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Latest Celiac Disease News & Research:
Everything posted by Rachel--24
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ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Wow...thank God Donna is safe. I was scared but then saw that they said something about Nov. 26th. Donna was still on land at that time. Carla....I'm super slow at figuring stuff out too. Patti...Good luck at your appt. today. I'm not sure how reliable those leaky gut tests are either. Laura...I'm assuming you got tested by mainstream... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
YAY!! Yes, I'm sure Happygirl is gonna be really happy to have her hubby back full-time. My appt. isnt till 4:30....I'm gonna post and let you guys know how it went but it wont be until evening time. My mom's gonna go with me this time. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I have 3 appts. this week. My big appt is tomorrow.....when I'll get the results for co-infections. Tues and Thurs. I have Bioset. -
ARCHIVED I'm So Discouraged! My Son Is Not Doing As Good As He Was At First.
Rachel--24 replied to ARK's topic in Parents, Friends and Loved Ones of Celiacs
Hi...sorry your son isnt feeling well. I just wanted to mention that Quaker rice cakes have cross-contamination issues. They are not guaranteed gluten-free. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Lyme Disease in my area....bay area, CA. Open Original Shared Link Open Original Shared Link -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Nope....theres no mold. The dust from the heater at home and at my mom's house has been making sick since the heater started being used a couple weeks ago. I'm always sick...no matter where I go though. I was just referring to noone was wearing any strong perfumes or anything like that at the party...so I didnt get a really bad reaction to anything and was... -
ARCHIVED gluten-free Since May, Chronic Fatigue Better, Now Fibromyalgia
Rachel--24 replied to Mia H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with Carla. Lyme disease is very often misdiagnosed as chronic fatigue syndrome or Fibro. Unfortunately Lyme testing is unreliable. Like Carla said...Igenix is well known to be the best and most reliable lab. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I walked to the mailbox...no Igenix results. I'm sure my Dr. must have them....so I'll find out the results tomorrow anyway. I wonder why they didnt send them to me though. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I dont blame you Laura. How frusterating. I'm not surprised though. I dont know if the Dr.'s just "forget" or if they sometimes just say things to appease us....especially if they feel we wont double check. I think sometimes they really have no intention of following through but just say what we want to hear. This same thing has happened to me... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Good morning I had a great time time at the birthday party yesterday....and I didnt get sick. On my way home last night I realized that a whole 8 hours had passed at the party and not even ONCE did I think about my Igenix results or any of this stuff that is usually forefront in my mind. I didnt get home till 1:30 this morning and I *could* have... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Carla, I was just worried if Igenix didnt have your correct address. I forgot about you getting the billing info and ripping it open in a frenzied moment of anticipation! Ok...I went to Bioset and #2 tested the water. The water in the living room showed nothing bothersome. The water in my room showed a STRONG recation. There is something in the room... -
ARCHIVED Unclear Diagnosis
Rachel--24 replied to jmn1958's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yup....I agree with everyone. You had a very clear diagnosis....you had a positive biopsy. You also went on the diet and felt great. A 3 month challenge may have not been enough time to cause significant damage and the biopsy is a "hit or miss". They could easily miss damage. I dont understand why you need another firm diagnosis?? Wasnt the first positive... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Carla, Have you called the doctor and checked if the results have come in over there yet? -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Here is something else that some believe is an essential part of Lyme treatment. I've seen it mentioned lots of times on the Lyme board and also Scott (the better health guy) has talked about it as a necessary part of treatment. Hypercoagulation. Open Original Shared Link -
ARCHIVED Marshall Protocol?
Rachel--24 replied to HawkFire's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, I think there is also a genetic component for sure. I will use Lyme as my example since its the bacteria I'm most familiar with. Lyme shows itself differently in each individual. Some have severe neurological symptoms...even showing white matter lesions on the brain. They get a diagnosis of MS and of course the Lyme goes undiagnosed. Some have severe... -
ARCHIVED Marshall Protocol?
Rachel--24 replied to HawkFire's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, its true in many cases.....but not in EVERY case. I think there is still alot they dont know. Alot of people are misdiagnosed with MS, RA, Fibromyalgia, Chronic Fatigue Syndrome, etc....when they actually have Lyme Disease. Lyme is a bacteria and the symptoms can mimick any one of these conditions.....it manifests itself differently in each patient... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Andrea....its ok...my mom just doesnt get it. She doesnt get how I could "smell" stuff long after its gone and if she cant smell it. Thats why she's going to my Dr. appt. on Monday....so she could ask the Dr. He knows all about chemical sensitivities so maybe she'll "get it" when the Dr. explains it. miamia...its like 21 pages of links... -
ARCHIVED Why Now ?
Rachel--24 replied to DVK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah...I'm thinking bacteria and parasitic infections. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
OMG....I'm wanting to pull all my hair out right now....I'm soooo frusterated!! My mom just says to me..."OMG...you should have seen my dance instructor tonight.....he was SOOOO congested and I asked him if he was sick and he said "NO...its ALLERGIES." She's very dramatic as she's telling me about her poor dance instructor and how he's ALLERGIC to wood... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Somebody sent me a BIG newbie package on the Lyme board. I'll be busy with this for awhile. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Laura, Did you email me? I'm on my moms AOL account but I can sign off and check my mail. oh...ok. Laura...I didnt get any mail?? -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Laura, I dont think its normal to always have elevated liver enzymes. I've never heard that. My liver enzymes have always been normal....and my livers been tested numerous times over the past 4 years. I never fasted before the bloodwork. When they came back high that one time...they asked if I'd been on any medications. I told them I'd been on... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Not really sure. All of my bloodwork was pretty normal. I had elevated liver enzymes only once...interestingly after I'd just been on 2 weeks of antibiotics (one of the ones used to treat Lyme). Hmmm...I wonder if that means anything. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Laura, I was asking if its the LymeNET message board that you've been on. There are quite a few Lyme boards....was just wondering. I havent found a "favorite" yet. I wonder which board is the best and most informative? So far I find myself spending alot of time on LymeNET. You can send me the results if you want....I'll *try* to figure it out. They... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Oh yeah...I forgot to tell you guys... a couple days ago at work I was sitting in the break room and people were talking about taking care of your body cuz it can break down (dont I know ) and then one lady (that I've known for like 17 years now) said something about having really bad reflux and burning in her throat. She said she gets it from everything...