
  11. nvsmom
    Pack a BIG cooler. I've sent my grade 7 son away to cadet camp a couple of times and the cooler is a help. They do have some gluten-free food but giving him some extra muffins, loaves, nuts, granola bars, crackers, and Chex was a big help to him. I even sent along extra fruits and lunch meats to help fill him up. It's doable. I have also lived out...
  12. nvsmom
    I don't know if you all have seen this Superbowl ad yet. In it the star says, "When our idea of danger is eating gluten, there's trouble a foot." implying that we are a bunch of sissy, picky eaters. It is a totally unnecessary jab at the gluten-free diet, and frankly, they are quite wrong - for us gluten IS dangerous. You can see the ad (see the first...
  13. nvsmom
    Ah geez. Thyroid problems suck. They take WAY to long to sort out. I'm sorry your numbers are not what they should be. Don't bang your head against the wall too long. I think you need some T3 too. My T3 stayed quite low even when I was getting up to a full replacement dose of levothyroxin, but when I switched to NDT (granted too much) it shot above...
  14. nvsmom
    Hang in there. As the others said, it really does get easier. Get yourself a few gluten-free treats on hand so you don't have to go without. It might help you feel better about the diet. Have you had your thyroid checked? Hypothyroidism is more common among celiacs, and when your thyroid is slow, it can slow your metabolism down by a fair bit. Check...
  15. nvsmom
    Ditto. Nuts are a big help.
  16. nvsmom
    Yeah... many will believe that. It's just ignorance. You'll get eye rolling but there is nothing really to do about it but stick to your guns, and maybe order the boring salad... maybe bring some interesting toppers to add to it? I generally just order coffee or a drink when going out with others. Sometimes that is the simplest route. If people...
  17. nvsmom
    No! Grrrrr. How irresponsible of that nutritionist. Disgusting advice - Make yourself sick the lose a few? Sheesh!!
  18. nvsmom
    I think false positives are fairly rare. This report, on page 12, discusses how accurate the positives are for celiac disease (specificity) and they are quite high, but I am not sure if that includes lab error. Open Original Shared Link I think it is more likely that his body's inflammation went down along with his overdone autoimmune response. Labs...
  19. nvsmom
    Most sources will recommend 1/2 up to 4 slices of bread per day (or the equivalent) but most sources say about 1-2 slices. Your 6 week gluten challenge is on the short side, most sources recommend 8-12 weeks, so you may want to err on the side of eating a diet that is as gluten heavy as you can - 2 or even more slices of bread per day (Or large beers...
  20. nvsmom
    With the journal, look at foods in the 72 hours before your symptoms arose. It can take a couple of days before symptoms show up. Good luck!
  21. nvsmom
    My cycles and pms changed quite a bit after going gluten-free, but I was also being newly treated for hypothyroidism so it could be either or both diseases that affected me. After going gluten-free my cycles became more regular and my period was shorter and lighter. I felt the fatigue of pms more but don't usually get the migraine now. My nose was always...
  22. nvsmom
    That's bloody brilliant! Thank you!
  23. nvsmom
    Ditto everything Cyclinglady wrote, except I think she meant to say take at least 6 samples - more is always better considering the small intestine has the surface area of a tennis court. When they do the blood tests, ask for the tTG IgA, tTG IgG,DGP IgA, DGP IgG, EMA IgA, total serum IgA, and possibly the older and less reliable AGA IgA and AGA IgG tests...
  24. nvsmom
    LOL GAH is the word!
  25. nvsmom
    It is starting to look like C is just as common as D. I think it just doesn't get talked about as much because it doesn't disrupt life as.... suddenly. I had C for about 38 years. It took close to a year on the gluten-free diet, and the proper thyroid meds, before it finally resolved. To be honest, I thought normal was D when it first started to change...
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