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Rachel--24

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Everything posted by Rachel--24

  1. Rachel--24
    Yeah...but you're a good friend who says the right things. I really want to go to Disneyland....and also on a cruise somewhere. I've been talking about going to DL since I thought I only needed to be gluten-free. I read posts about DL resorts serving gluten free pancakes shaped like mickey....and ever since then I've really wanted to go. I keep...
  2. Rachel--24
    LMAO....oh yeah....DUH!! Tonight my friend said we should plan a trip to Disneyland.....how fun it would be. How depressing that I cant just go and do these things right now. Do you guys think sometime next year I might be well enough to do something like this?? I'm gonna ask the Dr. on Monday what the prognosis is.
  3. Rachel--24
    I've been reading away on the Lyme board.....I just finally registered tonight. Laura which board have you been reading LymeNET?? I'm having alot of anxiety about my co-infection test coming back negative and having to still dig deeper....and more testing. I'm not sure if I would want to start treatment for Lyme alone....and not co-infections...
  4. Rachel--24
    Stephanie, HOORAY!! This is a milestone for sure...I dont blame you for wanting to shout it from the rooftops...I would too!!! Great news.
  5. Rachel--24
    Laura, Great news! I also have a feeling that you are on the right path. YAY....another big appt. to look forward to. I have a feeling you will notice a big difference with this type of Dr....I certainly did. I'm telling you....Dr.'s that think "outside the box" have a MUCH better understanding of the kinds of things we deal with.....they dont...
  6. Rachel--24
    I think Crohn's Disease can cause bloody stools and also alot of other symptoms similar to Celiac. Have you ever had a colonoscopy?
  7. Rachel--24
    In order for the bloodtests to be accurate you cannot start a gluten-free diet. Your Dr. was wrong to tell you to go on the diet and then he'll test you. You can get a false negative by starting the diet before testing. Its the same for the the Endoscopy....you need to be eating plenty of gluten for up to 3 months before the test.
  8. Rachel--24
    Yeah Carla...sheeeesh...I had no idea we'd all have to wait until next year!
  9. Rachel--24
    Carla, I keep meaning to ask...when are you going to NY? I'm sure it was posted and I missed it.
  10. Rachel--24
    This protocol is used for treatment of Lyme Disease or conditions with similar symptoms. No...it does not cure Celiac. There is no cure for Celiac Disease. The only effective treatment is a gluten-free diet. A "non-Celiac" gluten intolerance or other food intolerances *caused* by a bacteria infection such as Lyme and other infections related...
  11. Rachel--24
    Too funny Carla!
  12. Rachel--24
    I had high body temp. from Hyperthroidism. Then I got the same type symptoms when I got Lyme Disease.
  13. Rachel--24
    Yeah...waiting sucks. I have 2 1/2 more days of waiting. Plus I'm waiting for your results, waiting for Julie to get tested, waiting for Carla's results (taking forever by the way), waiting to hear about Lind's test results, waiting for Donna to go to BioSET....waiting....waiting....waiting. <sigh> Tomorrow I bring my "environment" to BioSET...
  14. Rachel--24
    There are people who have negative bloodwork and positive biopsies...I've seen it posted here enough times to question what you're doctor is saying. One reason for false negatives on the bloodwork can be due to IgA deficiency. Was your son's total IgA serum tested? Its part of the celiac panel but many doctors dont order that test.
  15. Rachel--24
    Rinne...Julie just posted a link for support groups in Canada. Have you tried calling a support group to find out about Dr.'s in your area? I wonder if you contacted an LLMD who is alternative (such as Dr. Klinghardt or his partner) if they could point you in the right direction as far as locating a good Dr. in your area??
  16. Rachel--24
    I have a feeling this might change when you feel comfortable and safe with a good Dr. who not only knows what you're experiencing but has treated many patients just like you and gotten them well again. With the right Dr. your fears may dissapate.
  17. Rachel--24
    Julie....I think I'll just ask my Dr. on Monday if I can just go to the support group whenever I want...without calling. I hate having to call people. Miamia, Did you have the cd57 test done? When will you be getting all of your results back?? Carla....shouldnt you be getting your results back any day now...seems like its been FOREVER.
  18. Rachel--24
    Thanks Andrea. I'll just pop in when I want then. Heres some info. about the CD57 test. I think Miamia took this test already??
  19. Rachel--24
    Julie, It sounds like you are getting alot of good info. I can relate to your feelings of not wanting to deal with new doctors but hopefully if you're getting good recommendations you will end up in good hands. A year ago I was pretty much anti-Dr. after all of my experiences with that HEINOUS place known as Kaiser...with the most HEINOUS doctors ever...
  20. Rachel--24
    Well....I finally got around to contacting that guy from my area....the one from this site... Open Original Shared Link He was really nice and helpful. I could tell he would be quite knowledgeable since he seems to be very involved. He has his own column in that Lyme newspaper I read....the one I got the 10 commandments from. He's also involved...
  21. Rachel--24
    That bear is totally cute. Reminds me of a Beanie Baby. I used to collect them ...have a ton of bears. I want Lynne the Lyme Bear. She would be much "safer" around me than the Giant Fuzzy Lyme would be.
  22. Rachel--24
    I dont know if the cold weather makes me worse as far as symptoms go. I think during the summer when its hot I tend to spend more time outside in the sun and I'm happier. During the winter I'm freezing and I'm always inside getting exposed to more chemicals and having the heater on, dust, etc. I'm not as happy. Being in the sun gives Vitamin D...I...
  23. Rachel--24
    My mom has poisoned me with chemicals....its not a good night. She didnt mean to...sometimes she just thinks if I'm sleeping or if she quickly does something while I'm not paying attention...that maybe I wont notice. Ummm...hello....my body does not go into a "normal" non-reactive state just because I close my eyes and seem peaceful. Linds...
  24. Rachel--24
    Donna...I dont know if Bioset lady #1 works on Saturdays. If I were you I would try to scheduule specifically with her because shes got more knowledge than most of the doctors I've seen. Shes really good....even beyond the BioSET stuff. The other lady doesnt really know as much.....she just kind of does the testing and treatment....thats about it. Heck.....
  25. Rachel--24
    Julie...YAY...I hope this works out and that you can get tested soon. Linds...hope your Dr. appt. went well today. Donna.....BON VOYAGE!! We'll try not to get "too" out of hand with the posts while you're gone. Have a great time and be safe! Is it Monday yet?? I found a really good symptom list for Lyme...check it out.....
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